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Epidermólise bolhosa simples localizada
ORPHA:79400CID-10 · Q81.0CID-11 · EC30OMIM 131800DOENÇA RARA

Um subtipo basal de epidermólise bolhosa simples (EBS). A doença é caracterizada por bolhas que ocorrem principalmente nas palmas das mãos e plantas dos pés, agravadas pelo clima quente.

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Introdução

O que você precisa saber de cara

📋

Um subtipo basal de epidermólise bolhosa simples (EBS). A doença é caracterizada por bolhas que ocorrem principalmente nas palmas das mãos e plantas dos pés, agravadas pelo clima quente.

Publicações científicas
14 artigos
Último publicado: 2024 Aug

Escala de raridade

CLASSIFICAÇÃO ORPHANET · BRASIL 2024
1-9 / 1 000 000
Ultra-rara
<1/50k
Muito rara
1/20k
Rara
1/10k
Pouco freq.
1/5k
Incomum
1/2k
Prevalência
0.0
Europe
Início
Childhood
🏥
SUS: Cobertura mínimaScore: 15%
CID-10: Q81.0
🇧🇷Dados SUS / DATASUS
PROCEDIMENTOS SIGTAP (5)
0202010503
Cariótipo — bandas G, Q ou Rgenetic_test
0202010600
Pesquisa de microdeleções/microduplicações por FISHlab_test
0202010694
Sequenciamento completo do exoma (WES)rehabilitation
0202010260
Dosagem de alfa-fetoproteína
0301070040
Atendimento em reabilitação — doenças raras
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Entender a doença

Do básico ao detalhe, leia no seu ritmo

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Sinais e sintomas

O que aparece no corpo e com que frequência cada sintoma acontece

Partes do corpo afetadas

🧬
Pele e cabelo
9 sintomas
💪
Músculos
1 sintomas
🧠
Neurológico
1 sintomas
🦴
Ossos e articulações
1 sintomas

+ 15 sintomas em outras categorias

Características mais comuns

100%prev.
Bolhas palmoplantares
Muito frequente (99-80%)
100%prev.
Clivagem do estrato basal
Obrigatório (100%)
100%prev.
Início na infância
Frequência: 33/33
90%prev.
Hiperceratose palmoplantar focal relacionada à fricção
Muito frequente (99-80%)
90%prev.
Fragilidade cutânea com bolhas não cicatriciais
Muito frequente (99-80%)
90%prev.
Cisão juncional
Muito frequente (99-80%)
27sintomas
Muito frequente (9)
Frequente (5)
Ocasional (5)
Muito raro (7)
Sem dados (1)

Os sintomas variam de pessoa para pessoa. Abaixo estão as 27 características clínicas mais associadas, ordenadas por frequência.

Bolhas palmoplantaresPalmoplantar blistering
Muito frequente (99-80%)100%
Clivagem do estrato basalStratum basale cleavage
Obrigatório (100%)100%
Início na infânciaChildhood onset
Frequência: 33/33100%
Hiperceratose palmoplantar focal relacionada à fricçãoFocal friction-related palmoplantar hyperkeratosis
Muito frequente (99-80%)90%
Fragilidade cutânea com bolhas não cicatriciaisSkin fragility with non-scarring blistering
Muito frequente (99-80%)90%

Linha do tempo da pesquisa

Publicações por ano — veja quando o interesse científico cresceu
Anos de pesquisa2desde 2024
Total histórico14PubMed
Últimos 10 anos7publicações
Pico20172 papers
Linha do tempo
2024Hoje · 2026🧪 2018Primeiro ensaio clínico
Publicações por ano (últimos 10 anos)

Encontrou um erro ou informação desatualizada? Sugira uma correção →

Genética e causas

O que está alterado no DNA e como passa nas famílias

Genes associados

2 genes identificados com associação a esta condição. Padrão de herança: Autosomal dominant.

KRT5Keratin, type II cytoskeletal 5Disease-causing germline mutation(s) inRestrito
FUNÇÃO

Required for the formation of keratin intermediate filaments in the basal epidermis and maintenance of the skin barrier in response to mechanical stress (By similarity). Regulates the recruitment of Langerhans cells to the epidermis, potentially by modulation of the abundance of macrophage chemotactic cytokines, macrophage inflammatory cytokines and CTNND1 localization in keratinocytes (By similarity)

LOCALIZAÇÃO

Cytoplasm

VIAS BIOLÓGICAS (7)
Type I hemidesmosome assemblyKeratinizationFormation of the cornified envelopeDevelopmental Lineage of Mammary Stem CellsDevelopmental Lineage of Mammary Gland Luminal Epithelial Cells
MECANISMO DE DOENÇA

Epidermolysis bullosa simplex 2A, generalized severe

A form of epidermolysis bullosa simplex, a group of skin fragility disorders characterized by skin blistering due to cleavage within the basal layer of keratinocytes, and erosions caused by minor mechanical trauma. There is a broad spectrum of clinical severity ranging from minor blistering on the feet, to subtypes with extracutaneous involvement and a lethal outcome. EBS2A is an autosomal dominant, severe form characterized by extensive intraepidermal blistering from the time of birth with herpetiform marginal spreading and central healing. Oral mucosal involvement, nail dystrophy, onychogryposis, formation of milia, and palmoplantar hyperkeratosis are common features.

EXPRESSÃO TECIDUAL(Ubíquo)
Esôfago - Mucosa
7391.8 TPM
Skin Not Sun Exposed Suprapubic
5833.1 TPM
Skin Sun Exposed Lower leg
5020.4 TPM
Vagina
3291.8 TPM
Glândula salivar
340.6 TPM
OUTRAS DOENÇAS (11)
epidermolysis bullosa simplex 2F, with mottled pigmentationepidermolysis bullosa simplex 2B, generalized intermediateepidermolysis bullosa simplex 2E, with migratory circinate erythemaDowling-Degos disease 1
HGNC:6442UniProt:P13647
KRT14Keratin, type I cytoskeletal 14Disease-causing germline mutation(s) inTolerante
FUNÇÃO

The nonhelical tail domain is involved in promoting KRT5-KRT14 filaments to self-organize into large bundles and enhances the mechanical properties involved in resilience of keratin intermediate filaments in vitro

LOCALIZAÇÃO

CytoplasmNucleus

VIAS BIOLÓGICAS (5)
Type I hemidesmosome assemblyKeratinizationFormation of the cornified envelopeDevelopmental Lineage of Mammary Gland Myoepithelial CellsDifferentiation of Keratinocytes in Interfollicular Epidermis in Mammalian Skin
MECANISMO DE DOENÇA

Epidermolysis bullosa simplex 1A, generalized severe

A form of epidermolysis bullosa simplex, a group of skin fragility disorders characterized by skin blistering due to cleavage within the basal layer of keratinocytes, and erosions caused by minor mechanical trauma. There is a broad spectrum of clinical severity ranging from minor blistering on the feet, to subtypes with extracutaneous involvement and a lethal outcome. EBS1A is an autosomal dominant form characterized by generalized intraepidermal skin blistering that begins and is very prominent at birth. EBS1A may be life-threatening in the first year of life. Tendency to blistering diminishes in adolescence.

EXPRESSÃO TECIDUAL(Ubíquo)
Skin Not Sun Exposed Suprapubic
8476.9 TPM
Skin Sun Exposed Lower leg
7304.4 TPM
Vagina
763.1 TPM
Esôfago - Mucosa
645.2 TPM
Glândula salivar
535.5 TPM
OUTRAS DOENÇAS (7)
Naegeli-Franceschetti-Jadassohn syndromeepidermolysis bullosa simplex 1B, generalized intermediateepidermolysis bullosa simplex 1C, localizedepidermolysis bullosa simplex 1D, generalized, intermediate or severe, autosomal recessive
HGNC:6416UniProt:P02533

Variantes genéticas (ClinVar)

214 variantes patogênicas registradas no ClinVar.

🧬 KRT14: NM_000526.5(KRT14):c.364C>G (p.Leu122Val) ()
🧬 KRT14: NM_000526.5(KRT14):c.507del (p.Ile169fs) ()
🧬 KRT14: NM_000526.5(KRT14):c.1225del (p.Glu409fs) ()
🧬 KRT14: NM_000526.5(KRT14):c.1232A>G (p.Glu411Gly) ()
🧬 KRT14: NM_000526.5(KRT14):c.1096T>G (p.Tyr366Asp) ()
Ver todas no ClinVar

Diagnóstico

Os sinais que médicos procuram e os exames que confirmam

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Tratamento e manejo

Remédios, cuidados de apoio e o que precisa acompanhar

Pipeline de tratamentos
Pipeline regulatório — de medicamentos já aprovados a drogas em pesquisa exploratória.
3Fase 31
Medicamentos catalogadosEnsaios clínicos· 0 medicamentos · 1 ensaio
Carregando informações de tratamento...

Onde tratar no SUS

Hospitais de referência no Brasil e o protocolo oficial do SUS (PCDT)

🇧🇷 Atendimento SUS — Epidermólise bolhosa simples localizada

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Selecione um estado ou use sua localização para ver resultados.

Dados de DATASUS/CNES, SBGM, ABNeuro e Ministério da Saúde. Sempre confirme a disponibilidade diretamente com o estabelecimento.

Pesquisa ativa

Ensaios clínicos abertos e novidades científicas recentes

Pesquisa e ensaios clínicos

1 ensaios clínicos encontrados.

Distribuição por fase
Ver todos no ClinicalTrials.gov
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Publicações mais relevantes

Timeline de publicações
8 papers (10 anos)
#1

KRT5 in-frame deletion in a family of German Shepherd dogs with split paw pad disease resembling localized epidermolysis bullosa simplex in human patients.

Animal genetics2024 Aug

Split paw pad disease is a scarcely defined phenotype characterized by skin lesions on the paw pads of dogs. We studied a family of German Shepherd dogs, in which four dogs developed intermittent paw pad lesions and lameness. The paw pads of two of the affected dogs were biopsied and demonstrated cleft formation in the stratum spinosum and stratum corneum, the outermost layers of the epidermis. Whole genome sequencing data from an affected dog revealed a private heterozygous 18 bp in frame deletion in the KRT5 gene. The deletion NM_001346035.1:c.988_1005del or NP_001332964.1:p.(Asn330_Asp335del) is predicted to lead to a loss of six amino acids in the L12 linker domain of the encoded keratin 5. KRT5 variants in human patients lead to various subtypes of epidermolysis bullosa simplex (EBS). Localized EBS is the mildest of the KRT5-related human diseases and may be caused by variants affecting the L12 linker domain of keratin 5. We therefore think that the detected KRT5 deletion in dogs represents a candidate causal variant for the observed skin lesions in dogs. However, while the clinical phenotype of KRT5-mutant dogs of this study closely resembles human patients with localized EBS, there are differences in the histopathology. EBS is defined by cleft formation within the basal layer of the epidermis while the cleft formation in the dogs described herein occurred in the outermost layers, a hallmark of split paw pad disease. Our study provides a basis for further studies into the exact relation of split paw pad disease and EBS.

#2

Localized epidermolysis bullosa simplex caused by a previously unreported substitution in the linker 12 domain of keratin 14.

The Journal of dermatology2024 Aug

Epidermolysis bullosa simplex (EBS) is characterized by fragility of the skin (and mucosal epithelia in some instances) that results in non-scarring blisters and erosions caused by minor mechanical trauma. EBS is distinguished from other types of epidermolysis bullosa (EB) or non-EB skin fragility syndromes by the location of the blistering in relation to the dermal-epidermal junction. In EBS, blistering occurs within basal keratinocytes. The severity of blistering ranges from limited to hands and feet to widespread involvement. Additional features can include hyperkeratosis of the palms and soles (keratoderma), nail dystrophy, milia, and hyper- and/or hypopigmentation. Rare EBS subtypes have been associated with additional clinical features including pyloric atresia, muscular dystrophy, cardiomyopathy, and/or nephropathy. The diagnosis of EBS is established in a proband by: the identification of a heterozygous dominant-negative variant or biallelic loss-of-function variants in KRT5, KRT14, or PLEC; a heterozygous pathogenic variant in KLHL24; or biallelic pathogenic variants in CD151, DST, or EXPH5; and/or presence of characteristic findings on examination of a skin biopsy using transmission electron microscopy and/or immunofluorescent mapping. Treatment of manifestations: Supportive care to protect the skin from blistering; use of dressings that will protect the skin and promote healing of wounds. Encourage activities that minimize trauma to the skin; appropriate footwear and physical therapy to preserve ambulation; lance and drain without unroofing new blisters. Dressings consist of three layers: a primary nonadherent contact layer; a secondary layer that provides stability, adds padding, and absorbs drainage; and a tertiary layer with elastic properties. Aluminum chloride (20%) applied to palms and soles can reduce sweating and therefore minimize blister formation in some individuals with EBS. In addition, botulinum toxin, cyproheptadine (Periactin®), tetracycline, erythromycin, diacerein, sirolimus, apremilast, cannabidiol oil, and gentamicin have all been reported to be beneficial. Keratolytic agents for palmar and plantar hyperkeratosis may reduce skin thickening and cracking. Topical and/or systemic antibiotics or silver-impregnated dressings or gels can be used to treat skin infection or reduce bacteria colonization, thereby promoting wound healing. Identification and management of specific causes of pain and itching; management with a pain specialist as needed. Management of fluid and electrolyte imbalance in severely affected infants may be critical during the postnatal period. Nutritional support including vitamin and mineral supplementation, feeding via gastrostomy tube, guided feeding therapy, and Haberman feeder may be necessary for infants and children with oral manifestations of EBS. Iron supplementation for those with anemia as a result of chronic inflammation from blistering and wounding. Weight management and treatment of obesity in older individuals. Standard treatment for basal cell carcinomas in individuals with severe EBS. Psychosocial support when needed. Standard treatments for additional features reported in rare subtypes including pyloric atresia, muscular dystrophy, cardiomyopathy, and nephropathy. Surveillance: Dermatologic assessment for blisters, oral disease, hyperkeratosis, hyperhidrosis, signs and symptoms of wound infection, as well as pruritus and pain. At each visit, assessment of hydration status, growth, nutrition, weight, motor development and mobility, and psychosocial well-being. Consider serum B-type natriuretic peptide (BNP) and creatinine kinase in those with EBS, intermediate with cardiomyopathy; serum renal function studies and urinalysis for those with nephropathy; and neurologic assessment for those with muscular dystrophy as needed. Agents/circumstances to avoid: Excessive heat exposure may exacerbate blistering and infection. Avoid poorly fitting or coarse-textured clothing/footwear and activities that traumatize the skin. Avoid adhesives from regular medical tapes or Band-Aids®. EBS is typically inherited in an autosomal recessive or an autosomal dominant manner. Autosomal recessive EBS is associated with either biallelic loss-of-function variants in KRT5, KRT14, or PLEC or biallelic pathogenic variants in CD151, DST, or EXPH5. Autosomal dominant EBS is associated with either a heterozygous dominant-negative variant in KRT5, KRT14, or PLEC or a heterozygous pathogenic variant in KLHL24. In rare instances, EBS is caused by the presence of heterozygous pathogenic variants in both KRT5 and KRT14 and is inherited in a digenic manner. Autosomal recessive EBS. If both parents are known to be heterozygous for an EBS-related pathogenic variant, each sib of an affected individual has at conception a 25% chance of inheriting biallelic pathogenic variants being affected, a 50% chance of being heterozygous, and a 25% chance of inheriting neither of the familial pathogenic variants. Autosomal dominant EBS. In families with autosomal dominant inheritance, each child of an affected individual has a 50% chance of inheriting the pathogenic variant and (most likely) being affected with EBS (penetrance appears to be <100% for known heterozygous dominant-negative KRT5 and KRT14 variants). Once the EBS-related pathogenic variant(s) have been identified in an affected family member, molecular genetic testing for at-risk family members and prenatal and preimplantation genetic testing are possible.

#3

A Novel Mutation p.L461P in KRT5 Causing Localized Epidermolysis Bullosa Simplex.

Annals of dermatology2021 Feb

Epidermolysis bullosa (EB) is a rare genetic disease with widely different clinical manifestations, but the relationship between genotype and phenotype is not fully understood. In the present study, we recruited a Chinese family in which two members had been diagnosed with localized EB simplex (EBS), with clinical manifestation, including blisters and erosions on the soles of the feet since infancy. To identify and confirm the genetic variation in a Chinese family diagnosed as localized EBS. Our study included two patients, other healthy members of the family, and 100 normal controls. Genomic DNA samples were isolated from each participant, and then polymerase chain reaction (PCR) direct sequencing was performed. The results of PCR direct sequencing revealed a novel heterozygous missense mutation in codon 461 of exon 7 of KRT5 (c.1382T>C), which led to an amino acid change (p.L461P) in the patients with EBS but was absent in unaffected family members and 100 unrelated control samples. The present study broadens the mutational spectrum of EBS, and this knowledge could be harnessed for prenatal screening, gene diagnosis, and gene therapy for localized EBS.

#4

A novel de novo mutation p.Ala428Asp in KRT5 gene as a cause of localized epidermolysis bullosa simplex.

Experimental dermatology2019 Oct

Epidermolysis bullosa is a group of inherited blistering skin diseases resulting in most cases from missense mutations in KRT5 and KRT14 genes encoding the basal epidermal keratins 5 and 14. Here, we present a patient diagnosed with a localized subtype of epidermolysis bullosa simplex caused by a heterozygous mutation p.Ala428Asp in the KRT5 gene, that has not been previously identified. Moreover, a bioinformatic analysis of the novel mutation was performed, showing changes in the interaction network between the proteins. Identification of novel mutations and genotype-phenotype correlations allow to better understanding of underlying pathophysiologic bases and is important for genetic counselling, patients' management, and disease course prediction.

#5

Bothersome blisters: localized epidermolysis bullosa simplex.

Cutis2019 Mar

Publicações recentes

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Associações

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Doenças relacionadas

Doenças com sintomas parecidos — ajudam quem ainda está buscando diagnóstico

Ordenadas pelo número de sintomas em comum.

Referências e fontes

Bases de dados externas citadas neste artigo

Publicações científicas

Artigos indexados no PubMed ligados a esta doença no grafo RarasNet — título, periódico e PMID direto da fonte, sem intermediação de IA.

  1. KRT5 in-frame deletion in a family of German Shepherd dogs with split paw pad disease resembling localized epidermolysis bullosa simplex in human patients.
    Animal genetics· 2024· PMID 38742646mais citado
  2. Localized epidermolysis bullosa simplex caused by a previously unreported substitution in the linker 12 domain of keratin 14.
    The Journal of dermatology· 2024· PMID 38362638mais citado
  3. A Novel Mutation p.L461P in KRT5 Causing Localized Epidermolysis Bullosa Simplex.
    Annals of dermatology· 2021· PMID 33911807mais citado
  4. A novel de novo mutation p.Ala428Asp in KRT5 gene as a cause of localized epidermolysis bullosa simplex.
    Experimental dermatology· 2019· PMID 30240119mais citado
  5. Bothersome blisters: localized epidermolysis bullosa simplex.
    Cutis· 2019· PMID 31039243mais citado
  6. Epidermolysis Bullosa Simplex.
    · 1993· PMID 20301543recente

Bases de dados e fontes oficiais

Identificadores e referências canônicas usadas para montar este verbete.

  1. ORPHA:79400(Orphanet)
  2. OMIM OMIM:131800(OMIM)
  3. MONDO:0007551(MONDO)
  4. GARD:2146(GARD (NIH))
  5. Variantes catalogadas(ClinVar)
  6. Busca completa no PubMed(PubMed)
  7. Q6664623(Wikidata)

Dados compilados pelo RarasNet a partir de fontes abertas (Orphanet, OMIM, MONDO, PubMed/EuropePMC, ClinicalTrials.gov, DATASUS, PCDT/MS). Este conteúdo é informativo e não substitui avaliação médica.

Conteúdo mantido por Agente Raras · Médicos e pesquisadores podem colaborar

Epidermólise bolhosa simples localizada
Compêndio · Raras BR

Epidermólise bolhosa simples localizada

ORPHA:79400 · MONDO:0007551
Prevalência
1-9 / 1 000 000
Herança
Autosomal dominant
CID-10
Q81.0 · Epidermólise bolhosa simples
CID-11
Início
Childhood
Prevalência
0.0 (Europe)
MedGen
UMLS
C0080333
EuropePMC
Wikidata
Papers 10a
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