Vagus nerve stimulation as an adjunctive therapy for super-refractory status epilepticus including NORSE: a retrospective cohort study.

[Febrile infection-related epilepsy syndrome (FIRES) with the claustrum sign in a 55-year-old woman: a case report].

A model of new-onset refractory status epilepticus (NORSE) using intrahippocampal kainic acid in adolescent mice.

Safety and efficacy of intrathecal rituximab in refractory neuroimmune disorders- a case series.

Exploring pathways leading to drug-resistant epilepsy for patients with cryptogenic new onset refractory status epilepticus.

Extreme cryptogenic new onset refractory status epilepticus/febrile infection-related epilepsy syndrome: Evidence of profound neuroinflammation and neuronal injury.

Pediatric new-onset super refractory status epilepticus: Potential of timely immunotherapy in a resource-limited PICU.

Efficacy differences between tocilizumab and ketogenic diet during acute phase of febrile Infection-Related epilepsy syndrome in children: A retrospective cohort study.

New-onset refractory status epilepticus associated with Sjögren's disease.

The Use of Electroconvulsive Therapy (ECT) in the New Onset Refractory Status Epilepticus (NORSE)-Case Report and Systematic Review.

Febrile infection-related epilepsy syndrome (FIRES) in adults: a case report and review of factors associated with survival.

Clinical characteristics, etiology and outcome of new onset refractory status epilepticus in adults.

Fatal retroperitoneal hemorrhage following enoxaparin administration in a patient with autoimmune encephalitis: a case report.

Predicting epilepsy after new onset refractory status epilepticus due to autoimmune encephalitis: The DAME score.

Ketogenic Diet Therapy for Adult Febrile Infection-Related Epilepsy Syndrome (FIRES): A Case Series of Five Patients and Clinical Efficacy Analysis.

Status Epilepsy Syndromes Made Easy: Pediatric Perspectives.

Claustrum Sign: An Increasingly Recognized Imaging Feature of New-Onset Refractory Status Epilepticus (NORSE).

Refractory Status Epilepticus Treated With Bilateral Pulvinar Deep Brain Stimulation-A Case Study.

Emergence of Atypical Lymphocytes Before Cryptogenic New Onset Refractory Status Epilepticus: A Case Report.

Case Report: Successful multimodal management of FIRES in a pediatric patient using anakinra, ketogenic diet, and induced hypothermia.

Factors associated with long-term outcomes in people with new onset refractory epilepticus: A single-center cohort study.

Beyond Anakinra and Tocilizumab: Additional Adjunctive Therapies in Pediatric New Onset Refractory Status Epilepticus and Febrile Infection-Related Epilepsy Syndrome - A Narrative Review.

Deep brain stimulation of the anterior nucleus of the thalamus for seizures after new-onset refractory status epilepticus: a case report.

Iatrogenic NORSE: Immune checkpoint inhibitor-related anti-GFAP autoimmune astrocytopathy.

Successful Treatment of Cryptogenic NORSE Resistant to Immunosuppression With Intravenous Ganaxolone and Electroconvulsive Therapy.

Intensive Intracranial Pressure and Temperature Monitoring May Improve the Outcome of a Young Patient with Severe Cryptogenic New-onset Refractory Status Epilepticus: A Case Report.

The spectrum of pediatric acute leukoencephalopathy with restricted diffusion presenting as febrile infection-related refractory epilepsy syndrome.

Early Recovery from Cryptogenic NORSE Following Repeated C-NORSE Score Assessment and Cyclophosphamide Treatment: A Case Report.

A Case Report of Bartonella henselae-Related New-Onset Refractory Status Epilepticus / Febrile Infection-Related Epilepsy Syndrome Complicated With Stimulus-Induced Rhythmic, Periodic, or Ictal Discharges.

Hemorrhagic cystitis induced by intravenous esketamine in the treatment of new-onset refractory status epilepticus in children: a case report.

New onset refractory status epilepticus diagnosed in the second trimester: A case report.

The spectrum of cognitive outcomes following admission to hospital for refractory status epilepticus (RSE): A scoping review.

Quality of life over time after new onset refractory status epilepticus.

An extreme type of new onset refractory status epilepticus with stimulus-induced seizures in pharmacological isoelectric states.

Standard complete blood count to predict long-term outcomes in febrile infection-related epilepsy syndrome (FIRES): A multicenter study.

Gastrointestinal symptoms are common in patients with new-onset refractory status epilepticus (NORSE).

Update in new-onset refractory status epilepticus and febrile infection-related epilepsy syndrome.

Rescue use of electroconvulsive therapy in new-onset refractory status epilepticus during pregnancy.

Immune dysregulation in new-onset refractory status epilepticus (NORSE): current insights and therapeutic perspectives.

Hypocupraemia-related drug-refractory seizures in Wilson disease.

Retrospective multicenter study on cryptogenic NORSE/FIRES patients treated with anakinra.

Analysis of Early EEG Changes After Tocilizumab Treatment in New-Onset Refractory Status Epilepticus.

The Role of Metabolic Testing in the Diagnostic Evaluation of Adult NORSE: A Retrospective, Single-Centre Study.

Patients with status epilepticus and new-onset refractory status epilepticus display drastically altered fecal microbiomes compared to chronic epilepsy patients.

Identification of Distinct Biological Groups of Patients With Cryptogenic NORSE via Inflammatory Profiling.

Autoimmune encephalitis associated with anti-SOX1 autoantibodies in COVID-19: A case report.

Pediatric new-onset super-refractory status epilepticus (NOSRSE): a case-series.

Performance of cryptogenic new onset refractory status epilepticus score in a Brazilian cohort after testing for antineuronal antibodies with tissue-based and cell-based assays.

A Case Series and Review of Febrile-Infection Related Epilepsy Syndrome (FIRES).

Intrathecal Dexamethasone as a FIRES Extinguisher: A 12-Patient Clinical Experience with Usage of Intrathecal Dexamethasone for Febrile Infection-Related Epilepsy Syndrome.

Comparative analysis of new-onset refractory status epilepticus in adult and pediatric patients: immunotherapy timing and functional outcomes.

Adult-onset epilepsy with startle-induced seizure after febrile infection-related epilepsy syndrome: A case report.

Cytokines in new-onset refractory status epilepticus: ready for clinical use?

Clinical analysis of 7 cases of cryptogenic new-onset refractory status epilepticus.

CSF Tau Is a Biomarker of Hippocampal Injury in Cryptogenic New-Onset Refractory Status Epilepticus.

Dramatic response to delayed treatment with tocilizumab in new-onset refractory status epilepticus.

Clinical outcomes of cryptogenic new onset refractory status epilepticus (NORSE) in a tertiary hospital in Singapore: a case series.

Phenotype, outcome, interleukins, and miRNA levels assessment of new-onset refractory status epilepticus: A prospective cohort study.

Potential Role of Perampanel in Reducing Barbiturate Dependency in Febrile Infection-Related Epilepsy Syndrome: A Case Report.

Combined Systemic Immunotherapy and Intrathecal Dexamethasone in Febrile Infection Related Epilepsy Syndrome.

New-Onset Refractory Status Epilepticus and Febrile Infection-Related Epilepsy Syndrome Cases in Children: A Retrospective Cohort Study in South of Iran.

Multidisciplinary Approaches and Molecular Diagnostics in New-Onset Refractory Status Epilepticus and Nontuberculous Mycobacterial CNS Infections in the ICU: A Case Report.

New onset refractory status epilepticus: Long-term outcomes beyond seizures.

New-onset refractory status epilepticus after SARS-CoV-2 infection: a review of literature.

Age-associated differences in FIRES: Characterizing prodromal presentation and long-term outcomes via the web-based NORSE/FIRES Family Registry.

NORSE secondary to anti-GAD65 antibody-positive encephalitis treated with novel adjunctive rapid titration VNS protocol.

Myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD) as a cause of new-onset refractory status epilepticus (NORSE): Case report and review of literature.

Navigating life after New-onset refractory status epilepticus (NORSE) and Febrile infection-related epilepsy syndrome (FIRES): Insights from caregiver and patient interviews.

Early initiation of intravenous cyclophosphamide and one-year outcome in super-refractory cryptogenic-new onset refractory status epilepticus.

Corrigendum: A practical approach to in-hospital management of new-onset refractory status epilepticus/febrile infection related epilepsy syndrome.

New-Onset Refractory Status Epilepticus With Diffuse Cerebral Restricted Diffusion in Young Children: A Novel Clinical-Radiologic Presentation.

Polygenic Landscape of Cryptogenic New-Onset Refractory Status Epilepticus: A Comprehensive Whole-Genome Sequencing Study.

Cryptogenic New-onset Refractory Status Epilepticus with Hyperintensity of T1-weighted Magnetic Resonance Imaging in the Bilateral Basal Ganglia: An Autopsy Report.

Communication trends over time in new-onset refractory status epilepticus (NORSE): Interim analysis from the NORSE/FIRES Family Registry.

Prognosis prediction and immunotherapy optimisation for cryptogenic new-onset refractory status epilepticus.

POLG epilepsy presenting as new-onset refractory status epilepticus (NORSE) in pregnancy.

New onset status epilepticus and its long-term outcome: A cohort study.

NORSE/FIRES: how can we advance our understanding of this devastating condition?

IT-DEX and B cell depletion in a child with anti-GAD 65 autoimmune encephalitis presenting as NORSE: A case report.

Identification of etiologies according to baseline clinical features of pediatric new-onset refractory status epilepticus in single center retrospective study.

Trends in management of patients with new-onset refractory status epilepticus (NORSE) from 2016 to 2023: An interim analysis.

Autoimmune-associated seizure disorders.

Single-Cell Transcriptomic Analyses of Brain Parenchyma in Patients With New-Onset Refractory Status Epilepticus (NORSE).

Electroconvulsive therapy in new onset refractory status epilepticus (NORSE) in a pediatric patient.

FADD gene pathogenic variants causing recurrent febrile infection-related epilepsy syndrome: Case report and literature review.

Treatment of Cryptogenic New-onset Refractory Status Epilepticus (C-NORSE) with Tocilizumab.

Responsive neurostimulation as a therapy for epilepsy following new-onset refractory status epilepticus: Case series and review of the literature.

NORSE seasonality may vary geographically in adults.

Comparative analysis of patients with new onset refractory status epilepticus preceded by fever (febrile infection-related epilepsy syndrome) versus without prior fever: An interim analysis.

Clinical outcomes among initial survivors of cryptogenic new-onset refractory status epilepsy (NORSE).

Long-term outcome in new onset refractory status epilepticus: a retrospective study.

Status epilepticus: what's new for the intensivist.

Second-line immunotherapy in new onset refractory status epilepticus.

New onset refractory status epilepticus: Summary of the NORSE Institute roundtable during the 2023 American Epilepsy Society meeting, Orlando, Florida.

Successfully treated anti-GAD limbic encephalitis in a 15-year-old diabetic boy with intravenous immunoglobulin: case report.

Time to FIRE NORSE: A single acronym for a heterogeneous presentation. Further information from a case series and discussion of the literature.

Refractory Status Epilepticus Associated With a Pathogenic Variant in TNFRSF13B.

[Initial Management of Status Epilepticus].

[A case of cryptogenic new-onset refractory status epilepticus (NORSE) in which cerebrospinal fluid IL-6 was elevated with increased seizure frequency early in the disease: a case report].

Severe, Refractory Seizures: New-Onset Refractory Status Epilepticus and Febrile Infection-Related Epilepsy Syndrome.

Rasmussen's syndrome treated with anakinra.

Refractory status epilepticus arrested by vagus nerve stimulation.

Multimodal Management of Febrile Infection-Related Epilepsy Syndrome in a 17-Year-Old Male.

Lidocaine as a potential therapeutic option for super-refractory status epilepticus: A case report.

A case of new onset refractory status epilepticus in a U.S. traveler with Japanese encephalitis.

The role of neuronal antibodies in cryptogenic new onset refractory status epilepticus.

Anti-N-methyl D-aspartate receptor encephalitis presenting with the new-onset refractory status epilepticus.

The Claustrum Sign in Febrile Infection-Related Epilepsy Syndrome (FIRES).

Neuromodulation in new-onset refractory status epilepticus.

Safe and effective implantation and use of vagal nerve stimulation in new-onset refractory status epilepticus in early pregnancy: a case report.

A practical approach to in-hospital management of new-onset refractory status epilepticus/febrile infection related epilepsy syndrome.

Perspective: Vagal nerve stimulation in the treatment of new-onset refractory status epilepticus.

Ketogenic diet for super-refractory status epilepticus (SRSE) with NORSE and FIRES: Single tertiary center experience and literature data.

Early identification of NORSE and transfer to care setting with appropriate supports: A proposed algorithm.

New-Onset Refractory Status Epilepticus Due to a Novel MT-TF Variant: Time for Acute Genetic Testing Before Treatment?

New-onset refractory status epilepticus responsive to VNS: A case report.

Neuropathology of New-Onset Refractory Status Epilepticus (NORSE).

Investigating the genetic contribution in febrile infection-related epilepsy syndrome and refractory status epilepticus.

Review and standard operating procedures for collection of biospecimens and analysis of biomarkers in new onset refractory status epilepticus.

The seasonality of new-onset refractory status epilepticus (NORSE).

Long-term neuropsychological outcomes in children with febrile infection-related epilepsy syndrome (FIRES) treated with anakinra.

Treatment of new onset refractory status epilepticus/febrile infection-related epilepsy syndrome with tocilizumab in a child and a young adult.

Blood-brain barrier damage and new onset refractory status epilepticus: An exploratory study using dynamic contrast-enhanced magnetic resonance imaging.

Cytokines in New-Onset Refractory Status Epilepticus Predict Outcomes.

Specific profiles of new-onset vs. non-inaugural status epilepticus: From diagnosis to 1-year outcome.

New-onset refractory status epilepticus and febrile infection-related epilepsy syndrome.

Seizure burden and neuropsychological outcomes of new-onset refractory status epilepticus: Systematic review.

The etiology and mortality of new-onset refractory status epilepticus (NORSE) in adults: A systematic review and meta-analysis.

A case report: New-onset refractory status epilepticus in a patient with FASTKD2-related mitochondrial disease.

Long-term outcomes of adult cryptogenic febrile infection-related epilepsy syndrome (FIRES).

The Increased Interleukin-6 Levels Can Be an Early Diagnostic Marker for New-Onset Refractory Status Epilepticus.

Pearls & Oy-sters: Status Epilepticus and Cerebral Edema From Hyperammonemia Due to Disseminated Ureaplasma and Mycoplasma Species.

Early clinical features of new-onset refractory status epilepticus (NORSE) in adults.

New-onset refractory status epilepticus (NORSE) in paediatric patients: causes, characteristics and outcomes.

Febrile infection-related Epilepsy Syndrome (FIRES): a severe encephalopathy with status epilepticus. Literature review and presentation of two new cases.

Surviving status epilepticus: The patient and family perspective.

Role of responsive neurostimulation and immunotherapy in refractory epilepsy due to autoimmune encephalitis: A case report.

Cannabidiol in refractory status epilepticus: A review of clinical experiences.

Inflammation as Treatment Target for Status Epilepticus.

Reversible Brain Atrophy in Cryptogenic New-onset Refractory Status Epilepticus.

Intravenous ganaxolone in pediatric super-refractory status epilepticus: A single hospital experience.

Multi-proteomic Analysis Revealed Distinct Protein Profiles in Cerebrospinal Fluid of Patients Between Anti-NMDAR Encephalitis NORSE and Cryptogenic NORSE.

Parallel roles of neuroinflammation in feline and human epilepsies.

Long-term outcomes after NORSE: Treatment with vagus nerve stimulation.

New-Onset Refractory Status Epilepticus Secondary to COVID-19 Infection in Adults: A Systematic Review.

New-onset refractory status epilepticus due to autoimmune encephalitis after vaccination against SARS-CoV-2: First case report.

International consensus recommendations for management of New Onset Refractory Status Epilepticus (NORSE) incl. Febrile Infection-Related Epilepsy Syndrome (FIRES): Statements and Supporting Evidence.

International consensus recommendations for management of New Onset Refractory Status Epilepticus (NORSE) including Febrile Infection-Related Epilepsy Syndrome (FIRES): Summary and Clinical Tools.

Child Neurology: Initial Presentation of PCDH19-Related Epilepsy With New-Onset Refractory Status Epilepticus and Treatment With Anakinra.

A retrospective cohort study of new-onset refractory status epilepticus (NORSE): clinical features, timing of immunotherapy and outcomes.

Rapidly evolving Creutzfeldt-Jakob disease in COVID-19: from early status epilepticus to fatal outcome.

Fever-Associated Seizures or Epilepsy: An Overview of Old and Recent Literature Acquisitions.

A case of febrile infection-related epilepsy syndrome (FIRES) in young adult: still a diagnostic and therapeutic challenge.

Neurosyphilis presenting as new onset refractory status epilepticus: one of the multifarious faces of a great imitator.

Autoimmune encephalitis associated with COVID-19: A systematic review.

An ultra-long new onset refractory status epilepticus: Winning the battle but losing the war?

Zebras Seize the Day: Rare Causes of Status Epilepticus Across the Continuum of Critical Care.

New-onset refractory status epilepticus as an early manifestation of multisystem inflammatory syndrome in adults after COVID-19.

An Evidence-Based Approach to Diagnosis and Prognosis in a Young Woman with New-Onset Super-Refractory Status Epilepticus: A Case Report.

New onset refractory status epilepticus and neuroendocrine tumour: a case report and review of the literature.

Specific characteristics and current diagnostic and treatment modalities performance of super refractory status epilepticus in children: A comparative study.

New-onset refractory status epilepticus (NORSE) and febrile infection-related epilepsy syndrome (FIRES) of unknown aetiology: A comparison of the incomparable?

New onset refractory status epilepticus: State of the art.

New Onset Refractory Status Epilepticus as a Manifestation of Tuberculosis of the Central Nervous System.

Cryptogenic new-onset refractory status epilepticus responded to anti-interleukin-6 treatment.

Corrigendum to 'New onset refractory status epilepticus secondary to HIV CNS viral escape syndrome: Case report'.

High dose cannabidiol (CBD) in the treatment of new-onset refractory status epilepticus (NORSE).

New onset refractory status epilepticus secondary to HIV CNS viral escape syndrome: Case report.

A retrospective study of 92 children with new-onset refractory status epilepticus.

New-Onset Refractory Status Epilepticus (NORSE): The Queen Square Neuro-ICU experience.

A Role for Electroconvulsive Therapy in the Management of New Onset Refractory Status Epilepticus (NORSE) in a Young Child.

Histopathology of new-onset refractory status epilepticus (NORSE) in adults.

Idiopathic Hypoparathyroidism Presenting As New Onset Refractory Status Epilepticus.

Unraveling the enigma of new-onset refractory status epilepticus: a systematic review of aetiologies.

Anti-N-methyl-d-aspartate Receptor Encephalitis Presenting as New-onset Refractory Status Epilepticus Responding to Rituximab in an Adolescent Girl.

Predictors and prognoses of epilepsy after anti-neuronal antibody-positive autoimmune encephalitis.

Infantile Hemiconvulsion-Hemiplegia and Epilepsy (IHHE) in a boy with tuberous sclerosis complex.

Benzodiazepine administration patterns before escalation to second-line medications in pediatric refractory convulsive status epilepticus.

New-Onset Refractory Status Epilepticus (NORSE) as a Recurrence of Anti-Neuronal Nuclear Antibody 2 (ANNA-2) Encephalitis After Immune Checkpoint Inhibition Therapy.

Super-Refractory Status Epilepticus: Prognosis and Recent Advances in Management.

Understanding new-onset refractory status epilepticus from an immunological point of view.

New-onset refractory status epilepticus following the ChAdOx1 nCoV-19 vaccine.

Parental perception of FIRES outcomes, emotional states, and social media usage.

Permanent loss of independence in adult febrile-infection-related epilepsy syndrome survivors: an underestimated and unsolved challenge.

Clinical presentation of new onset refractory status epilepticus in children (the pSERG cohort).

Super-refractory status epilepticus in autoimmune encephalitis treated with interleukin-1 receptor antagonist, anakinra.

[Anti-NMDA Receptor Encephalitis].

Cryptogenic new-onset refractory status epilepticus (NORSE) following blood transfusion in a patient with severe anemia.

COVID-19-related refractory status epilepticus with the presence of SARS-CoV-2 (RNA) in the CSF: a case report.

Remote Teamwork Management of NORSE During the COVID-19 Lockdown.

Predictors of outcome in super refractory status epilepticus.

How to Help Your Patients Enroll in the New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES) Family Registry, and Other Rare Epilepsy Registries.

Resolution of cryptogenic new onset refractory status epilepticus with tocilizumab.

Intravenous immunoglobulin response in new-onset refractory status epilepticus (NORSE) COVID-19 adult patients.

Proposal to optimize evaluation and treatment of Febrile infection-related epilepsy syndrome (FIRES): A Report from FIRES workshop.