Raras
Buscar doenças, sintomas, genes...
Condrodisplasia pontuada
ORPHA:93442CID-10 · Q77.3CID-11 · LD24.04DOENÇA RARA

Um distúrbio raro e congênito do desenvolvimento, caracterizado pela presença de pequenos pontos de calcificação (depósitos de cálcio) espalhados na cartilagem hialina, encurtamento e rigidez das articulações, deficiência intelectual e ictiose (uma condição de pele seca e escamosa).

Mantido por Agente Raras·Colaborar como especialista →

Introdução

O que você precisa saber de cara

📋

Um distúrbio raro e congênito do desenvolvimento, caracterizado pela presença de pequenos pontos de calcificação (depósitos de cálcio) espalhados na cartilagem hialina, encurtamento e rigidez das articulações, deficiência intelectual e ictiose (uma condição de pele seca e escamosa).

Pesquisas ativas
2 ensaios
4 total registrados no ClinicalTrials.gov
Publicações científicas
750 artigos
Último publicado: 2026 Apr 1
🏥
SUS: Sem cobertura SUSScore: 0%
CID-10: Q77.3
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Entender a doença

Do básico ao detalhe, leia no seu ritmo

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Sinais e sintomas

O que aparece no corpo e com que frequência cada sintoma acontece

Partes do corpo afetadas

🦴
Ossos e articulações
84 sintomas
😀
Face
38 sintomas
🧠
Neurológico
23 sintomas
🧬
Pele e cabelo
22 sintomas
👁️
Olhos
14 sintomas
🫁
Pulmão
13 sintomas

+ 121 sintomas em outras categorias

Características mais comuns

Hipoplasia torácica
Atividade anormal de enzima/coenzima
Oligodactilia
Calcificação ectópica
Deficiência intelectual, grave
Polegar curto
368sintomas
Sem dados (368)

Os sintomas variam de pessoa para pessoa. Abaixo estão as 368 características clínicas mais associadas, ordenadas por frequência.

Hipoplasia torácicaThoracic hypoplasia
Atividade anormal de enzima/coenzimaAbnormal enzyme/coenzyme activity
OligodactiliaOligodactyly
Calcificação ectópicaEctopic calcification
Deficiência intelectual, graveIntellectual disability, severe

Linha do tempo da pesquisa

Publicações por ano — veja quando o interesse científico cresceu
Anos de pesquisa1desde 2026
Total histórico750PubMed
Últimos 10 anos170publicações
Pico202521 papers
Linha do tempo
2026Hoje · 2026🧪 2012Primeiro ensaio clínico📈 2025Ano de pico
Publicações por ano (últimos 10 anos)

Encontrou um erro ou informação desatualizada? Sugira uma correção →

Genética e causas

O que está alterado no DNA e como passa nas famílias

Genes associados

10 genes identificados com associação a esta condição.

FAR1Fatty acyl-CoA reductase 1Disease-causing germline mutation(s) inAltamente restrito
FUNÇÃO

Catalyzes the reduction of saturated and unsaturated C16 or C18 fatty acyl-CoA to fatty alcohols (PubMed:15220348, PubMed:24108123, PubMed:35238077). It plays an essential role in the production of ether lipids/plasmalogens which synthesis requires fatty alcohols (PubMed:20071337, PubMed:24108123, PubMed:33239752). In parallel, it is also required for wax monoesters production since fatty alcohols also constitute a substrate for their synthesis (By similarity) (PubMed:24108123, PubMed:35238077)

LOCALIZAÇÃO

Peroxisome membrane

VIAS BIOLÓGICAS (1)
Wax biosynthesis
MECANISMO DE DOENÇA

Peroxisomal fatty acyl-CoA reductase 1 disorder

An autosomal recessive metabolic disorder clinically characterized by severe intellectual disability, early-onset epilepsy, microcephaly, congenital cataracts, growth retardation, and spasticity.

VIAS REACTOME (1)
EXPRESSÃO TECIDUAL(Ubíquo)
Brain Spinal cord cervical c-1
60.3 TPM
Esôfago - Mucosa
59.2 TPM
Nervo tibial
58.9 TPM
Vagina
49.5 TPM
Útero
47.1 TPM
INTERAÇÕES PROTEICAS (4)
OUTRAS DOENÇAS (2)
spastic paraparesis-cataracts-speech delay syndromefatty acyl-CoA reductase 1 deficiency
HGNC:26222UniProt:Q8WVX9
NSDHLSterol-4-alpha-carboxylate 3-dehydrogenase, decarboxylatingDisease-causing germline mutation(s) inAltamente restrito
FUNÇÃO

Catalyzes the NAD(P)(+)-dependent oxidative decarboxylation of the C4 methyl groups of 4-alpha-carboxysterols in post-squalene cholesterol biosynthesis (By similarity). Also plays a role in the regulation of the endocytic trafficking of EGFR (By similarity)

LOCALIZAÇÃO

Endoplasmic reticulum membraneLipid droplet

VIAS BIOLÓGICAS (2)
Zymostenol biosynthesis via lathosterol (Kandutsch-Russell pathway)Cholesterol biosynthesis via desmosterol (Bloch pathway)
MECANISMO DE DOENÇA

Congenital hemidysplasia with ichthyosiform erythroderma and limb defects

An X-linked dominant disorder of lipid metabolism with disturbed cholesterol biosynthesis, which typically results in male lethality. Clinically, it is characterized by congenital, unilateral, ichthyosisform erythroderma with striking lateralization, sharp midline demarcation, and ipsilateral limb defects and hypoplasia of the body. Limbs defects range from hypoplasia of digits or ribs to complete amelia, often including scoliosis.

EXPRESSÃO TECIDUAL(Ubíquo)
Esôfago - Mucosa
65.4 TPM
Fibroblastos
36.3 TPM
Vagina
35.7 TPM
Glândula adrenal
33.5 TPM
Linfócitos
32.8 TPM
OUTRAS DOENÇAS (2)
CK syndromeCHILD syndrome
HGNC:13398UniProt:Q15738
MGPMatrix Gla proteinDisease-causing germline mutation(s) inTolerante
FUNÇÃO

Associates with the organic matrix of bone and cartilage. Thought to act as an inhibitor of bone formation

LOCALIZAÇÃO

Secreted

MECANISMO DE DOENÇA

Keutel syndrome

An autosomal recessive disorder characterized by abnormal cartilage calcification, peripheral pulmonary stenosis neural hearing loss and midfacial hypoplasia.

EXPRESSÃO TECIDUAL(Ubíquo)
Aorta
11935.6 TPM
Artéria coronária
5507.9 TPM
Artéria tibial
3651.5 TPM
Fallopian Tube
1961.8 TPM
Mama
1878.4 TPM
OUTRAS DOENÇAS (1)
Keutel syndrome
HGNC:7060UniProt:P08493
LBRDelta(14)-sterol reductase LBRDisease-causing germline mutation(s) inRestrito
FUNÇÃO

Catalyzes the reduction of the C14-unsaturated bond of lanosterol, as part of the metabolic pathway leading to cholesterol biosynthesis (PubMed:12618959, PubMed:16784888, PubMed:21327084, PubMed:27336722, PubMed:9630650). Plays a critical role in myeloid cell cholesterol biosynthesis which is essential to both myeloid cell growth and functional maturation (By similarity). Mediates the activation of NADPH oxidases, perhaps by maintaining critical levels of cholesterol required for membrane lipid

LOCALIZAÇÃO

Nucleus inner membraneEndoplasmic reticulum membraneCytoplasmNucleus

VIAS BIOLÓGICAS (3)
Initiation of Nuclear Envelope (NE) ReformationCholesterol biosynthesis via desmosterol (Bloch pathway)Regulation of MECP2 expression and activity
MECANISMO DE DOENÇA

Pelger-Huet anomaly

An autosomal dominant inherited abnormality of granulocytes, characterized by abnormal ovoid shape, reduced nuclear segmentation and an apparently looser chromatin structure.

EXPRESSÃO TECIDUAL(Ubíquo)
Cólon sigmoide
89.3 TPM
Linfócitos
88.9 TPM
Útero
68.5 TPM
Esôfago - Muscular
63.1 TPM
Cervix Ectocervix
54.0 TPM
OUTRAS DOENÇAS (4)
Greenberg dysplasiaregressive spondylometaphyseal dysplasiaPelger-Huet anomalyReynolds syndrome
HGNC:6518UniProt:Q14739
PEX7Peroxisomal targeting signal 2 receptorDisease-causing germline mutation(s) inTolerante
FUNÇÃO

Receptor required for the peroxisomal import of proteins containing a C-terminal PTS2-type peroxisomal targeting signal (PubMed:11931631, PubMed:22057399, PubMed:25538232, PubMed:9090381). Specifically binds to cargo proteins containing a PTS2 peroxisomal targeting signal in the cytosol (PubMed:11931631, PubMed:22057399, PubMed:25538232). Cargo protein-binding triggers interaction with PEX5 and formation of a ternary complex composed of PEX5 and PEX7 along with PTS2-containing cargo proteins, wh

LOCALIZAÇÃO

Cytoplasm, cytosolPeroxisome matrix

VIAS BIOLÓGICAS (1)
Peroxisomal protein import
MECANISMO DE DOENÇA

Peroxisome biogenesis disorder complementation group 11

A peroxisomal disorder arising from a failure of protein import into the peroxisomal membrane or matrix. The peroxisome biogenesis disorders (PBD group) are genetically heterogeneous with at least 14 distinct genetic groups as concluded from complementation studies. Include disorders are: Zellweger syndrome (ZWS), neonatal adrenoleukodystrophy (NALD), infantile Refsum disease (IRD), and classical rhizomelic chondrodysplasia punctata (RCDP). ZWS, NALD and IRD are distinct from RCDP and constitute a clinical continuum of overlapping phenotypes known as the Zellweger spectrum (PBD-ZSS).

EXPRESSÃO TECIDUAL(Ubíquo)
Testículo
20.5 TPM
Glândula adrenal
18.8 TPM
Skin Sun Exposed Lower leg
17.0 TPM
Skin Not Sun Exposed Suprapubic
16.2 TPM
Estômago
14.2 TPM
OUTRAS DOENÇAS (3)
peroxisome biogenesis disorder 9Brhizomelic chondrodysplasia punctata type 1adult Refsum disease
HGNC:8860UniProt:O00628
PEX5Peroxisomal targeting signal 1 receptorDisease-causing germline mutation(s) inTolerante
FUNÇÃO

Receptor that mediates peroxisomal import of proteins containing a C-terminal PTS1-type tripeptide peroxisomal targeting signal (SKL-type) (PubMed:11101887, PubMed:11336669, PubMed:12456682, PubMed:16314507, PubMed:17157249, PubMed:17428317, PubMed:21976670, PubMed:26344566, PubMed:7706321, PubMed:7719337, PubMed:7790377). Binds to cargo proteins containing a PTS1 peroxisomal targeting signal in the cytosol, and translocates them into the peroxisome matrix by passing through the PEX13-PEX14 dock

LOCALIZAÇÃO

Cytoplasm, cytosolPeroxisome matrix

VIAS BIOLÓGICAS (1)
Pexophagy
MECANISMO DE DOENÇA

Peroxisome biogenesis disorder 2A

A fatal peroxisome biogenesis disorder belonging to the Zellweger disease spectrum and characterized clinically by severe neurologic dysfunction with profound psychomotor retardation, severe hypotonia and neonatal seizures, craniofacial abnormalities, liver dysfunction, and biochemically by the absence of peroxisomes. Additional features include cardiovascular and skeletal defects, renal cysts, ocular abnormalities, and hearing impairment. Most severely affected individuals with the classic form of the disease (classic Zellweger syndrome) die within the first year of life.

EXPRESSÃO TECIDUAL(Ubíquo)
Testículo
77.7 TPM
Cerebelo
49.0 TPM
Cérebro - Hemisfério cerebelar
48.3 TPM
Pituitária
46.8 TPM
Nervo tibial
44.2 TPM
OUTRAS DOENÇAS (5)
peroxisome biogenesis disorder 2Brhizomelic chondrodysplasia punctata type 5peroxisome biogenesis disorder 2A (Zellweger)Zellweger spectrum disorders
HGNC:9719UniProt:P50542
ARSLArylsulfatase LDisease-causing germline mutation(s) inAltamente restrito
FUNÇÃO

Exhibits arylsulfatase activity towards the artificial substrate 4-methylumbelliferyl sulfate (PubMed:7720070, PubMed:9497243). May be essential for the correct composition of cartilage and bone matrix during development (PubMed:7720070). Has no activity toward steroid sulfates (PubMed:7720070)

LOCALIZAÇÃO

Golgi apparatus, Golgi stack

VIAS BIOLÓGICAS (2)
The activation of arylsulfatasesGlycosphingolipid catabolism
MECANISMO DE DOENÇA

Chondrodysplasia punctata 1, X-linked recessive

A clinically and genetically heterogeneous disorder characterized by punctiform calcification of the bones. CDPX1 is a congenital defect of bone and cartilage development characterized by aberrant bone mineralization, severe underdevelopment of nasal cartilage, and distal phalangeal hypoplasia. This disease can also be induced by inhibition with the drug warfarin.

INTERAÇÕES PROTEICAS (5)
OUTRAS DOENÇAS (1)
X-linked chondrodysplasia punctata 1
HGNC:719UniProt:P51690
EBP3-beta-hydroxysteroid-Delta(8),Delta(7)-isomeraseDisease-causing germline mutation(s) inAltamente restrito
FUNÇÃO

Isomerase that catalyzes the conversion of Delta(8)-sterols to their corresponding Delta(7)-isomers a catalytic step in the postlanosterol biosynthesis of cholesterol Component of the microsomal antiestrogen binding site (AEBS), a multiproteic complex at the ER membrane that consists of an association between EBP and 7-dehydrocholesterol reductase/DHCR7 (PubMed:15175332, PubMed:20615952). This complex is responsible for cholesterol-5,6-epoxide hydrolase (ChEH) activity, which consists in the hyd

LOCALIZAÇÃO

Endoplasmic reticulum membraneNucleus envelopeCytoplasmic vesicle

VIAS BIOLÓGICAS (2)
Cholesterol biosynthesis from zymosterol (modified Kandutsch-Russell pathway)Cholesterol biosynthesis via desmosterol (Bloch pathway)
MECANISMO DE DOENÇA

Chondrodysplasia punctata 2, X-linked dominant

A clinically and genetically heterogeneous disorder characterized by punctiform calcification of the bones. The key clinical features of CDPX2 are chondrodysplasia punctata, linear ichthyosis, cataracts and short stature. CDPX2 is a rare disorder of defective cholesterol biosynthesis, biochemically characterized by an increased amount of 8-dehydrocholesterol and cholest-8(9)-en-3-beta-ol in the plasma and tissues.

EXPRESSÃO TECIDUAL(Ubíquo)
Fígado
96.7 TPM
Glândula adrenal
90.1 TPM
Esôfago - Mucosa
63.3 TPM
Linfócitos
55.8 TPM
Vagina
40.9 TPM
OUTRAS DOENÇAS (2)
X-linked chondrodysplasia punctata 2MEND syndrome
HGNC:3133UniProt:Q15125
AGPSAlkyldihydroxyacetonephosphate synthase, peroxisomalDisease-causing germline mutation(s) inAltamente restrito
FUNÇÃO

Catalyzes the exchange of the acyl chain in acyl-dihydroxyacetonephosphate (acyl-DHAP) for a long chain fatty alcohol, yielding the first ether linked intermediate, i.e. alkyl-dihydroxyacetonephosphate (alkyl-DHAP), in the pathway of ether lipid biosynthesis

LOCALIZAÇÃO

Peroxisome membranePeroxisome

VIAS BIOLÓGICAS (2)
Plasmalogen biosynthesisTYSND1 cleaves peroxisomal proteins
MECANISMO DE DOENÇA

Rhizomelic chondrodysplasia punctata 3

A form of rhizomelic chondrodysplasia punctata, a disease characterized by severely disturbed endochondral bone formation, rhizomelic shortening of femur and humerus, vertebral disorders, dwarfism, cataract, cutaneous lesions, facial dysmorphism, and severe intellectual disability with spasticity.

OUTRAS DOENÇAS (1)
rhizomelic chondrodysplasia punctata type 3
HGNC:327UniProt:O00116
GNPATDihydroxyacetone phosphate acyltransferaseDisease-causing germline mutation(s) inRestrito
FUNÇÃO

Dihydroxyacetonephosphate acyltransferase catalyzing the first step in the biosynthesis of plasmalogens, a subset of phospholipids that differ from other glycerolipids by having an alkyl chain attached through a vinyl ether linkage at the sn-1 position of the glycerol backbone, and which unique physical properties have an impact on various aspects of cell signaling and membrane biology

LOCALIZAÇÃO

Peroxisome membrane

VIAS BIOLÓGICAS (1)
Plasmalogen biosynthesis
MECANISMO DE DOENÇA

Rhizomelic chondrodysplasia punctata 2

A form of rhizomelic chondrodysplasia punctata, a disease characterized by severely disturbed endochondral bone formation, rhizomelic shortening of femur and humerus, vertebral disorders, dwarfism, cataract, cutaneous lesions, facial dysmorphism, and severe intellectual disability with spasticity.

EXPRESSÃO TECIDUAL(Ubíquo)
Músculo esquelético
65.5 TPM
Linfócitos
55.7 TPM
Cólon sigmoide
50.2 TPM
Testículo
47.5 TPM
Fibroblastos
47.0 TPM
OUTRAS DOENÇAS (1)
rhizomelic chondrodysplasia punctata type 2
HGNC:4416UniProt:O15228

Variantes genéticas (ClinVar)

329 variantes patogênicas registradas no ClinVar.

🧬 FAR1: NM_032228.6(FAR1):c.234_235del (p.Lys78fs) ()
🧬 FAR1: NM_032228.6(FAR1):c.1479G>T (p.Trp493Cys) ()
🧬 FAR1: NM_032228.6(FAR1):c.1397T>C (p.Ile466Thr) ()
🧬 FAR1: NM_032228.6(FAR1):c.956-3C>T ()
🧬 FAR1: NM_032228.6(FAR1):c.1498T>C (p.Cys500Arg) ()
Ver todas no ClinVar

Classificação de variantes (ClinVar)

Distribuição de 991 variantes classificadas pelo ClinVar.

396
446
149
Patogênica (40.0%)
VUS (45.0%)
Benigna (15.0%)
VARIANTES MAIS SIGNIFICATIVAS
EBP: NM_006579.3(EBP):c.558G>A (p.Trp186Ter) [Pathogenic]
ARSL: NM_000047.3(ARSL):c.258C>A (p.Cys86Ter) [Likely pathogenic]
PEX5: NM_001351132.2(PEX5):c.653T>C (p.Phe218Ser) [Pathogenic]
EBP: NM_006579.3(EBP):c.159del (p.Ala54fs) [Likely pathogenic]
EBP: NM_006579.3(EBP):c.567dup (p.Val190fs) [Likely pathogenic]

Diagnóstico

Os sinais que médicos procuram e os exames que confirmam

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Tratamento e manejo

Remédios, cuidados de apoio e o que precisa acompanhar

Pipeline de tratamentos
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Onde tratar no SUS

Hospitais de referência no Brasil e o protocolo oficial do SUS (PCDT)

🇧🇷 Atendimento SUS — Condrodisplasia pontuada

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Selecione um estado ou use sua localização para ver resultados.

Dados de DATASUS/CNES, SBGM, ABNeuro e Ministério da Saúde. Sempre confirme a disponibilidade diretamente com o estabelecimento.

Pesquisa ativa

Ensaios clínicos abertos e novidades científicas recentes

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Outros ensaios clínicos

4 ensaios clínicos encontrados, 2 ativos.

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Ver todos no ClinicalTrials.gov
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Publicações mais relevantes

Timeline de publicações
148 papers (10 anos)
#1

Unraveling PEX6: insights into very-long-chain fatty acid levels and peroxisome biogenesis disorders in pediatric populations.

Annals of pediatric endocrinology & metabolism2026 Feb

Peroxisome biogenesis disorders (PBDs) are a genetically heterogeneous group of metabolic diseases caused by impaired peroxisome assembly and function. PBDs exhibit striking clinical variability, ranging from lethal neonatal forms (e.g., Zellweger spectrum disorders) to milder childhood-onset presentations such as rhizomelic chondrodysplasia punctata. While elevated levels of very-long-chain fatty acids (VLCFAs) remain a key diagnostic feature, the existence of unusual cases with normal plasma VLCFA levels highlight the limitations of relying solely on this biochemical marker for diagnosis. Genetic variations in PEX6, an important peroxisome biogenesis factor, contribute significantly to this phenotypic diversity, with missense variants often associated with less severe disease compared to truncating mutations. Recent studies further implicate dysregulated pexophagy-a targeted autophagic degradation of peroxisomes-in the underlying disease mechanisms. This review underscores the necessity for a multifaceted diagnostic approach that, thorough clinical assessment, detailed biochemical evaluation, and advanced molecular genetic testing, seeks to improve diagnostic accuracy and patient care, particularly in pediatric populations. Advancements in identifying novel biomarkers and targeted therapies offer promise for tailored interventions, underscoring the importance of precision medicine in optimizing outcomes for pediatric PBD patients.

#2

Airway Involvement in Conradi-Hünermann-Happle Syndrome: A Novel Clinical Manifestation.

The Laryngoscope2026 Feb 24

We report the first documented case of airway involvement in Conradi-Hünermann-Happle syndrome (CDPX2), an X-linked dominant form of chondrodysplasia punctata caused by pathogenic variants in EBP. A 2-month-old female with genetically confirmed CDPX2 developed severe subglottic stenosis and persistent respiratory distress requiring CPAP; cross-sectional imaging demonstrated extensive laryngotracheal calcifications. Serial endoscopic balloon dilations successfully restored airway patency, enabled weaning from respiratory support, and avoided tracheostomy, expanding the recognized clinical spectrum of CDPX2 and highlighting the potential role of minimally invasive airway intervention in selected cases.

#3

A Novel EBP c.452A>G Mutation Identified in a Girl with Conradi-Hünermann-Happle Syndrome Presenting with Hydronephrosis.

The application of clinical genetics2025

Conradi-Hünermann-Happle syndrome (CDPX2, OMIM 302960) is an X-linked dominant inherited disorder caused by variants in the EBP gene, which primarily affects the skin, bones, and eyes. To describe the clinical manifestations and genetic mutation in a 7-year-old girl presenting with severe scoliosis, hydronephrosis, and other skeletal abnormalities. The patient's medical history was collected from birth. Exome sequencing was performed to identify candidate genes, and the detected variant was confirmed by Sanger sequencing. Exome sequencing revealed a de novo EBP mutation (c.452A>G, p.Gln151Arg) in the patient. The patient was diagnosed with X-linked chondrodysplasia punctata type 2 (CDPX2). This novel missense mutation expands the mutation spectrum of CDPX2 and underscores the clinical utility of exome sequencing in diagnosing this condition.

#4

Identification of novel compound heterozygous variants in the PEX10 gene in a Han-Chinese family with PEX10-related peroxisome biogenesis disorders.

PloS one2025

The peroxisome biogenesis disorders (PBDs) are a group of rare inherited autosomal recessive diseases characterized by motor and cognitive neurological dysfunction, hypotonia, seizures, feeding difficulties, retinopathy, sensorineural hearing loss, hepatic and renal abnormalities, and chondrodysplasia punctata of long bones, and the clinical expression is variable. Exome sequencing and Sanger sequencing were used to identify the genetic defect for PBDs in a two-generation non-consanguineous Han-Chinese pedigree. Compound heterozygous variants, a novel splicing variant c.113-2A>G and a reported substitution c.890T>C (p.Leu297Pro), in the peroxisomal biogenesis factor 10 gene (PEX10) were detected. The splicing variant c.113-2A>G led to a canonical splice acceptor site inactivation, exon 2 skipping, and in-frame deletions (p.Ala39_Gly65del). The three patients had similar phenotypes of milder PBDs, which were further genetically determined as PBD6B. The findings extend the PEX10 variant spectrum and may provide new insights into PBDs causation and diagnosis, with implications for genetic counseling and clinical management.

#5

Development and evaluation of RhizoQOL, a quality-of-life caregiver-reported survey for rhizomelic chondrodysplasia punctata, a rare peroxisomal disorder.

Orphanet journal of rare diseases2025 Mar 31

Rhizomelic chondrodysplasia punctata (RCDP) is a rare genetic disorder characterized by symptoms such as respiratory dysfunction, seizures, orthopedic issues, and neurodevelopmental delay. Potential therapeutics for RCDP warrant the development of clinical outcome assessments to assess the efficacy of treatment and the well-being of patients. Our study aimed to develop a valid quality-of-life (QOL) caregiver-reported survey instrument, RhizoQOL, to be used as a supportive endpoint in RCDP clinical trials. Development of the RhizoQOL survey tool included three RCDP caregiver focus groups to elicit concepts to serve as potential domains in a QOL survey instrument for RCDP, pilot survey development and initial testing, cognitive interviewing of revised survey drafts to determine content validity, as well as a three-month longitudinal study for reliability and internal consistency of the survey instrument. Twenty-eight caregivers participated in the focus groups, reporting that concepts that could be appropriate domains of QOL in RCDP include psychosocial behavior, feeding symptoms, mobility symptoms, respiratory symptoms, seizures and related activity, and impact of treatment. Following pilot survey testing (n = 22) and stakeholder feedback, a revised pilot survey instrument was administered to five caregivers for cognitive interviewing. This resulted in a revised survey instrument with 31 question items, six domains, and a 1-5 Likert scale item response assessing frequency or severity of event in the question item. Longitudinal testing (n = 18) of the revised survey instrument found the average response score was 1.98 ± 0.97 for all question items, and a Cronbach's alpha value of 0.856, suggesting strong intra-survey question reliability. Using individual question item results from reliability testing, linear regression modeling, and testing for required magnitude of significant treatment effects, eight question items were removed from the survey instrument, resulting in a total of 23 question items within 6 discrete domains. The final RhizoQOL survey instrument, consisting of 23 questions, assesses the symptoms and experiences of RCDP patients as observed by caregivers and serves as a novel clinical outcome assessment for RCDP therapeutic clinical trials to assess the impacts of RCDP and support the overall effectiveness of treatments.

Publicações recentes

Ver todas no PubMed

📚 EuropePMC419 artigos no totalmostrando 170

2026

Unraveling PEX6: insights into very-long-chain fatty acid levels and peroxisome biogenesis disorders in pediatric populations.

Annals of pediatric endocrinology & metabolism
2026

Airway Involvement in Conradi-Hünermann-Happle Syndrome: A Novel Clinical Manifestation.

The Laryngoscope
2025

Metabolomic Profiling Reveals Brain Lipid Alterations in PEX7-Deficient Models of Rhizomelic Chondrodysplasia Punctata.

Biomolecules
2025

Neonatal X-linked recessive chondrodysplasia punctata.

QJM : monthly journal of the Association of Physicians
2025

Chondrodysplasia Punctata: A Diagnostic Clue for Zellweger Spectrum Disorder.

Indian journal of pediatrics
2025

Brachytelephalangic Chondrodysplasia Punctata Phenotype in Prenatally Diagnosed VKCFD1: A Novel GGCX Variant.

Prenatal diagnosis
2025

Chondrodysplasia Punctata: A Rare Entity Identified Incidentally.

Cureus
2025

Early Skin Biopsy in Conradi-Hünermann-Happle Syndrome (X-Linked Dominant Chondrodysplasia Punctata).

Journal of cutaneous pathology
2025

Molecular insights into the comorbidity of vitamin K-dependent clotting factor deficiency and chondrodysplasia punctata.

Journal of thrombosis and haemostasis : JTH
2025

A diagnostic and management odyssey of a rare case of rhizomelic chondrodysplasia punctata.

JPMA. The Journal of the Pakistan Medical Association
2025

Neurologic outcomes in patients with skeletal dysplasias undergoing cervical fusion and occipitocervical fusion.

Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery
2025

X-linked dominant chondrodysplasia punctata (CDPX2): A rare case of male mosaicism with atypical dermatological manifestations.

Journal der Deutschen Dermatologischen Gesellschaft = Journal of the German Society of Dermatology : JDDG
2025

Exploration of susceptibility genes in type 2 diabetes mellitus among Chinese Hui and Han people.

JPMA. The Journal of the Pakistan Medical Association
2025

A bovine model of rhizomelic chondrodysplasia punctata caused by a deep intronic splicing variant in the GNPAT gene.

Genetics, selection, evolution : GSE
2025

A Novel EBP c.452A>G Mutation Identified in a Girl with Conradi-Hünermann-Happle Syndrome Presenting with Hydronephrosis.

The application of clinical genetics
2025

Identification of novel compound heterozygous variants in the PEX10 gene in a Han-Chinese family with PEX10-related peroxisome biogenesis disorders.

PloS one
2025

X-linked dominant chondrodysplasia punctata due to novel mutation in EBP gene: A case report.

Medicine
2025

Development and evaluation of RhizoQOL, a quality-of-life caregiver-reported survey for rhizomelic chondrodysplasia punctata, a rare peroxisomal disorder.

Orphanet journal of rare diseases
2025

Severe Kyphosis with Os Odontoideum in Chondrodysplasia Punctata and the Case for Occipitocervical Fusion: A Case Report.

JBJS case connector
2025

First-In-Human Safety, Tolerability, and Pharmacokinetics of PPI-1011, a Synthetic Plasmalogen Precursor.

Clinical and translational science
2025

Kabuki Syndrome: Case Report of Severe Prenatal Midface Hypoplasia (Binder Phenotype), due to a Novel Variant in the KMT2D Gene.

Molecular syndromology
2025

Rapid Whole Genome Sequencing Uncovers a Triple Diagnosis: X-Linked Chondrodysplasia Punctata, MECP2-Related Disorder, and Mosaic Jacobs Syndrome.

Molecular genetics & genomic medicine
2024

Chondrodysplasia Punctata: Early Diagnosis and Multidisciplinary Management of Conradi-Hünermann-Happle Syndrome (CDPX2).

Cureus
2024

Balloon angioplasty for bilateral severe peripheral pulmonary artery stenoses associated with chondrodysplasia punctata: a case report.

Cardiology in the young
2024

A novel frameshift deletion variant of ARSL associated with X-linked recessive chondrodysplasia punctata 1: a case report and literature review of prenatal, confirmed cases.

BMC medical genomics
2024

Rates of tracheostomy in patients with complex skeletal dysplasia: A 32-year institutional experience.

International journal of pediatric otorhinolaryngology
2024

Biallelic Deletion of PEX26 Exon 4 in a Boy with Phenotypic Features of both Zellweger Syndrome and Infantile Refsum Disease.

Molecular syndromology
2024

Prenatal Ultrasonographic Features Associated With ARSL and X-Linked Chondrodysplasia Punctata 1 (CDPX1): Literature Review and Case Series.

Prenatal diagnosis
2024

Obstetrics and neonatal outcomes of binder phenotype with antenatal diagnosis: A case report and literature review.

Journal of gynecology obstetrics and human reproduction
2025

A case of Conradi-Hünermann-Happle syndrome treated with topical simvastatin-cholesterol ointment.

Pediatric dermatology
2024

Human Genetics of Atrial Septal Defect.

Advances in experimental medicine and biology
2024

Increased Proteolytic Activity of Serratia marcescens Clinical Isolate HU1848 Is Associated with Higher eepR Expression.

Polish journal of microbiology
2024

Peroxisomal Localization of a Truncated HMG-CoA Reductase under Low Cholesterol Conditions.

Biomolecules
2024

Intriguing link between fetal intracranial hemorrhage and X-linked recessive chondrodysplasia punctata.

Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology
2023

Predicting the pathogenicity of missense variants based on protein instability to support diagnosis of patients with novel variants of ARSL.

Molecular genetics and metabolism reports
2023

X-linked genodermatoses from diagnosis to tailored therapy.

La Clinica terapeutica
2023

Cervical corpectomy in a pediatric patient with chondrodysplasia punctata and C5 dysplasia with spinal cord compression: illustrative case.

Journal of neurosurgery. Case lessons
2023

A new test method for biochemical analysis of plasmalogens in dried blood spots and erythrocytes from patients with peroxisomal disorders.

Journal of inherited metabolic disease
2024

Management of Tracheobronchial Stenosis in Chondrodysplasia Punctata.

The Laryngoscope
2023

Skeletal dysplasias of the fetus and infant: comprehensive review and our experience over a 10-year period.

Ceskoslovenska patologie
2023

Neonatal rhizomelic chondrodysplasia punctata type 2 caused by a novel homozygous variant in the GNPAT gene.

Clinical case reports
2023

Differential Eye Expression of Xenopus Acyltransferase Gnpat and Its Biochemical Characterization Shed Light on Lipid-Associated Ocular Pathologies.

Investigative ophthalmology & visual science
2023

Quantitative analysis of ethanolamine plasmalogen species in red blood cells using liquid chromatography tandem mass spectrometry for diagnosing peroxisome biogenesis disorders.

Clinica chimica acta; international journal of clinical chemistry
2022

Surgical Treatment of Chondrodysplasia Punctata Tibial-Metacarpal Type Until Skeletal Maturity: A Case Report.

JBJS case connector
2023

Overlapping and Distinct Features of Cardiac Pathology in Inherited Human and Murine Ether Lipid Deficiency.

International journal of molecular sciences
2023

Conradi-Hünerman-Happle Syndrome and Obsessive-Compulsive Disorder: a clinical case report.

BMC psychiatry
2023

Happle-Tinschert syndrome variable phenotype as part of the mosaic hedgehog spectrum: Report of three cases.

Pediatric dermatology
2023

Ichthyotic skin lesions of Conradi-Hünermann-Happle syndrome successfully treated with dupilumab.

Journal of the European Academy of Dermatology and Venereology : JEADV
2022

A Case of Rhizomelic Chondrodysplasia Punctata in a Neonate.

Cureus
2023

Antenatal ultrasonographic diagnosis of rhizomelic chondrodysplasia punctata.

Journal of ultrasound
2023

Conradi-Hünermann-Happle syndrome: Clinical and trichoscopic findings.

Pediatric dermatology
2022

Very-Long-Chain Fatty Acids Quantification by Gas-Chromatography Mass Spectrometry.

Methods in molecular biology (Clifton, N.J.)
2022

Expanding the genotypic and phenotypic landscapes of rhizomelic chondrodysplasia punctata type 3 (RCDP3) with two novel families, and a review of the literature.

American journal of medical genetics. Part A
2022

A Pex7 Deficient Mouse Series Correlates Biochemical and Neurobehavioral Markers to Genotype Severity-Implications for the Disease Spectrum of Rhizomelic Chondrodysplasia Punctata Type 1.

Frontiers in cell and developmental biology
2022

Rhizomelic Chondro-Dysplasia Punctate (RCDP).

Indian pediatrics
2022

Tricky Isomers-The Evolution of Analytical Strategies to Characterize Plasmalogens and Plasmanyl Ether Lipids.

Frontiers in cell and developmental biology
2022

Clinical diagnosis of metabolic disorders using untargeted metabolomic profiling and disease-specific networks learned from profiling data.

Scientific reports
2022

Conradi-Hünermann-Happle syndrome associated with severe hypocalcemia in a newborn.

Pediatric dermatology
2022

Uniparental disomy as a mechanism for X-linked chondrodysplasia punctata.

Clinical dysmorphology
2021

A Novel Variant in the AGPS Gene Causes the Rare Rhizomelic Chondrodysplasia Punctata Type 3: A Case Report.

Cureus
2021

An Infant with Blended Phenotype of Zellweger Spectrum Disorder and Congenital Muscular Dystrophy.

Annals of Indian Academy of Neurology
2022

Retrotransposition disrupting EBP in a girl and her mother with X-linked dominant chondrodysplasia punctata.

Journal of human genetics
2021

Conradi-Hünermann-Happle syndrome with minimal signs.

Pediatric dermatology
2021

Prenatal Diagnosis in a Fetus With X-Linked Recessive Chondrodysplasia Punctata: Identification and Functional Study of a Novel Missense Mutation in ARSE.

Frontiers in genetics
2022

GGCX-related congenital combined vitamin K-dependent clotting factors deficiency-1: Description of a fetus with chondrodysplasia punctata.

American journal of medical genetics. Part A
2021

A case of Conradi-Hünermann-Happle syndrome with typical clinical manifestations confirmed by genetic mutation analysis.

Indian journal of dermatology, venereology and leprology
2021

Pustular Skin Lesions in an Adult Female Patient with X-linked Dominant Chondrodysplasia Punctata with a Novel Emopamil Binding Protein Mutation: A Rare Skin Manifestation.

Acta dermato-venereologica
2022

Hyperemesis gravidarum and vitamin K deficiency: a systematic review.

The British journal of nutrition
2021

Plasmalogens regulate the AKT-ULK1 signaling pathway to control the position of the axon initial segment.

Progress in neurobiology
2021

Genetic epidemiology approach to estimating birth incidence and current disease prevalence for rhizomelic chondrodysplasia punctata.

Orphanet journal of rare diseases
2021

A new GNPAT variant of foetal rhizomelic chondrodysplasia punctata.

Molecular genetics & genomic medicine
2021

Posterior and Anterior Fusion for Severe Cervical Kyphosis in a Patient with Chondrodysplasia Punctata: A Case Report.

JBJS case connector
2021

Twins with PEX7 related intellectual disability and cataract: Highlighting phenotypes of peroxisome biogenesis disorder 9B.

American journal of medical genetics. Part A
2021

A rare case of fatty acyl-CoA reductase 1 deficiency in an Indian infant manifesting rhizomelic chondrodystrophy phenotype.

Clinical genetics
2021

A Neonate with Feathery Scales.

The Journal of pediatrics
2021

Clinical, biochemical, and molecular characterization of mild (nonclassic) rhizomelic chondrodysplasia punctata.

Journal of inherited metabolic disease
2021

General Movements and Developmental Functioning in an Individual with Rhizomelic Chondrodysplasia Punctata within the First Months of the Life: A Case Report.

Physical & occupational therapy in pediatrics
2020

Conradi-Hünermann-Happle syndrome: report of a novel heterozygous mutation on the emopamil-binding protein gene, c.333delC.

Dermatology online journal
2020

Genome sequencing identifies a rare case of moderate Zellweger spectrum disorder caused by a PEX3 defect: Case report and literature review.

Molecular genetics and metabolism reports
2020

Natural history of multiple sulfatase deficiency: Retrospective phenotyping and functional variant analysis to characterize an ultra-rare disease.

Journal of inherited metabolic disease
2020

Chondrodysplasia punctata and neonatal lupus in an infant with positive anti-RNP and negative anti-Ro/SSA and -La/SSB antibodies, a case report.

Pediatric dermatology
2020

Unequivocal Mapping of Molecular Ether Lipid Species by LC-MS/MS in Plasmalogen-Deficient Mice.

Analytical chemistry
2020

Novel Microdeletion in the X Chromosome Leads to Kallmann Syndrome, Ichthyosis, Obesity, and Strabismus.

Frontiers in genetics
2020

Maternal SLE and brachytelephalangic chondrodysplasia punctata in a patient with unrelated de novo RAF1 and SIX2 variants.

American journal of medical genetics. Part A
2020

Oral batyl alcohol supplementation rescues decreased cardiac conduction in ether phospholipid-deficient mice.

Journal of inherited metabolic disease
2020

Zebrafish models of skeletal dysplasia induced by cholesterol biosynthesis deficiency.

Disease models & mechanisms
2020

A new case of Greenberg dysplasia and literature review suggest that Greenberg dysplasia, dappled diaphyseal dysplasia, and Astley-Kendall dysplasia are allelic disorders.

Molecular genetics & genomic medicine
2020

Genetics of Inherited Ichthyoses and Related Diseases.

Acta dermato-venereologica
2020

Oral administration of a synthetic vinyl-ether plasmalogen normalizes open field activity in a mouse model of rhizomelic chondrodysplasia punctata.

Disease models & mechanisms
2020

Rhizomelic chondrodysplasia punctata: Role of EEG as a biomarker of impending epilepsy.

eNeurologicalSci
2020

Rhizomelic chondrodysplasia punctata morbidity and mortality, an update.

American journal of medical genetics. Part A
2020

The type-2 peroxisomal targeting signal.

Biochimica et biophysica acta. Molecular cell research
2020

Biallelic VPS35L pathogenic variants cause 3C/Ritscher-Schinzel-like syndrome through dysfunction of retriever complex.

Journal of medical genetics
2019

Cervical Spine Deformities in Children With Rhizomelic Chondrodysplasia Punctata.

Journal of pediatric orthopedics
2019

Prenatal findings in a fetus with X-linked recessive type of chondrodysplasia punctata (CDPX1): a case report with novel mutation.

BMC pediatrics
2019

Structural basis for human sterol isomerase in cholesterol biosynthesis and multidrug recognition.

Nature communications
2019

Correspondence Reply to Kitaoka et al.

Pediatric neurology
2019

The complementary role of imaging modalities in Binder phenotype. Can prognostic factors of neonatal respiratory distress be found?

Prenatal diagnosis
2019

Male CDPX2 patient with EBP mosaicism and asymmetrically lateralized skin lesions with strict midline demarcation.

American journal of medical genetics. Part A
2019

Chondrodisplasia Punctata of Hip Joints on Routine Radiography Provided a Diagnostic Clue of Zellweger Syndrome.

Pediatric neurology
2019

Chondrodysplasia Punctata: A Clue to the Zellweger Spectrum Disorders.

Pediatric neurology
2019

Mixed connective tissue disease in pregnancy: A case series and systematic literature review.

Obstetric medicine
2019

Case of Conradi-Hünermann-Happle syndrome due to a nonsense mutation of c.245G>A (p.W82*).

The Journal of dermatology
2019

Successful Treatment of Atlantoaxial Subluxation in an Adolescent Patient with BrachytelephalangicChondrodysplasia Punctata.

Case reports in orthopedics
2019

Macroglossia, Dry Skin, Developmental Delay, and Stippled Epiphysis: A Treatable Condition.

Pediatric neurology
2019

Lichenoid folliculitis of the scalp in four patients with ichthyosiform skin disorders and cicatricial alopecia.

Journal of cutaneous pathology
2019

Leukodystrophy caused by plasmalogen deficiency rescued by glyceryl 1-myristyl ether treatment.

Brain pathology (Zurich, Switzerland)
2019

X-linked dominant chondrodysplasia punctata with severe phenotype in a female fetus: A case report.

Medicine
2018

Neonatal punctate calcifications associated with maternal mixed connective tissue disorder (MCTD).

BMJ case reports
2019

Application of machine learning algorithms for the differential diagnosis of peroxisomal disorders.

Journal of biochemistry
2019

Chondrodysplasia punctata (CDPX2) in a male caused by single-gene mosaicism: A 20-year follow-up.

The Australasian journal of dermatology
2018

New splicing pathogenic variant in EBP causing extreme familial variability of Conradi-Hünermann-Happle Syndrome.

European journal of human genetics : EJHG
2018

Chondrodysplasia Punctata with Severe Airway Stenosis.

Indian journal of critical care medicine : peer-reviewed, official publication of Indian Society of Critical Care Medicine
2018

[Analysis of clinical manifestation and genetic mutation in a child with X-linked chondrodysplasia punctata 2].

Zhonghua yi xue yi chuan xue za zhi = Zhonghua yixue yichuanxue zazhi = Chinese journal of medical genetics
2019

Binder syndrome: a phenotype rather than a definitive diagnosis?

Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology
2018

A case report of a suspected dual diagnosis: 22q11.2 deletion syndrome and X-linked chondrodysplasia punctata.

Clinical dysmorphology
2018

Sterol profiles are valuable biomarkers for phenotype expression of Conradi-Hünermann-Happle syndrome with EBP mutations.

The British journal of dermatology
2018

Stippled Calcifications over Bilateral Epiphyses of Humeri.

The Journal of pediatrics
2018

Fetal chondrodysplasia punctata associated with maternal autoimmune diseases: a review.

The application of clinical genetics
2018

Dystrophic calcifications point the way-Unusual and early diagnostic clue of Conradi-Hünermann-Happle syndrome.

JAAD case reports
2018

The Role of Trehalose 6-Phosphate in Crop Yield and Resilience.

Plant physiology
2018

Severe nasomaxillary hypoplasia (Binder phenotype) on prenatal US/MRI: an important marker for the prenatal diagnosis of chondrodysplasia punctata.

Pediatric radiology
2018

Homozygous CHST11 mutation in chondrodysplasia, brachydactyly, overriding digits, clino-symphalangism and synpolydactyly.

Journal of medical genetics
2018

Novel use of the Cochlear® Hybrid CI24REH cochlear implant.

Cochlear implants international
2018

Complex care of individuals with multiple sulfatase deficiency: Clinical cases and consensus statement.

Molecular genetics and metabolism
2018

Fetal ultrasonographic findings including cerebral hyperechogenicity in a patient with non-lethal form of Raine syndrome.

American journal of medical genetics. Part A
2018

A Postzygotic SMO Mutation Caused the Original Case of Happle-Tinschert Syndrome.

Acta dermato-venereologica
2017

Familial X/Y Translocation Encompassing ARSE in Two Moroccan Siblings with Sensorineural Deafness.

Cytogenetic and genome research
2017

Occipitocervical Fusion for Severe Atlantoaxial Dislocation in an Underdeveloped Child with Chondrodysplasia Punctata: A Case Report.

JBJS case connector
2017

Neonatal Rhizomelic Chondrodysplasia Punctata Type 1: Weaving Evidence Into Clinical Practice.

The Journal of perinatal & neonatal nursing
2017

[Peroxisomal disorder, rhizomelyc chondrodysplasia punctata type 1: case report].

Revista chilena de pediatria
2017

Severe phenotype of X-linked dominant chondrodysplasia punctata.

Clinical case reports
2017

Surgical management of cervical spine deformity in chondrodysplasia punctata.

Journal of neurosurgery. Pediatrics
2017

Type 1 rhizomelic chondrodysplasia punctata with a homozygous PEX7 mutation.

Journal of pediatric endocrinology & metabolism : JPEM
2017

Concurrent Chondrodysplasia Punctata Type 2 (Conradi-Hunermann-Happle Syndrome) and Ichthyosis Vulgaris in Teenaged Twin Girls.

Pediatric dermatology
2017

Chondrodysplasia Punctata: A Case Report of Fetal Warfarin Syndrome.

Journal of Nepal Health Research Council
2017

Drosophila Courtship Conditioning As a Measure of Learning and Memory.

Journal of visualized experiments : JoVE
2017

Identification and diagnostic value of phytanoyl- and pristanoyl-carnitine in plasma from patients with peroxisomal disorders.

Molecular genetics and metabolism
2017

Reduced muscle strength in ether lipid-deficient mice is accompanied by altered development and function of the neuromuscular junction.

Journal of neurochemistry
2017

Neonatal mucolipidosis type II alpha/beta due to compound heterozygosity for a known and novel GNPTAB mutation, and a concomitant heterozygous change in SERPINF1 inherited from the mother.

Clinical case reports
2017

Rigid Occipitocervical Instrumented Fusion for Atlantoaxial Instability in an 18-Month-Old Toddler With Brachytelephalangic Chondrodysplasia Punctata: A Case Report.

Spine
2017

Chondrodysplasia punctata presenting with tracheal obstruction.

International journal of pediatric otorhinolaryngology
2017

Radiological picture of premature baby with manifestation of brachytelephalangic type chondrodysplasia punctata, myelomalacia.

The Turkish journal of pediatrics
2016

Unfused Liver Segments: a Case Report of an Unknown Phenotype of the Conradi-Hünermann-Happle Syndrome.

Journal of gastrointestinal and liver diseases : JGLD
2017

Germline mosaicism is a pitfall in PGD for X-linked disorders. Single sperm typing detects very low frequency paternal gonadal mosaicism in a case of recurrent chondrodysplasia punctata misattributed to a maternal origin.

Prenatal diagnosis
2016

Recombinant human dihydroxyacetonephosphate acyl-transferase characterization as an integral monotopic membrane protein.

Biochemical and biophysical research communications
2017

Tympanoplasty for chondrodysplasia punctata: Case report.

Auris, nasus, larynx
2017

Growth charts for individuals with rhizomelic chondrodysplasia punctata.

American journal of medical genetics. Part A
2015

Rare Case of Rhizomelic Chondrodysplasia Punctata.

Journal of orthopaedic case reports
2016

Clinical and Biochemical Pitfalls in the Diagnosis of Peroxisomal Disorders.

Neuropediatrics
2016

Inherited ichthyosis: Syndromic forms.

The Journal of dermatology
2016

Ocular manifestations of genetic skin disorders.

Clinics in dermatology
2016

Effect of Intrathecal Baclofen on Delayed-Onset Paroxysmal Dystonia due to Compression Injury Resulting From Congenital and Progressive Spinal Bone Deformities in Chondrodysplasia Punctata.

Pediatric neurology
2016

PRENATAL DIAGNOSIS OF RHIZOMELIC CHONDRODYSPLASIA PUNCTATA.

Genetic counseling (Geneva, Switzerland)
2016

Peroxisomes in brain development and function.

Biochimica et biophysica acta
2015

Whole Exome Sequencing Reveals Compound Heterozygosity for Ethnically Distinct PEX7 Mutations Responsible for Rhizomelic Chondrodysplasia Punctata, Type 1.

Case reports in genetics
2015

Brachytelephalangic chondrodysplasia punctata caused by new small hemizygous deletion in a boy presenting with hearing loss.

Molecular cytogenetics
2016

Congenital heart defects common in rhizomelic chondrodysplasia punctata.

American journal of medical genetics. Part A
2015

Phytol in a pharma-medico-stance.

Chemico-biological interactions
2015

A novel type of rhizomelic chondrodysplasia punctata, RCDP5, is caused by loss of the PEX5 long isoform.

Human molecular genetics
2015

ALG3-CDG: Report of two siblings with antenatal features carrying homozygous p.Gly96Arg mutation.

American journal of medical genetics. Part A
2015

Keratotic follicular plugs with calcifications in Conradi-Hünermann-Happle syndrome: histological, biochemical and genetic testing correlation.

The British journal of dermatology
2015

Adult presentation of X-linked Conradi-Hünermann-Happle syndrome.

American journal of medical genetics. Part A
2015

Emopamil binding protein mutation in conradi-hünermann-happle syndrome representing plaque-type psoriasis.

Indian journal of dermatology
2015

Rhizomelic Chondrodysplasia Punctata Type 1 Caused by a Novel Mutation in the PEX7 Gene.

Journal of clinical research in pediatric endocrinology
2015

Severe X-linked chondrodysplasia punctata in nine new female fetuses.

Prenatal diagnosis
2015

Radiographic features of the skeleton in disorders of post-squalene cholesterol biosynthesis.

Pediatric radiology
2015

Targeted carrier screening for four recessive disorders: high detection rate within a founder population.

European journal of medical genetics
2015

Chondrodysplasia punctata tibia metacarpal type: report of a 1.5 year old child with severe short stature and extensive calcific stippling.

Clinical dysmorphology
2014

TM6SF2 and MAC30, new enzyme homologs in sterol metabolism and common metabolic disease.

Frontiers in genetics
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Referências e fontes

Bases de dados externas citadas neste artigo

Publicações científicas

Artigos indexados no PubMed ligados a esta doença no grafo RarasNet — título, periódico e PMID direto da fonte, sem intermediação de IA.

  1. Unraveling PEX6: insights into very-long-chain fatty acid levels and peroxisome biogenesis disorders in pediatric populations.
    Annals of pediatric endocrinology & metabolism· 2026· PMID 41787707mais citado
  2. Airway Involvement in Conradi-Hünermann-Happle Syndrome: A Novel Clinical Manifestation.
    The Laryngoscope· 2026· PMID 41735768mais citado
  3. A Novel EBP c.452A>G Mutation Identified in a Girl with Conradi-Hünermann-Happle Syndrome Presenting with Hydronephrosis.
    The application of clinical genetics· 2025· PMID 40386185mais citado
  4. Identification of novel compound heterozygous variants in the PEX10 gene in a Han-Chinese family with PEX10-related peroxisome biogenesis disorders.
    PloS one· 2025· PMID 40267090mais citado
  5. Development and evaluation of RhizoQOL, a quality-of-life caregiver-reported survey for rhizomelic chondrodysplasia punctata, a rare peroxisomal disorder.
    Orphanet journal of rare diseases· 2025· PMID 40165314mais citado
  6. Maternal and fetal outcomes in pregnancies affected by mixed connective tissue disease.
    Obstet Med· 2026· PMID 41940214recente
  7. Metabolomic Profiling Reveals Brain Lipid Alterations in PEX7-Deficient Models of Rhizomelic Chondrodysplasia Punctata.
    Biomolecules· 2025· PMID 41594547recente
  8. Neonatal X-linked recessive chondrodysplasia punctata.
    QJM· 2025· PMID 41172261recente

Bases de dados e fontes oficiais

Identificadores e referências canônicas usadas para montar este verbete.

  1. ORPHA:93442(Orphanet)
  2. MONDO:0019701(MONDO)
  3. GARD:8542(GARD (NIH))
  4. Variantes catalogadas(ClinVar)
  5. Busca completa no PubMed(PubMed)
  6. Q1076060(Wikidata)

Dados compilados pelo RarasNet a partir de fontes abertas (Orphanet, OMIM, MONDO, PubMed/EuropePMC, ClinicalTrials.gov, DATASUS, PCDT/MS). Este conteúdo é informativo e não substitui avaliação médica.

Conteúdo mantido por Agente Raras · Médicos e pesquisadores podem colaborar

Compêndio · Raras BR

Condrodisplasia pontuada

ORPHA:93442 · MONDO:0019701
CID-10
Q77.3 · Condrodisplasia puntacta
CID-11
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C0008445
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