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Distrofia muscular da cintura dos membros autossômica recessiva, tipo 28
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Introdução

O que você precisa saber de cara

📋

Distrofia muscular de cinturas (LGMD) é um grupo geneticamente heterogêneo de distrofias musculares raras que compartilham um conjunto de características clínicas. É caracterizada pela perda muscular progressiva que afeta predominantemente os músculos do quadril e dos ombros. A LGMD geralmente tem um padrão de herança autossômico. Atualmente, não possui cura ou tratamento conhecido.

Publicações científicas
169 artigos
Último publicado: 2026 Apr 6

Escala de raridade

CLASSIFICAÇÃO ORPHANET · BRASIL 2024
<1 / 1 000 000
Ultra-rara
<1/50k
Muito rara
1/20k
Rara
1/10k
Pouco freq.
1/5k
Incomum
1/2k
Prevalência
0.0
Worldwide
Casos conhecidos
15
pacientes catalogados
Início
Adolescent
+ adult, childhood
🏥
SUS: Cobertura mínimaScore: 20%
CID-10: G71.0
🇧🇷Dados SUS / DATASUS2024
2.340
internações/ano
R$ 6.780
custo médio/internação
ESTADOS COM MAIS INTERNAÇÕES
SPRJMGRSPR
PROCEDIMENTOS SIGTAP (2)
0202010694
Sequenciamento completo do exoma (WES)genetic_test
0301070040
Atendimento em reabilitação — doenças rarasrehabilitation
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Entender a doença

Do básico ao detalhe, leia no seu ritmo

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Sinais e sintomas

O que aparece no corpo e com que frequência cada sintoma acontece

Partes do corpo afetadas

💪
Músculos
12 sintomas
🫁
Pulmão
3 sintomas
🦴
Ossos e articulações
2 sintomas
🫃
Digestivo
1 sintomas
😀
Face
1 sintomas
🧠
Neurológico
1 sintomas

+ 16 sintomas em outras categorias

Características mais comuns

100%prev.
Alfa-distroglicano reduzido na fibra muscular
Obrigatório (100%)
100%prev.
Fibras musculares esqueléticas com núcleo central
Frequência: 3/3
100%prev.
Insuficiência respiratória necessitando de ventilação assistida
Obrigatório (100%)
100%prev.
Hipertrofia do músculo da panturrilha
Frequência: 3/3
100%prev.
Arreflexia
Obrigatório (100%)
100%prev.
Hiporreflexia
Frequência: 3/3
38sintomas
Muito frequente (24)
Frequente (8)
Ocasional (1)
Muito raro (4)
Sem dados (1)

Os sintomas variam de pessoa para pessoa. Abaixo estão as 38 características clínicas mais associadas, ordenadas por frequência.

Alfa-distroglicano reduzido na fibra muscularReduced muscle fiber alpha dystroglycan
Obrigatório (100%)100%
Fibras musculares esqueléticas com núcleo centralCentrally nucleated skeletal muscle fibers
Frequência: 3/3100%
Insuficiência respiratória necessitando de ventilação assistidaRespiratory failure requiring assisted ventilation
Obrigatório (100%)100%
Hipertrofia do músculo da panturrilhaCalf muscle hypertrophy
Frequência: 3/3100%
ArreflexiaAreflexia
Obrigatório (100%)100%

Linha do tempo da pesquisa

Publicações por ano — veja quando o interesse científico cresceu
Anos de pesquisa11
Total histórico169PubMed
Últimos 10 anos5publicações
Pico20151 papers
Linha do tempo
20202015Hoje · 2026
Publicações por ano (últimos 10 anos)

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Genética e causas

O que está alterado no DNA e como passa nas famílias

Genes associados

1 gene identificado com associação a esta condição. Padrão de herança: Autosomal recessive.

HMGCR3-hydroxy-3-methylglutaryl-coenzyme A reductaseDisease-causing germline mutation(s) inAltamente restrito
FUNÇÃO

Catalyzes the conversion of (3S)-hydroxy-3-methylglutaryl-CoA (HMG-CoA) to mevalonic acid, the rate-limiting step in the synthesis of cholesterol and other isoprenoids, thus plays a critical role in cellular cholesterol homeostasis (PubMed:21357570, PubMed:2991281, PubMed:36745799, PubMed:6995544). HMGCR is the main target of statins, a class of cholesterol-lowering drugs (PubMed:11349148, PubMed:18540668, PubMed:36745799)

LOCALIZAÇÃO

Endoplasmic reticulum membranePeroxisome membrane

VIAS BIOLÓGICAS (1)
EGR2 and SOX10-mediated initiation of Schwann cell myelination
MECANISMO DE DOENÇA

Muscular dystrophy, limb-girdle, autosomal recessive 28

An autosomal recessive form of limb girdle muscular dystrophy, a group of genetically heterogeneous muscular disorders that share proximal muscle weakness as the major attribute. Most limb girdle muscular dystrophies present with elevated creatinine kinase and myopathic electromyographic features. Disease is usually progressive to a variable degree, ranging from minor disability to complete inability to ambulate, and can involve the large proximal muscles, as well as axial and facial muscles. Different disease forms may exhibit skeletal muscle hypertrophy, kyphoscoliosis, and contractures or involve other muscle groups and manifest with distal weakness, cardiomyopathy, dysphagia, and respiratory difficulties. LGMDR28 is characterized by progressive muscle weakness affecting the proximal and axial muscles of the upper and lower limbs, and highly variable age at onset. Most patients have limited ambulation or become wheelchair-bound within a few decades, and respiratory insufficiency commonly occurs.

EXPRESSÃO TECIDUAL(Ubíquo)
Skin Not Sun Exposed Suprapubic
80.4 TPM
Skin Sun Exposed Lower leg
73.8 TPM
Linfócitos
66.2 TPM
Esôfago - Mucosa
63.8 TPM
Vagina
42.9 TPM
OUTRAS DOENÇAS (1)
muscular dystrophy, limb-girdle, autosomal recessive 28
HGNC:5006UniProt:P04035

Medicamentos aprovados (FDA)

1 medicamento encontrado nos registros da FDA americana.

💊 Penicillamine (PENICILLAMINE)
Ver no DailyMed/FDA

Variantes genéticas (ClinVar)

19 variantes patogênicas registradas no ClinVar.

🧬 HMGCR: NM_000859.3(HMGCR):c.2518C>T (p.Arg840Ter) ()
🧬 HMGCR: NM_000859.3(HMGCR):c.2425A>C (p.Thr809Pro) ()
🧬 HMGCR: NM_000859.3(HMGCR):c.1789C>T (p.Pro597Ser) ()
🧬 HMGCR: NM_000859.3(HMGCR):c.1783C>T (p.Arg595Cys) ()
🧬 HMGCR: NM_000859.3(HMGCR):c.1921C>T (p.Arg641Cys) ()
Ver todas no ClinVar

Classificação de variantes (ClinVar)

Distribuição de 45,440 variantes classificadas pelo ClinVar.

4544
18176
22720
Patogênica (10.0%)
VUS (40.0%)
Benigna (50.0%)
VARIANTES MAIS SIGNIFICATIVAS
TRAPPC11: NM_021942.6(TRAPPC11):c.3075dup (p.Val1026fs) [Pathogenic]
LOC112577517: NM_015602.4(TOR1AIP1):c.373C>T (p.Arg125Ter) [Pathogenic]
LIMS2: NM_001161403.3(LIMS2):c.956_967del (p.Arg319_Lys322del) [Uncertain significance]
CAPN3: NM_000070.3(CAPN3):c.8C>T (p.Thr3Ile) [Uncertain significance]
SGCB: NM_000232.5(SGCB):c.244-21_244-20inv [Uncertain significance]

Diagnóstico

Os sinais que médicos procuram e os exames que confirmam

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Tratamento e manejo

Remédios, cuidados de apoio e o que precisa acompanhar

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Onde tratar no SUS

Hospitais de referência no Brasil e o protocolo oficial do SUS (PCDT)

🇧🇷 Atendimento SUS — Distrofia muscular da cintura dos membros autossômica recessiva, tipo 28

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Dados de DATASUS/CNES, SBGM, ABNeuro e Ministério da Saúde. Sempre confirme a disponibilidade diretamente com o estabelecimento.

Pesquisa ativa

Ensaios clínicos abertos e novidades científicas recentes

Pesquisa e ensaios clínicos

Nenhum ensaio clínico registrado para esta condição.

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Publicações mais relevantes

Timeline de publicações
44 papers (10 anos)

Mostrando amostra de 5 publicações de um total de 44

#1

Mutations in COL6A Gene Family Responsible for Muscular Dystrophies in Three Unrelated Families.

Iranian biomedical journal2024 Sep 01

Muscular dystrophy is an inherited disease with clinical and genetic heterogeneity. Muscle weakness is the primary symptom of these disorders that often leads to disability and death. The overall prevalence for all types of muscular dystrophies worldwide is 19.8-25.1 per 100,000 population. Autosomal recessive types of muscular dystrophies are more common in Iran, likely due to the high rate of consanguineous marriage. We aimed at deciphering molecular defects in three unrelated families with muscular dystrophies not related to Duchene muscular dystrophy (MD) or limb girdle muscular dystrophies. We are reporting families having affected children with MD owing to the mutations in three genes related to the COL6A (collagen type VI, alpha subunit) gene family. Three unrelated families, who had at least one member affected with MD and for whom a definite molecular diagnosis was not provided by routine methods, were investigated by WES and confirmed by Sanger sequencing. In the first family, a homozygous variant was found in the COL6A3 gene (NM_004369.4:c.4390C>T:p.Arg1464Ter), which explains the clinical symptoms observed in this family. In the second family, two homozygote missense variants with possible relevance to the patient’s phenotype were identified in COL6A1 and COL6A2 genes (NM_001848.2:c.803A>G: p.Glu268Gly and NM_001849.3:c.2489G>A:p.Arg830Gln). Also, a heterozygous pathogenic variant in the COL6A2 gene (NM_001849.3: c.1053+1G>T) was detected in the third family. WES can serve as an effective method for detecting the causative mutations in families with unresolved cases of MD. The data provided herein broadens the spectrum of mutations causing MD in Iran.

#2

Dysferlinopathy in Tunisia: clinical spectrum, genetic background and prognostic profile.

Neuromuscular disorders : NMD2023 Oct

Dysferlinopathy is a rare group of hereditary muscular dystrophy with an autosomal recessive mode of inheritance caused by a mutation in the DYSF gene. It encodes for the dysferlin protein, which has a crucial role in multiple cellular processes, including muscle fiber membrane repair. This deficit has heterogeneous clinical presentations. In this study, we collected 20 Tunisian patients with a sex ratio of 1 and a median age of 50.5 years old (Interquartile range (IQR) = [36,5-54,75]). They were followed for periods ranging from 5 to 48 years. The median age at onset was 17 years old (IQR = [16,8-28,4]). Five major phenotypes were identified: Limb-girdle muscular dystrophy (LGMDR2) (35%), a proximodistal phenotype (35%), Miyoshi myopathy (10%),  Distal myopathy with anterior tibial onset (DMAT) (10%), and asymptomatic HyperCKemia (10%). At the last evaluation, more than half of patients (55%) were on wheelchair. Loss of ambulation occurred generally during the fourth decade. After 20 years of disease progression, two patients with a proximodistal phenotype (10%) developed dilated cardiomyopathy and mitral valve regurgitation. Restrictive respiratory syndrome was observed in three patients (DMAT: 1 patient, proximodistal phenotype: 1 patient, LGMDR2: 1 patient). Genetic study disclosed five mutations. We observed clinical heterogeneity between families and even within the same family. Disease progression was mainly slow to intermediate regardless of the phenotype.

#3

Limb girdle muscular dystrophy 2G in a religious minority of Bulgarian Muslims homozygous for the c.75G>A, p.Trp25X mutation.

Neuromuscular disorders : NMD2018 Aug

Mutations in TCAP gene cause autosomal recessive limb-girdle muscular dystrophy type 2G (LGMD2G), congenital muscular dystrophy and autosomal dominant dilated and hypertrophic cardiomyopathy. We studied 18 affected individuals from 12 pedigrees, belonging to a Bulgarian Muslim minority from the South-West of Bulgaria, homozygous for the c.75G>A, p.Trp25X mutation in TCAP gene. The heterozygous carrier rate of p.Trp25X among 100 newborns in this region was found to be 2%. The clinical features in the Bulgarian TCAP group include disease onset in the first to the third decade of life, proximal muscle weakness in the lower limbs, followed or accompanied by difficulties in ankle dorsiflexion and involvement of the proximal muscles of the upper limbs 5-9 years after the disease onset. Asymmetry between left and right was present in more than 20% of the affected. Respiratory and cardiac functions were not affected. On the MRI the muscles of the posterior pelvic area, thigh and anterior leg were predominantly affected, while sartorius, gracilis and biceps femoris muscles remained relatively spared. In conclusion, LGMD2G appears to be a common form among Bulgarian Muslims. Homozygosity for c.75G>A, p.Trp25X is associated with a homogeneous clinical presentation, but the clinical course and severity of the disease show inter- and intra-familial variation.

#4

LGMD2E is the most common type of sarcoglycanopathies in the Iranian population.

Journal of neurogenetics2017 Sep

Sarcoglycanopathies (SGCs) which are caused by mutations in SGCA, SGCB, SGCG or SGCD genes are a subgroup of autosomal-recessive limb-girdle-muscular-dystrophies (LGMD2). Although frequencies of mutations in these genes are different among populations, mutations in SGCA and SGCD, respectively, have the highest and lowest frequencies in most populations. Here, we report the proportion of mutations in SGC genes among a group of Iranian SGCs patients. Clinical features and results of SGC genes screening of 25 SGCs probands are presented. Large deletion mutations are confirmed with MLPA assays. In total, 15 candidate disease causing mutations were observed in the SGCA, SGCB, SGCG and SGCD genes; ten were novel. Fourteen (56%), seven (28%), three (12%) and one (4%) patient, respectively, carried mutations in SGCB, SGCG, SGCD and SGCA. The findings suggest that LGMD2E is the most common form of SGCs in the Iranian population and that LGMD2D is the rarest. Twelve LGMD2E cases carried the same mutation. To the best of knowledge, the mutation spectrum in SGCs is being reported for the first time in Iranian population. The finding will be beneficial for screening and genetic-counseling of SGCs patients in Iran.

#5

LAMA2-related myopathy: Frequency among congenital and limb-girdle muscular dystrophies.

Muscle &amp; nerve2015 Oct

Muscular dystrophy caused by LAMA2-gene mutations is an autosomal recessive disease typically presenting as a severe, early-onset congenital muscular dystrophy (CMD). However, milder cases with a limb-girdle type muscular dystrophy (LGMD) have been described. In this study, we assessed the frequency and phenotypic spectrum of LAMA2-related muscular dystrophy in CMD (n = 18) and LGMD2 (n = 128) cohorts identified in the last 15 years in eastern Denmark. The medical history, brain-MRI, muscle pathology, muscle laminin-α2 expression, and genetic analyses were assessed. Molecular genetics revealed 2 pathogenic LAMA2 mutations in 5 of 18 CMD and 3 of 128 LGMD patients, corresponding to a LAMA2-mutation frequency of 28% in the CMD and 2.3% in the LGMD cohorts, respectively. This study demonstrates a wide clinical spectrum of LAMA2-related muscular dystrophy and its prevalence in an LGMD2 cohort, which indicates that LAMA2 muscular dystrophy should be included in the LGMD2 nomenclature.

Publicações recentes

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Associações

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Comunidades

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Doenças relacionadas

Doenças com sintomas parecidos — ajudam quem ainda está buscando diagnóstico

Ordenadas pelo número de sintomas em comum.

Referências e fontes

Bases de dados externas citadas neste artigo

Publicações científicas

Artigos indexados no PubMed ligados a esta doença no grafo RarasNet — título, periódico e PMID direto da fonte, sem intermediação de IA.

  1. Mutations in COL6A Gene Family Responsible for Muscular Dystrophies in Three Unrelated Families.
    Iranian biomedical journal· 2024· PMID 39397694mais citado
  2. Dysferlinopathy in Tunisia: clinical spectrum, genetic background and prognostic profile.
    Neuromuscular disorders : NMD· 2023· PMID 37716854mais citado
  3. Limb girdle muscular dystrophy 2G in a religious minority of Bulgarian Muslims homozygous for the c.75G&gt;A, p.Trp25X mutation.
    Neuromuscular disorders : NMD· 2018· PMID 29935994mais citado
  4. LGMD2E is the most common type of sarcoglycanopathies in the Iranian population.
    Journal of neurogenetics· 2017· PMID 28687063mais citado
  5. LAMA2-related myopathy: Frequency among congenital and limb-girdle muscular dystrophies.
    Muscle &amp; nerve· 2015· PMID 25663498mais citado
  6. Limb Girdle Muscular Dystrophy Associated With TRIM32 Variants: A National Cohort Study.
    Muscle Nerve· 2026· PMID 41943552recente
  7. Expanded clinical and genetic characterization of autosomal recessive HMGCR-related muscular dystrophy.
    J Neuromuscul Dis· 2026· PMID 41904993recente
  8. 282nd ENMC international workshop - standards of diagnosis and care for the sarcoglycanopathies. 8-10 November 2024, Amsterdam, Netherlands.
    Neuromuscul Disord· 2025· PMID 40997622recente
  9. Diamond Sign in Calpainopathy.
    JAMA Neurol· 2026· PMID 40952715recente
  10. Generation of induced pluripotent stem cell lines from three LGMD R1 patients carrying CAPN3 hypomorphic intronic variant c.1746-20C > G.
    Stem Cell Res· 2025· PMID 40834588recente

Bases de dados e fontes oficiais

Identificadores e referências canônicas usadas para montar este verbete.

  1. ORPHA:653725(Orphanet)
  2. OMIM OMIM:620375(OMIM)
  3. MONDO:0957270(MONDO)
  4. Variantes catalogadas(ClinVar)
  5. Busca completa no PubMed(PubMed)

Dados compilados pelo RarasNet a partir de fontes abertas (Orphanet, OMIM, MONDO, PubMed/EuropePMC, ClinicalTrials.gov, DATASUS, PCDT/MS). Este conteúdo é informativo e não substitui avaliação médica.

Conteúdo mantido por Agente Raras · Médicos e pesquisadores podem colaborar

Distrofia muscular da cintura dos membros autossômica recessiva, tipo 28
Compêndio · Raras BR

Distrofia muscular da cintura dos membros autossômica recessiva, tipo 28

ORPHA:653725 · MONDO:0957270
🇧🇷 Brasil SUS
Internações
2.340/ano
Prevalência BR
1:3500 (homens)
Custo SUS
R$ 6.780/internação
Dados
DATASUS 2024
Geral
Prevalência
<1 / 1 000 000
Casos
15 casos conhecidos
Herança
Autosomal recessive
CID-10
G71.0 · Distrofia muscular
Início
Adolescent, Adult, Childhood
Prevalência
0.0 (Worldwide)
MedGen
UMLS
C5830518
EuropePMC
Papers 10a
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