Raras
Buscar doenças, sintomas, genes...
Doença Castleman multicêntrica idiopática
ORPHA:570431CID-10 · D47.7CID-11 · 4B2YDOENÇA RARA

O alvo da rapamicina em mamíferos, também chamado de alvo mecanístico da rapamicina e, às vezes, de proteína 12 de ligação FK506, é uma quinase que, em humanos, é codificada pelo gene MTOR. O mTOR é um membro da família de proteínas quinases relacionadas à fosfatidilinositol 3-quinase.

Mantido por Agente Raras·Colaborar como especialista →

Introdução

O que você precisa saber de cara

📋

Doença Castleman multicêntrica idiopática é uma desordem rara com linfadenopatia generalizada, hepatoesplenomegalia, febre e anasarca. Apresenta-se com elevação de fosfatase alcalina e IgG policlonal, além de autoimunidade.

Pesquisas ativas
2 ensaios
6 total registrados no ClinicalTrials.gov
Publicações científicas
304 artigos
Último publicado: 2026 Apr 13

Escala de raridade

CLASSIFICAÇÃO ORPHANET · BRASIL 2024
Unknown
Ultra-rara
<1/50k
Muito rara
1/20k
Rara
1/10k
Pouco freq.
1/5k
Incomum
1/2k
Prevalência
0.0
Worldwide
Início
All ages
🏥
SUS: Sem cobertura SUSScore: 0%
CID-10: D47.7
Você se identifica com essa condição?
O Raras está aqui pra te apoiar — com ou sem diagnóstico

Encontrou um erro ou informação desatualizada? Sugira uma correção →

Entender a doença

Do básico ao detalhe, leia no seu ritmo

Preparando trilha educativa...

Sinais e sintomas

O que aparece no corpo e com que frequência cada sintoma acontece

Partes do corpo afetadas

🩸
Sangue
5 sintomas
🫃
Digestivo
3 sintomas
🛡️
Imunológico
2 sintomas
🫘
Rins
2 sintomas
🦴
Ossos e articulações
1 sintomas
🫁
Pulmão
1 sintomas

+ 12 sintomas em outras categorias

Características mais comuns

Concentração elevada de fosfatase alcalina circulante
Derrame pleural
Elevação policlonal de IgG circulante
Anasarca
Autoimunidade
Ascite
27sintomas
Sem dados (27)

Os sintomas variam de pessoa para pessoa. Abaixo estão as 27 características clínicas mais associadas, ordenadas por frequência.

Concentração elevada de fosfatase alcalina circulanteElevated circulating alkaline phosphatase concentration
Derrame pleuralPleural effusion
Elevação policlonal de IgG circulantePolyclonal elevation of circulating IgG
Anasarca
AutoimunidadeAutoimmunity

Linha do tempo da pesquisa

Publicações por ano — veja quando o interesse científico cresceu
Anos de pesquisa1desde 2026
Total histórico304PubMed
Últimos 10 anos200publicações
Pico202560 papers
Linha do tempo
2026Hoje · 2026🧪 2016Primeiro ensaio clínico📈 2025Ano de pico
Publicações por ano (últimos 10 anos)

Encontrou um erro ou informação desatualizada? Sugira uma correção →

Genética e causas

O que está alterado no DNA e como passa nas famílias

🧬

Nenhum gene associado encontrado

Os dados genéticos desta condição ainda estão sendo catalogados.

Diagnóstico

Os sinais que médicos procuram e os exames que confirmam

Carregando...

Tratamento e manejo

Remédios, cuidados de apoio e o que precisa acompanhar

Pipeline de tratamentos
Pipeline regulatório — de medicamentos já aprovados a drogas em pesquisa exploratória.
2Fase 24
·Pré-clínico2
Medicamentos catalogadosEnsaios clínicos· 0 medicamentos · 6 ensaios
Carregando informações de tratamento...

Onde tratar no SUS

Hospitais de referência no Brasil e o protocolo oficial do SUS (PCDT)

🇧🇷 Atendimento SUS — Doença Castleman multicêntrica idiopática

🗺️

Selecione um estado ou use sua localização para ver resultados.

Dados de DATASUS/CNES, SBGM, ABNeuro e Ministério da Saúde. Sempre confirme a disponibilidade diretamente com o estabelecimento.

Pesquisa ativa

Ensaios clínicos abertos e novidades científicas recentes

🟢 Recrutando agora

1 pesquisa recrutando participantes. Converse com seu médico sobre a possibilidade de participar.

Outros ensaios clínicos

6 ensaios clínicos encontrados, 2 ativos.

Distribuição por fase
Ver todos no ClinicalTrials.gov
🧪 Está conduzindo uma pesquisa?
Divulgue para pacientes e familiares que acompanham esta doença.
Divulgar pesquisa →

Publicações mais relevantes

Timeline de publicações
302 papers (10 anos)
#1

Recovery trajectories of TAFRO syndrome: a single-center case series highlighting prolonged thrombocytopenia and anasarca.

Immunological medicine2026 Mar 23

TAFRO syndrome is a rare systemic inflammatory disorder characterized by thrombocytopenia, anasarca, fever or inflammation, reticulin fibrosis or renal dysfunction, and organomegaly. Despite increasing recognition, its natural history, particularly the timeline of organ-specific recovery, remains poorly understood. We retrospectively analyzed seven patients, encompassing nine treatment courses, diagnosed with TAFRO syndrome at our institution. Time to recovery was assessed across four clinical domains-renal dysfunction, systemic inflammation, anasarca, and thrombocytopenia-using predefined objective criteria. The median time to recovery was 7.0 days for renal dysfunction, 21.0 days for systemic inflammation, 24.0 days for anasarca, and 46.0 days for thrombocytopenia. Recovery of thrombocytopenia and anasarca tended to be delayed compared with that of renal dysfunction and systemic inflammation, with thrombocytopenia showing the longest median time to recovery. These findings indicate substantial heterogeneity in organ-specific recovery trajectories in TAFRO syndrome, with hematologic and fluid-related manifestations resolving more slowly than inflammatory or renal abnormalities. Recognition of domain-specific recovery timelines may aid interpretation of treatment responses and support more balanced, individualized management strategies.

#2

Case Report: Endothelial-targeted bridging therapy for a TTP-like phenotype in fulminant iMCD-TAFRO.

Frontiers in immunology2026

iMCD-TAFRO (the TAFRO clinical subtype of idiopathic multicentric Castleman disease (iMCD)) is characterized by thrombocytopenia, anasarca, fever, reticulin fibrosis, and organomegaly. Diagnosis is challenging due to its rarity, non-specific early presentation, and overlap with sepsis, lymphoma, and thrombotic microangiopathy (TMA). Endothelial injury is increasingly recognized as a central driver of its severe complications. A previously healthy 20-year-old woman presented with rapid progression of fever, anasarca, jaundice, and respiratory failure. Laboratory findings revealed severe thrombocytopenia, microangiopathic hemolytic anemia, markedly elevated IL-6, and critically reduced ADAMTS13 activity (5.41%) without an inhibitor by a Bethesda assay, in a sample obtained before the first therapeutic plasma exchange (TPE) and before any fresh frozen plasma (FFP) infusion, suggesting a cytokine-driven thrombotic thrombocytopenic purpura (TTP)-like syndrome. Extensive workup excluded primary infections and malignancies. Diagnosis of iMCD-TAFRO was confirmed by a lymph-node core biopsy showing features consistent with Castleman disease with plasmacytosis. This case highlights that iMCD-TAFRO can manifest as a fulminant, endotheliopathy-dominated syndrome in young adults, mimicking primary TTP. The severe ADAMTS13 deficiency in this context likely results from consumption due to endothelial activation rather than an immune-mediated process. This distinction is critical for appropriate management. Prior to definitive diagnosis, an endothelium-directed bundle was initiated, including TPE plus adjunctive FFP infusion, corticosteroids, and anisodamine for microcirculatory support; stabilization occurred in the context of multimodal supportive care. Upon diagnostic confirmation, targeted anti-IL-6 therapy (siltuximab) led to significant clinical improvement. Despite a subsequent relapse with pulmonary hypertension, intensified immunosuppression achieved complete remission at one-year follow-up. This case illustrates a pathophysiology-informed bridging bundle to stabilize endothelial and microcirculatory dysfunction while pursuing definitive diagnosis and targeted cytokine blockade in severe iMCD-TAFRO.

#3

Siltuximab as a first-line therapy for idiopathic multicentric Castleman disease: a retrospective analysis based on the SiMuLa study of the Italian regional network.

Frontiers in oncology2026

Idiopathic Multicentric Castleman Disease (iMCD) is a rare, heterogeneous lymphoproliferative disorder characterized by polyclonal lymphoid hyperplasia, systemic inflammatory symptoms, and generalized lymphadenopathy that can result in multiorgan dysfunction. The interleukin-6 (IL-6)-mediated hyperinflammatory state represents the key pathogenic mechanism of iMCD. Currently, first-line therapy is based on Siltuximab, with or without corticosteroids. Siltuximab (SYLVANT) is a chimeric monoclonal antibody that binds soluble human IL-6, forming stable, high-affinity complexes that neutralize its biological activity. Approximately 40-50% of patients fail to achieve a complete response during first-line Siltuximab therapy. This study aimed to retrospectively evaluate real-world outcomes and safety in patients with iMCD treated with first-line Siltuximab outside clinical trials across the Lazio region of Italy. Real-world data were retrospectively collected from patients with iMCD who received at least one dose of Siltuximab as first-line therapy (11 mg/kg every 3 weeks, until disease progression) between 2018 and March 2025 at Hematology Units across the Lazio region, Italy. Treatment responses were assessed according to Castleman Disease Collaborative Network (CDCN) criteria, based on biochemical, radiologic, and clinical parameters. Safety was evaluated using NCI-CTCAE version 5.0. Fourteen patients were included. The median age was 54 years (range, 18-81), and the median treatment duration was 28 months (range, 3-55). The complete remission rate (CRR) was 29%, while the overall response rate (ORR) reached 86%. At data cutoff, 12 of 14 patients (85.7%) were alive. No infusion-related reactions occurred, and the overall safety profile was favorable. This preliminary real-world experience confirms that first-line Siltuximab is effective and well tolerated in patients with iMCD, achieving durable disease control in the majority of cases. These findings support the continued use of Siltuximab as the standard of care and underscore the importance of expanding real-world registries to better define the epidemiology and treatment outcomes of iMCD in Italy.

#4

Elucidating the grading intricacies of idiopathic multicentric Castleman disease histopathology: a pathologist's perspective.

American journal of clinical pathology2026 Mar 03

Idiopathic multicentric Castleman disease (iMCD) is a rare condition with a wide range of signs and symptoms that often overlap with other conditions that cause lymphadenopathy. The diagnosis of iMCD remains challenging, even among experts. Our aim is to highlight the heterogeneity of histopathologic features and presentations of iMCD and to provide tools to help diagnose and raise awareness of this rare condition. We review the most relevant clinicopathologic aspects of iMCD and present our process to accurately diagnose this condition using a case-based approach. We describe how to incorporate the iMCD diagnostic criteria, including grading of histomorphology, laboratory, and clinical findings. Here, we describe our system to grade histopathologic features in iMCD. Together with radiologic findings and laboratory and clinical information, this system helps clinicians accurately identify iMCD and its subtypes, leading to more appropriate and timely diagnosis and treatment. The diagnosis of iMCD can be challenging and requires a multidisciplinary team of hematologists, pathologists/hematopathologists, and other specialists. There is a pressing and unmet clinical need for a harmonized system to grade the histopathologic features of iMCD. This condition should be included in the differential diagnosis when other causes of a lymphoproliferative disorder (eg, infections, autoimmune/inflammatory disorders, malignancy) have been ruled out.

#5

Long-term safety and efficacy of filgotinib in patients with idiopathic multicentric Castleman disease: 52-week results from a Phase Ib clinical trial.

Modern rheumatology2026 Feb 19

To evaluate the long-term safety and exploratory efficacy of filgotinib, a JAK1-preferential inhibitor, in patients with idiopathic multicentric Castleman disease (iMCD) over 52 weeks in a small, single-arm extension study. This Phase Ib single-arm extension study enrolled five patients with iMCD who completed an initial 8 weeks' treatment with filgotinib. Patients received filgotinib 200 mg once daily for an additional 44 weeks (total 52 weeks). The primary endpoints assessed the comprehensive safety parameters. The secondary endpoints were efficacy. All five patients completed the full 52-week treatment period without permanent discontinuation. No serious adverse events or deaths were observed. All adverse events were mild-to-moderate (Grade 1-2), with upper respiratory infections in 4 patients and headache in 3 of 5 patients. Herpes zoster occurred in one patient. At week 52, three of five patients had ≥1-point CHAP score reduction (one additional patient compared with week 8). Median changes from baseline included: CRP -1.85 mg/dL, hemoglobin +0.50 g/dL, albumin +0.30 g/dL, and ECOG-PS 0 points. Filgotinib was well-tolerated over 52 weeks with no serious adverse events reported. Numerical changes in disease activity markers were observed over time, providing preliminary support for the therapeutic concept of JAK inhibition in iMCD.

Publicações recentes

Ver todas no PubMed

📚 EuropePMC215 artigos no totalmostrando 193

2026

Recovery trajectories of TAFRO syndrome: a single-center case series highlighting prolonged thrombocytopenia and anasarca.

Immunological medicine
2026

Interfollicular Plasmacytosis and Hyperplastic Germinal Centers in Idiopathic Multicentric Castleman Disease, Idiopathic Plasmacytic Lymphadenopathy Subtype.

American journal of hematology
2026

Case Report: Endothelial-targeted bridging therapy for a TTP-like phenotype in fulminant iMCD-TAFRO.

Frontiers in immunology
2026

Siltuximab as a first-line therapy for idiopathic multicentric Castleman disease: a retrospective analysis based on the SiMuLa study of the Italian regional network.

Frontiers in oncology
2026

Elucidating the grading intricacies of idiopathic multicentric Castleman disease histopathology: a pathologist's perspective.

American journal of clinical pathology
2026

Is "severe" idiopathic multicentric Castleman disease (iMCD)-idiopathic plasmacytic lymphadenopathy (IPL) really severe?

HemaSphere
2026

Long-term safety and efficacy of filgotinib in patients with idiopathic multicentric Castleman disease: 52-week results from a Phase Ib clinical trial.

Modern rheumatology
2026

Systemic bone destruction as a presentation of idiopathic multicentric Castleman disease.

British journal of haematology
2026

Concurrent Idiopathic Multicentric Castleman Disease with TAFRO and Sjögren's Syndrome in a Young Patient: A Challenging Diagnostic Overlap.

European journal of case reports in internal medicine
2026

A Rapid Transition From Thrombocytosis to Thrombocytopenia in Idiopathic Multicentric Castleman Disease.

The Journal of dermatology
2026

The clinical significance of the Mediterranean fever gene MEFV variants in Castleman disease.

Communications medicine
2025

TAFRO syndrome requiring combined IL 6 and IL 1 inhibition: a case report.

Frontiers in immunology
2025

Polyclonal hypergammaglobulinemia, infiltration of the salivary glands, lymphadenopathy, and kidney damage - Mikulicz's disease, Sjögren's syndrome, or Castleman's disease? Case report and overview of differential diagnosis and treatment.

Klinicka onkologie : casopis Ceske a Slovenske onkologicke spolecnosti
2026

Ruxolitinib in relapsed/refractory TAFRO syndrome: a report of two cases, including one positive for Epstein-Barr virus, and a literature review.

International journal of hematology
2026

Idiopathic Multicentric Castleman Disease-TAFRO: A Potentially Curable Disease?

American journal of hematology
2025

A Placebo-Controlled Exploratory Trial of Sirolimus for Tocilizumab-Resistant Idiopathic Multicentric Castleman Disease: Early Termination and Long-Term Extension Results Based on Descriptive Results From Two Patients.

Cureus
2025

Dysregulated lymphocyte localization in idiopathic multicentric Castleman disease.

bioRxiv : the preprint server for biology
2025

Idiopathic Multicentric Castleman Disease With Severe Eosinophilia and Diffuse Centrilobular Nodule-A Rare Case Report.

Case reports in hematology
2026

Potential link between COVID-19 infection/vaccination and the onsets of TAFRO syndrome and idiopathic multicentric castleman disease.

Immunology letters
2025

Siltuximab monotherapy improves progression free survival compared to rituximab-based therapies in patients with idiopathic multicentric Castleman disease; indirect comparison of studies using single-arm metanalysis method and the generalized linear mixed model.

Annals of hematology
2025

Use of tocilizumab to treat IgA nephropathy complicated by idiopathic multicentric Castleman disease: a case report.

BMC nephrology
2025

IgG4 plasma cells in hematopathology: beyond IgG4-related disease.

Journal of hematopathology
2025

Heterogeneous Presentations of iMCD: A Single-Institution Case Series.

Case reports in hematology
2025

A case of systemic lupus erythematosus complicated by TAFRO syndrome-like conditions: analysis of C-X-C motif chemokine ligand 13 and B-cell activating factor dynamics and the efficacy of combination therapy with cyclosporine and belimumab.

Modern rheumatology case reports
2025

Diagnostic and therapeutic challenges in hyaline-vascular idiopathic multicentric Castleman disease: A case report.

The Journal of international medical research
2026

Anterior mediastinal lesions in TAFRO syndrome: potential clinical significance.

Rheumatology (Oxford, England)
2025

Morphological and quantitative CT features of anterior mediastinal lesions in TAFRO syndrome and idiopathic multicentric Castleman disease.

Frontiers in immunology
2025

Distinct interleukin-6 production in IPL and TAFRO subtypes of idiopathic multicentric Castleman disease.

Haematologica
2025

Atypical clinical presentation associated with Castleman disease: a case report and review of the literature.

Frontiers in medicine
2025

The Evolution and Recent Advances in Diagnostic Criteria for Idiopathic Multicentric Castleman Disease.

American journal of hematology
2025

A patient-derived CABIN1 mutation recapitulates features of idiopathic multicentric Castleman disease in a mouse model.

Blood advances
2025

Idiopathic multicentric Castleman disease with TAFRO syndrome: A rare case report.

Indian journal of cancer
2025

Striking effectiveness of siltuximab-based treatment in refractory idiopathic multicentric Castleman disease resembling IgG4-related disease.

Journal of chemotherapy (Florence, Italy)
2025

EXT1/EXT2-Associated Membranous Nephropathy Secondary to TAFRO Syndrome: A Case Report.

Nephron
2025

Idiopathic multicentric Castleman disease resembling autoimmune diseases: A case report.

Medicine
2025

The morphological spectrum of Castleman disease and related disorders: a report from the Lymphoma Workshop of the 22nd Meeting of the European Association of Hematopathology.

Virchows Archiv : an international journal of pathology
2025

Complications and Management of Idiopathic Multicentric Castleman Disease.

HCA healthcare journal of medicine
2025

[Clinical Characteristic of Castleman Disease with Renal and Orbit Involvement].

Zhongguo shi yan xue ye xue za zhi
2025

Curative Gastrectomy for Advanced Gastric Cancer in a Patient with Idiopathic Multicentric Castleman Disease: A Rare Case Report.

Surgical case reports
2025

International Consensus Histopathological Criteria for Subtyping Idiopathic Multicentric Castleman Disease Based on Machine Learning Analysis.

American journal of hematology
2025

[Sequential treatment with siltuximab and tocilizumab for childhood idiopathic multicentric Castleman disease: a case report].

Zhongguo dang dai er ke za zhi = Chinese journal of contemporary pediatrics
2025

Efficacy of High-Dose Intravenous Anakinra in Pediatric TAFRO Syndrome: Report of Two Cases and Literature Review.

Pediatric blood &amp; cancer
2025

[Breast implant-associated anaplastic large cell lymphoma that developed 20 years after breast reconstruction and was successfully treated with chemotherapy].

[Rinsho ketsueki] The Japanese journal of clinical hematology
2025

Prognostic value of serum C-reactive protein in idiopathic multicentric Castleman disease and construction of a prognostic model for patients.

Frontiers in medicine
2025

Reversible cerebral vasoconstriction syndrome in idiopathic multicentric Castleman disease under treatment with tocilizumab.

BMJ neurology open
2025

Castleman Disease-Still More Questions than Answers: A Case Report and Review of the Literature.

Journal of clinical medicine
2025

The Involvement of PI3K-Akt Signaling in the Clinical and Pathological Findings of Idiopathic Multicentric Castleman Disease-Thrombocytopenia, Anasarca, Fever, Reticulin Fibrosis, and Organomegaly and Not Otherwise Specified Subtypes.

Modern pathology : an official journal of the United States and Canadian Academy of Pathology, Inc
2025

Efficacy of tocilizumab monotherapy for autoimmune hemolytic anemia associated with idiopathic multicentric Castleman disease: a case-based review.

Rheumatology international
2025

LRG1, a novel serum biomarker for iMCD disease activity.

Biomarker research
2024

Idiopathic multicentric Castleman disease - TAFRO results in high levels of mTOR activator SVEP1, tissue factor, and endotheliopathy.

Blood vessels, thrombosis &amp; hemostasis
2025

Common connective tissue disorder and anti-cytokine autoantibodies are enriched in idiopathic multicentric castleman disease patients.

Frontiers in immunology
2025

Real-world data of siltuximab for Chinese patients with iMCD: combination with BCD regimen as a potential approach for severe cases.

Annals of hematology
2025

IFN-γ promotes the progression of iMCD by activating inflammatory monocytes.

Blood
2025

Spontaneous remission of iMCD-TAFRO: a case report.

Annals of hematology
2025

Plasma Cell-rich Nephritis with a Systemic Polyclonal Lymphoproliferative Disorder, Mimicking Idiopathic Multicentric Castleman Disease, Systemic Lupus Erythematosus, and IgG4-related Disease.

Internal medicine (Tokyo, Japan)
2025

Systemic sclerosis presenting TAFRO syndrome-like manifestations including renal glomerular microangiopathy: a case report and literature review.

Immunological medicine
2025

Idiopathic multicentric Castleman disease developing after a diagnosis of sarcoidosis: A case report and literature review.

Respiratory medicine case reports
2025

Clinical Characteristics of Patients With Idiopathic Multicentric Castleman Disease Complicated by Autoimmune Hemolytic Anemia.

Zhongguo yi xue ke xue yuan xue bao. Acta Academiae Medicinae Sinicae
2025

Dynamics of Serum Cytokines and Chemokines in Patients With Idiopathic Multicentric Castleman Disease: From a Phase Ib Investigator-Initiated Trial of Filgotinib.

Cureus
2025

A Phase Ib Investigator-Initiated Trial of Filgotinib in Patients With Idiopathic Multicentric Castleman Disease.

Cureus
2025

TAFRO Syndrome Without Pathology Supporting Castleman Disease: To Be Treated as Idiopathic Multicentric Castleman Disease-TAFRO or a Distinct Disease Entity?

Turkish journal of haematology : official journal of Turkish Society of Haematology
2025

Serum Soluble Interleukin-2 Receptor as a Potential Marker for Assessing Disease Activity in the TAFRO Subtype of Idiopathic Multicentric Castleman Disease.

Internal medicine (Tokyo, Japan)
2025

A case report of Castleman disease with paraneoplastic pemphigus and bronchiolitis obliterans: Challenges and key takeaways.

International journal of surgery case reports
2025

Massive endobronchial hemorrhage leading to Cardiac arrest during EBUS-TBNA: a case of successful resuscitation.

BMC pulmonary medicine
2025

Idiopathic multicentric Castleman disease in children: a single-center retrospective analysis.

BMC pediatrics
2025

No evidence for active viral infection in unicentric and idiopathic multicentric Castleman disease by Viral-Track analysis.

Scientific reports
2025

Clinical Characteristics and Prognosis of Pediatric Idiopathic Multicentric Castleman Disease.

American journal of hematology
2025

Clinical and Radiologic Differences in Lung Involvement Between IgG4-Related Disease and Plasma Cell-Type Idiopathic Multicentric Castleman Disease.

Lung
2024

Computed tomography findings of idiopathic multicentric Castleman disease subtypes.

Journal of clinical and experimental hematopathology : JCEH
2025

Co-occurrence of Neuromyelitis Optica Spectrum Disorder and Idiopathic Multicentric Castleman Disease Successfully Treated with Tocilizumab.

Internal medicine (Tokyo, Japan)
2024

Quality of life after idiopathic multicentric Castleman disease in China: a cross-sectional, multi-center survey of patient reported outcome and caregiver reported outcome.

Orphanet journal of rare diseases
2024

The Value of a Pet Scan in Selecting the Best Lymph Node to Biopsy, and Confirming the Diagnosis of Idiopathic Multicentric Castleman Disease with HLH And EBV Viremia in a Previously Healthy Adult.

European journal of case reports in internal medicine
2024

The Enigma of Idiopathic Multicentric Castleman Disease: An Elusive Diagnosis.

Cureus
2024

Identifying Castleman disease from non-clonal inflammatory causes of generalized lymphadenopathy.

Hematology. American Society of Hematology. Education Program
2025

Idiopathic Multicentric Castleman Disease Diagnosed after Lower Extremity Venous Thrombosis Mimicking Immunoglobulin G4-related Disease.

Internal medicine (Tokyo, Japan)
2024

[Research Advances in Pathogenesis of Idiopathic Multicentric Castleman Disease].

Zhongguo yi xue ke xue yuan xue bao. Acta Academiae Medicinae Sinicae
2024

Rapid Relapse of Idiopathic Multicentric Castleman Disease After Siltuximab Discontinuation in a Case with Complete Remission for More Than 10 Years.

Turkish journal of haematology : official journal of Turkish Society of Haematology
2025

Unicentric Castleman Disease: Updates and Novel Insights Into Spindle Cell Proliferations and Aggressive Forms of a Localized Disease.

International journal of laboratory hematology
2024

TAFRO subtype of idiopathic multicentric Castleman disease in a 22-year-old man.

CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne
2024

Successful Treatment of Idiopathic Multicentric Castleman Disease With Rash as the Initial Symptom Using a Rituximab-Based Regimen.

Journal of hematology
2024

Siltuximab in Idiopathic Multicentric Castleman Disease: Real-World Experience.

Journal of hematology
2024

Transcriptome analysis of the cytokine storm-related genes among the subtypes of idiopathic multicentric Castleman disease.

Journal of clinical and experimental hematopathology : JCEH
2024

Pathophysiology, Treatment, and Prognosis of Thrombocytopenia, Anasarca, Fever, Reticulin Fibrosis/Renal Failure, and Organomegaly (TAFRO) Syndrome: A Review.

Current issues in molecular biology
2024

Idiopathic multicentric Castleman disease.

Journal of cancer research and therapeutics
2025

Efficacy and safety of orelabrutinib in relapsed/refractory idiopathic multicentric Castleman disease: A single-centre, retrospective study.

British journal of haematology
2024

Peculiar hyper vascular manifestations in idiopathic multicentric castleman disease without tafro syndrome: a case report.

Annals of hematology
2024

Asymptomatic multicentric Castleman disease: a potential early stage of idiopathic MCD.

Blood advances
2024

Diagnostic challenges in patients with Castleman disease, a single center experience from Hungary.

Pathology oncology research : POR
2024

An Unusual Case of HHV-8 Negative, Idiopathic, Multicentric Castleman Disease Following Chronic Lymphocytic Leukaemia.

European journal of case reports in internal medicine
2024

Idiopathic multicentric Castleman disease with marrow fibrosis and extramedullary hematopoiesis.

European journal of haematology
2025

Epstein-Barr virus-encoded RNA-positive lymphocytes in bone marrow and lymph nodes in an autopsy case of TAFRO syndrome.

Modern rheumatology case reports
2025

Idiopathic multicentric Castleman disease-TAFRO after COVID-19: A case report.

Modern rheumatology case reports
2024

Unraveling the Complexities of Idiopathic Multicentric Castleman Disease and Its Multi-systemic Associations: A Case Report.

Cureus
2024

scRNA-seq reveals the landscape of immune repertoire of PBMNCs in iMCD.

Oncogene
2024

Delayed diagnosis of TAFRO syndrome: A case report.

Medicine
2024

Idiopathic Multicentric Castleman Disease With Thrombocytopenia, Anasarca, Fever, Reticulin Fibrosis/Renal Insufficiency, and Organomegaly (TAFRO) Syndrome in a Liver Transplant Recipient.

ACG case reports journal
2024

Internal Psychometric Validation of an International Burden of Illness Survey for Idiopathic Multicentric Castleman Disease.

Oncology and therapy
2024

[Relapsed/refractory idiopathic multicentric Castleman disease successfully treated with sirolimus: a case report].

Zhonghua xue ye xue za zhi = Zhonghua xueyexue zazhi
2024

Increase in Vascular Endothelial Growth Factor (VEGF) Expression and the Pathogenesis of iMCD-TAFRO.

Biomedicines
2024

TAFRO Syndrome: Guidance for Managing Patients Presenting Thrombocytopenia, Anasarca, Fever, Reticulin Fibrosis, Renal Insufficiency, and Organomegaly.

Biomedicines
2024

Biomarkers and Signaling Pathways Implicated in the Pathogenesis of Idiopathic Multicentric Castleman Disease/Thrombocytopenia, Anasarca, Fever, Reticulin Fibrosis, Renal Insufficiency, and Organomegaly (TAFRO) Syndrome.

Biomedicines
2024

Corrigendum: Real-practice management and treatment of idiopathic multicentric Castleman disease with siltuximab: a collection of clinical experiences.

Drugs in context
2024

Successful treatment of relapsed idiopathic multicentric Castleman disease-idiopathic plasmacytic lymphadenopathy with orelabrutinib monotherapy: A case report.

British journal of haematology
2024

Idiopathic multicentric Castleman disease and connective tissue disorder successfully treated by siltuximab: a pediatric case report.

Translational pediatrics
2024

Tacrolimus Treatment for TAFRO Syndrome.

Biomedicines
2024

Sirolimus is effective for refractory/relapsed idiopathic multicentric Castleman disease: A single-center, retrospective study.

Annals of hematology
2024

Radiological Imaging Findings of Adrenal Abnormalities in TAFRO Syndrome: A Systematic Review.

Biomedicines
2024

Can We Differentiate Between Primary Sjögren Syndrome and Idiopathic Multicentric Castleman Disease Based on the Characteristics of Pulmonary Cysts?

Journal of thoracic imaging
2024

VEXAS syndrome: A new mimicker of idiopathic multicentric Castleman disease.

Joint bone spine
2024

Successful outcome in a case of idiopathic multicentric Castleman disease with atypical lymphadenopathy and kidney injury: Diagnostic challenges and treatment approach-Case report.

SAGE open medical case reports
2024

A prospective study of zanubrutinib, a Bruton tyrosine kinase inhibitor, in relapsed/refractory idiopathic multicentric Castleman disease.

International journal of hematology
2024

TAFRO Syndrome: A Syndrome or a Subtype of Multicentric Castleman Disease?

Biomedicines
2024

Acquired Hemophilia: A Rare Complication of Pediatric Idiopathic Multicentric Castleman Disease.

Pediatrics
2024

Real-practice management and treatment of idiopathic multicentric Castleman disease with siltuximab: a collection of clinical experiences.

Drugs in context
2024

A Case of Castleman's Disease with a Marked Infiltration of IgG4-Positive Cells in the Renal Interstitium.

Diagnostics (Basel, Switzerland)
2025

Diagnostic challenges of the idiopathic plasmacytic lymphadenopathy (IPL) subtype of idiopathic multicentric Castleman disease (iMCD): Factors to differentiate from IgG4-related disease.

Journal of clinical pathology
2024

When idiopathic multicentric Castleman disease meets COVID-19: a multicenter retrospective study from China.

Therapeutic advances in hematology
2024

Idiopathic multicentric Castleman disease (iMCD)-idiopathic plasmacytic lymphadenopathy: A distinct subtype of iMCD-not otherwise specified with different clinical features and better survival.

British journal of haematology
2024

Ruxolitinib for the Treatment of Refractory Idiopathic Multicentric Castleman Disease: A Case Report.

Turkish journal of haematology : official journal of Turkish Society of Haematology
2024

TAFRO syndrome is associated with anti-SSA/Ro60 antibodies, in contrast to idiopathic castleman disease.

Scientific reports
2024

Successful treatment with bortezomib in combination with dexamethasone in a middle-aged male with idiopathic multicentric Castleman's disease: A case report.

Open medicine (Warsaw, Poland)
2024

Longitudinal, natural history study reveals the disease burden of idiopathic multicentric Castleman disease.

Haematologica
2023

Therapy of Castleman's disease with siltuximab - case report and review of literature.

Klinicka onkologie : casopis Ceske a Slovenske onkologicke spolecnosti
2024

Single-cell landscape of idiopathic multicentric Castleman disease in identical twins.

Blood
2024

Immune-mediated thrombocytopenia and IL-6-mediated thrombocytosis observed in idiopathic multicentric Castleman disease.

British journal of haematology
2024

Idiopathic multicentric Castleman disease: An update in diagnosis and treatment advances.

Blood reviews
2023

Long-Term Tolerance and Efficacy of Siltuximab (Anti-IL-6) in a Young Adult with Idiopathic Multicentric Castleman Disease During COVID-19.

European journal of case reports in internal medicine
2024

Concordance between transbronchial lung cryobiopsy and surgical lung biopsy in patients with idiopathic multicentric Castleman disease: A report of four cases.

Respiratory investigation
2023

Peripheral helper-T-cell-derived CXCL13 is a crucial pathogenic factor in idiopathic multicentric Castleman disease.

Nature communications
2023

A challenging diagnosis of idiopathic multicentric Castleman disease with complex systemic presentation: A case report.

Clinical case reports
2023

Idiopathic multicentric castleman's disease mimicking immunoglobulin G4-related disease responding well to Bortezomib: a case report.

BMC nephrology
2023

Case report: A case of acute exacerbation of interstitial pneumonia associated with TAFRO syndrome.

Frontiers in medicine
2023

Symptom burden in patients with idiopathic multicentric Castleman disease and its impact on daily life: an international patient and caregiver survey.

EClinicalMedicine
2023

Transformation of HHV-8-negative idiopathic multicentric Castleman disease into diffuse large B-cell lymphoma: A case report from Nepal.

Clinical case reports
2023

Treatment consistent with idiopathic multicentric Castleman disease guidelines is associated with improved outcomes.

Blood advances
2024

Hodgkin Lymphoma-related Inflammatory Modification-displayed Castleman Disease-like Histological Features and Positron Emission Tomography/Computed Tomography Usefulness for the Differential Diagnosis.

Internal medicine (Tokyo, Japan)
2023

Rituximab-bortezomib-dexamethasone induce high response rates in iMCD in clinical practice.

British journal of haematology
2023

Expert consensus on the integrated diagnosis of idiopathic multicentric Castleman disease.

Revista espanola de patologia : publicacion oficial de la Sociedad Espanola de Anatomia Patologica y de la Sociedad Espanola de Citologia
2023

Cost-Effectiveness Analysis of Siltuximab for Australian Public Investment in the Rare Condition Idiopathic Multicentric Castleman Disease.

PharmacoEconomics - open
2023

Unmet Clinical Needs in the Management of Idiopathic Multicentric Castleman Disease: A Consensus-based Position Paper From an ad hoc Expert Panel.

HemaSphere
2023

Radiological and Pathological Features of Cyst Formation in Idiopathic Multicentric Castleman Disease.

Advances in respiratory medicine
2023

A case of idiopathic multicentric Castleman disease with pulmonary hyalinizing granuloma-like multiple pulmonary nodules.

Respiratory investigation
2023

van Rhee F, Rosenthal A, Kanhai K, et al. Siltuximab is associated with improved progression-free survival in idiopathic multicentric Castleman disease. Blood Adv. 2022;6(16):4773-4781.

Blood advances
2023

Evolution of Pulmonary Involvement in Idiopathic Multicentric Castleman Disease-Not Otherwise Specified: From Nodules to Cysts or Consolidation.

Chest
2023

Idiopathic Multicentric Castleman Disease Presenting With Hypertensive Choroidopathy: A Case Report.

Cureus
2023

Rare forms of idiopathic multicentric Castleman disease presenting with intrahepatic cholestatic jaundice successfully treated with the bortezomib-based regimen: two case reports.

Annals of hematology
2023

Idiopathic multicentric Castleman disease in an adolescent diagnosed following COVID-19 infection.

Pediatric blood &amp; cancer
2022

Case report: Importance of early and continuous tocilizumab therapy in nephrotic syndrome associated with idiopathic multicentric Castleman disease: A case series.

Frontiers in medicine
2024

From Castleman disease histopathological features to idiopathic multicentric Castleman disease: a multiparametric approach to exclude potential iMCD histopathological mimickers.

Journal of clinical pathology
2022

Treatment-resistant idiopathic multicentric Castleman disease with thrombocytopenia, anasarca, fever, reticulin fibrosis, renal dysfunction, and organomegaly managed with Janus kinase inhibitors: A case report.

Medicine
2022

CXCL13 is a predictive biomarker in idiopathic multicentric Castleman disease.

Nature communications
2023

Utility of renal biopsy in differentiating idiopathic multicentric Castleman disease from IgG4-related disease.

CEN case reports
2023

Refractory idiopathic multicentric Castleman disease responsive to sirolimus therapy.

American journal of hematology
2022

Systemic lupus erythematosus mimicking idiopathic multicentric Castleman disease: A diagnostic dilemma.

SAGE open medical case reports
2022

Idiopathic Multicentric Castleman Disease Occurring Shortly after mRNA SARS-CoV-2 Vaccine.

Vaccines
2022

Organ dysfunction, thrombotic events and malignancies in patients with idiopathic multicentric castleman disease: a population-level US health claims analysis.

Leukemia
2022

Idiopathic Multicentric Castleman Disease with Cutaneous Manifestation: Case Report.

Medicina (Kaunas, Lithuania)
2022

Idiopathic Plasmacytic Lymphadenopathy Forms an Independent Subtype of Idiopathic Multicentric Castleman Disease.

International journal of molecular sciences
2022

Idiopathic Multicentric Castleman Disease with Strikingly Elevated IgG4 Concentration in the Serum and Abundant IgG4-Positive Cells in the Tissue: A Case Report.

Diagnostics (Basel, Switzerland)
2022

How we manage idiopathic multicentric Castleman disease.

Clinical advances in hematology &amp; oncology : H&amp;O
2022

Analysis of albumin as a prognostic factor in HHV-8/HIV-negative Castleman disease from a multicenter study.

Leukemia &amp; lymphoma
2023

Idiopathic multicentric Castleman disease and associated autoimmune and autoinflammatory conditions: practical guidance for diagnosis.

Rheumatology (Oxford, England)
2022

Optimisation of anti-interleukin-6 therapy: Precision medicine through mathematical modelling.

Frontiers in immunology
2022

Daratumumab for the treatment of refractory idiopathic multicentric Castleman disease: a case report.

Annals of hematology
2022

Severe coronavirus disease 2019 in a patient with TAFRO syndrome: A case report.

Clinical infection in practice
2022

Leg-type form of idiopathic multicentric Castleman disease associated with severe lower extremity chronic venous/lymphatic disease.

EJHaem
2022

Siltuximab is associated with improved progression-free survival in idiopathic multicentric Castleman disease.

Blood advances
2022

Idiopathic multicentric Castleman disease with arteriolar endotheliopathy and secondary haemophagocytosis.

The Lancet. Haematology
2022

Candidate biomarkers for idiopathic multicentric Castleman disease.

Journal of clinical and experimental hematopathology : JCEH
2023

Psoas and Mediastinal Abscesses during Intravenous Tocilizumab Treatment in Multicentric Castleman Disease.

Internal medicine (Tokyo, Japan)
2022

A Rare Variant of Idiopathic Multicentric Castleman Disease: TAFRO Syndrome.

Turkish journal of haematology : official journal of Turkish Society of Haematology
2022

Leucine-rich a-2 glycoprotein as a potential biomarker of idiopathic multicentric Castleman disease with pulmonary involvement: a single-center case-control study from Japan.

Journal of thoracic disease
2023

TAFRO Syndrome: A Disease Requiring Immediate Medical Attention.

Internal medicine (Tokyo, Japan)
2022

The disease course of Castleman disease patients with fatal outcomes in the ACCELERATE registry.

British journal of haematology
2022

Post-transplant Complication With TAFRO Features in a Patient With Acute Myeloid Leukemia.

Cureus
2022

Increased mTORC2 pathway activation in lymph nodes of iMCD-TAFRO.

Journal of cellular and molecular medicine
2023

The lymph node transcriptome of unicentric and idiopathic multicentric Castleman disease.

Haematologica
2022

International definition of iMCD-TAFRO: future perspectives.

Journal of clinical and experimental hematopathology : JCEH
2022

Historical and pathological overview of Castleman disease.

Journal of clinical and experimental hematopathology : JCEH
2022

[Multicentric Castlemans disease. Symptoms, diagnostics and therapy].

Vnitrni lekarstvi
2022

POEMS Syndrome: Presented as Idiopathic Multicentric Castleman Disease of Plasma Cell Variant for Eight Years and Dramatic Treatment with Siltuximab Followed by Autologous Peripheral Blood Stem Cell Transplantation.

Diagnostics (Basel, Switzerland)
2022

Severe Inflammatory Idiopathic Multicentric Castleman's Disease Coexisting with Advanced Renal Cancer: A Case Report.

The Tohoku journal of experimental medicine
2022

Siltuximab-Related Favorable Clinical Outcome for a Patient Suffering from Idiopathic Multicentric Castleman Disease.

Case reports in hematology
2022

Idiopathic multicentric Castleman disease treated with siltuximab for 15 years: a case report.

Therapeutic advances in hematology
2022

Idiopathic multicentric Castleman disease with positive antiphospholipid antibody: atypical and undiagnosed autoimmune disease?

Journal of clinical and experimental hematopathology : JCEH
2022

Castleman disease and TAFRO syndrome: To improve the diagnostic consciousness is the key.

World journal of clinical cases
2022

Bone marrow findings of idiopathic Multicentric Castleman disease: A histopathologic analysis and systematic literature review.

Hematological oncology
2022

A prospective, multicenter study of bortezomib, cyclophosphamide, and dexamethasone in relapsed/refractory iMCD.

Leukemia &amp; lymphoma
2022

Concurrence of Marjolin's Ulcer in the Lower Limb in a Patient with Idiopathic Multicentric Castleman Disease: A Case Report.

Medicina (Kaunas, Lithuania)
2022

Castleman disease and TAFRO syndrome.

Annals of hematology
2022

Cutaneous Plasmacytosis and Idiopathic Multicentric Castleman Disease: A Spectrum of Disease?

The American Journal of dermatopathology
2022

Indolent T-Lymphoblastic Proliferation in Idiopathic Multicentric Castleman Disease.

Acta haematologica
2022

Multicentric Castleman disease in a DOCK8-deficient patient with Orf virus infection.

Pediatric allergy and immunology : official publication of the European Society of Pediatric Allergy and Immunology
Ver todos os 215 no EuropePMC

Associações

Organizações que acompanham esta doença — pra ter apoio e orientação

Ainda não temos associações cadastradas para Doença Castleman multicêntrica idiopática.

É de uma associação que acompanha esta doença? Fale com a gente →

Comunidades

Grupos ativos de quem convive com esta doença aqui no Raras

Ainda não existe comunidade no Raras para Doença Castleman multicêntrica idiopática

Pacientes, familiares e cuidadores se organizam em comunidades pra compartilhar experiências, fazer perguntas e se apoiar. Você pode ser o primeiro.

Tire suas dúvidas

Perguntas, dicas e experiências compartilhadas aqui na página

Participe da discussão

Faça login para postar dúvidas, compartilhar experiências e interagir com especialistas.

Fazer login

Doenças relacionadas

Doenças com sintomas parecidos — ajudam quem ainda está buscando diagnóstico

Referências e fontes

Bases de dados externas citadas neste artigo

Publicações científicas

Artigos indexados no PubMed ligados a esta doença no grafo RarasNet — título, periódico e PMID direto da fonte, sem intermediação de IA.

  1. Recovery trajectories of TAFRO syndrome: a single-center case series highlighting prolonged thrombocytopenia and anasarca.
    Immunological medicine· 2026· PMID 41866960mais citado
  2. Case Report: Endothelial-targeted bridging therapy for a TTP-like phenotype in fulminant iMCD-TAFRO.
    Frontiers in immunology· 2026· PMID 41836447mais citado
  3. Siltuximab as a first-line therapy for idiopathic multicentric Castleman disease: a retrospective analysis based on the SiMuLa study of the Italian regional network.
    Frontiers in oncology· 2026· PMID 41777649mais citado
  4. Elucidating the grading intricacies of idiopathic multicentric Castleman disease histopathology: a pathologist's perspective.
    American journal of clinical pathology· 2026· PMID 41774910mais citado
  5. Long-term safety and efficacy of filgotinib in patients with idiopathic multicentric Castleman disease: 52-week results from a Phase Ib clinical trial.
    Modern rheumatology· 2026· PMID 41711072mais citado
  6. Morphological characteristics of the renal lesion in TAFRO syndrome and POEMS syndrome: a retrospective and multicenter study.
    Clin Exp Nephrol· 2026· PMID 41975025recente
  7. Deciphering the full spectrum of Castleman diseases based on a cohort of 700 patients in a western country.
    Br J Haematol· 2026· PMID 41968947recente
  8. [The 516th case: hyperinflammatory state, acute renal dysfunction, hepatosplenomegaly with lymphadenopathy, and recurrent cerebral infarctions].
    Zhonghua Nei Ke Za Zhi· 2026· PMID 41942330recente
  9. Primary adrenal insufficiency and autoimmune thyroiditis in an adolescent with Castleman-TAFRO syndrome.
    JCEM Case Rep· 2026· PMID 41928868recente
  10. Effects of Janus kinase inhibition and interleukin 6 inhibition on serum cytokine/chemokine in idiopathic multicentric Castleman disease.
    Drug Discov Ther· 2026· PMID 41922262recente

Bases de dados e fontes oficiais

Identificadores e referências canônicas usadas para montar este verbete.

  1. ORPHA:570431(Orphanet)
  2. MONDO:0035838(MONDO)
  3. GARD:22309(GARD (NIH))
  4. Busca completa no PubMed(PubMed)
  5. Artigo Wikipedia(Wikipedia)

Dados compilados pelo RarasNet a partir de fontes abertas (Orphanet, OMIM, MONDO, PubMed/EuropePMC, ClinicalTrials.gov, DATASUS, PCDT/MS). Este conteúdo é informativo e não substitui avaliação médica.

Conteúdo mantido por Agente Raras · Médicos e pesquisadores podem colaborar

Doença Castleman multicêntrica idiopática
Compêndio · Raras BR

Doença Castleman multicêntrica idiopática

ORPHA:570431 · MONDO:0035838
Prevalência
Unknown
CID-10
D47.7 · Outras neoplasias especificadas de comportamento incerto ou desconhecido dos tecidos linfático, hematopoético e tecidos relacionados
CID-11
Ensaios
2 ativos
Início
All ages
Prevalência
0.0 (Worldwide)
MedGen
UMLS
C5197665
EuropePMC
Wikipedia
Papers 10a
DiscussaoAtiva

Nenhuma novidade ainda. O agente esta monitorando.

0membros
0novidades