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5 ensaios clínicos encontrados, 1 ativos.
Feasibility of machine learning analysis for the identification of patients with possible primary ciliary dyskinesia.
Unmet needs of adults living with mucopolysaccharidosis II: data from the Hunter Outcome Survey.
The patient experience of CHAPLE disease: results from interviews conducted as part of a clinical trial for an ultra-rare condition.
Safety of beta-blocker discontinuation after acute coronary syndromes with preserved or mildly reduced left ventricular ejection fraction: a target trial emulation from a real-world cohort.
Experiences of quality of life and access to health services among rare disease caregivers: a scoping review.