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The effects of self-efficacy in managing the disease and disease adaptation levels of Familial Mediterranean Fever (fmf) patients on satisfaction with life: a web-based cross-sectional study.
🥈 ObservacionalFramework for Multistakeholder Patient Registries in the Field of Rare Diseases: Focus on Neurogenetic Diseases.
Translating patient needs into medical device development: co-design of a photoprotection visor for Xeroderma Pigmentosum using qualitative interviews.
Mammalian Target of Rapamycin Inhibition in Patients With ST-Segment Elevation Myocardial Infarction.
🥇 Ensaio randomizadoClinical profiles of treated and untreated adults with hypophosphatasia in the Global HPP Registry.