Raras
Buscar doenças, sintomas, genes...
Tricotiodistrofia
ORPHA:33364CID-10 · L67.8CID-11 · EC21.1DOENÇA RARA

A tricotiodistrofia ou TTD é um grupo heterogêneo de distúrbios caracterizado por cabelos curtos e quebradiços com baixo teor de enxofre (devido a uma síntese anormal das queratinas contendo enxofre).

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Introdução

O que você precisa saber de cara

📋

A tricotiodistrofia ou TTD é um grupo heterogêneo de distúrbios caracterizado por cabelos curtos e quebradiços com baixo teor de enxofre (devido a uma síntese anormal das queratinas contendo enxofre).

Pesquisas ativas
1 ensaio
2 total registrados no ClinicalTrials.gov
Publicações científicas
518 artigos
Último publicado: 2026 Apr

Escala de raridade

CLASSIFICAÇÃO ORPHANET · BRASIL 2024
<1 / 1 000 000
Ultra-rara
<1/50k
Muito rara
1/20k
Rara
1/10k
Pouco freq.
1/5k
Incomum
1/2k
Prevalência
0.0
Worldwide
Casos conhecidos
201
pacientes catalogados
Início
Infancy
+ neonatal
🏥
SUS: Sem cobertura SUSScore: 0%
CID-10: L67.8
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Sinais e sintomas

O que aparece no corpo e com que frequência cada sintoma acontece

Partes do corpo afetadas

🧬
Pele e cabelo
27 sintomas
🧠
Neurológico
23 sintomas
👁️
Olhos
14 sintomas
😀
Face
12 sintomas
🦴
Ossos e articulações
11 sintomas
📏
Crescimento
9 sintomas

+ 70 sintomas em outras categorias

Características mais comuns

17%prev.
Mamilos de implantação baixa
Ocasional (29-5%)
17%prev.
Dismielinização cerebral
Ocasional (29-5%)
17%prev.
Neuropatia periférica
Ocasional (29-5%)
17%prev.
Maturação esquelética atrasada
Ocasional (29-5%)
17%prev.
Conjuntivite
Ocasional (29-5%)
17%prev.
Anormalidade do desenvolvimento pré-natal ou nascimento
Ocasional (29-5%)
198sintomas
Ocasional (91)
Sem dados (107)

Os sintomas variam de pessoa para pessoa. Abaixo estão as 198 características clínicas mais associadas, ordenadas por frequência.

Mamilos de implantação baixaLow-set nipples
Ocasional (29-5%)17%
Dismielinização cerebralCerebral dysmyelination
Ocasional (29-5%)17%
Neuropatia periféricaPeripheral neuropathy
Ocasional (29-5%)17%
Maturação esquelética atrasadaDelayed skeletal maturation
Ocasional (29-5%)17%
ConjuntiviteConjunctivitis
Ocasional (29-5%)17%

Linha do tempo da pesquisa

Publicações por ano — veja quando o interesse científico cresceu
Anos de pesquisa1desde 2026
Total histórico518PubMed
Últimos 10 anos169publicações
Pico202319 papers
Linha do tempo
2026Hoje · 2026🧪 1999Primeiro ensaio clínico📈 2023Ano de pico
Publicações por ano (últimos 10 anos)

Encontrou um erro ou informação desatualizada? Sugira uma correção →

Genética e causas

O que está alterado no DNA e como passa nas famílias

Genes associados

10 genes identificados com associação a esta condição. Padrão de herança: Autosomal recessive, X-linked recessive.

CARS1Cysteine--tRNA ligase, cytoplasmicDisease-causing germline mutation(s) inRestrito
FUNÇÃO

Catalyzes the ATP-dependent ligation of cysteine to tRNA(Cys)

LOCALIZAÇÃO

Cytoplasm

VIAS BIOLÓGICAS (1)
Signaling by ALK fusions and activated point mutants
MECANISMO DE DOENÇA

Microcephaly, developmental delay, and brittle hair syndrome

An autosomal recessive disorder characterized by developmental delay, motor and cognitive disabilities, brittle hair and nails, failure to thrive, and short stature.

OUTRAS DOENÇAS (3)
microcephaly, developmental delay, and brittle hair syndrometrichothiodystrophyinflammatory myofibroblastic tumor
HGNC:1493UniProt:P49589
MARS1Methionine--tRNA ligase, cytoplasmicDisease-causing germline mutation(s) inTolerante
FUNÇÃO

Catalyzes the specific attachment of an amino acid to its cognate tRNA in a 2 step reaction: the amino acid (AA) is first activated by ATP to form AA-AMP and then transferred to the acceptor end of the tRNA (PubMed:11714285). Plays a role in the synthesis of ribosomal RNA in the nucleolus (PubMed:10791971)

LOCALIZAÇÃO

Cytoplasm, cytosolNucleus, nucleolus

VIAS BIOLÓGICAS (3)
Selenoamino acid metabolismCytosolic tRNA aminoacylationTranscriptional and post-translational regulation of MITF-M expression and activity
MECANISMO DE DOENÇA

Interstitial lung and liver disease

An autosomal recessive, life-threatening disorder characterized by respiratory insufficiency and progressive liver disease with onset in infancy or early childhood. Clinical features include failure to thrive, hypotonia, intermittent lactic acidosis, aminoaciduria, hypothyroidism, interstitial lung disease, pulmonary alveolar proteinosis, anemia, and liver canalicular cholestasis, steatosis, and iron deposition.

OUTRAS DOENÇAS (4)
severe early-onset pulmonary alveolar proteinosis due to MARS deficiencyautosomal recessive spastic paraplegia type 70Charcot-Marie-Tooth disease axonal type 2Utrichothiodystrophy 9, nonphotosensitive
HGNC:6898UniProt:P56192
GTF2E2Transcription initiation factor IIE subunit betaDisease-causing germline mutation(s) inTolerante
FUNÇÃO

Recruits TFIIH to the initiation complex and stimulates the RNA polymerase II C-terminal domain kinase and DNA-dependent ATPase activities of TFIIH. Both TFIIH and TFIIE are required for promoter clearance by RNA polymerase

LOCALIZAÇÃO

Nucleus

VIAS BIOLÓGICAS (9)
RNA Polymerase II Pre-transcription EventsHIV Transcription InitiationRNA Polymerase II HIV Promoter EscapeRNA Polymerase II Promoter EscapeRNA Polymerase II Transcription Pre-Initiation And Promoter Opening
MECANISMO DE DOENÇA

Trichothiodystrophy 6, non-photosensitive

A form of trichothiodystrophy, a disease characterized by sulfur-deficient brittle hair and multisystem variable abnormalities. The spectrum of clinical features varies from mild disease with only hair involvement to severe disease with cutaneous, neurologic and profound developmental defects. Ichthyosis, intellectual and developmental disabilities, decreased fertility, abnormal characteristics at birth, ocular abnormalities, short stature, and infections are common manifestations. There are both photosensitive and non-photosensitive forms of the disorder. TTD6 patients do not manifest cutaneous photosensitivity. Inheritance pattern has been reported to be autosomal recessive.

EXPRESSÃO TECIDUAL(Ubíquo)
Linfócitos
54.5 TPM
Testículo
53.6 TPM
Fibroblastos
45.0 TPM
Ovário
42.3 TPM
Cervix Endocervix
33.6 TPM
OUTRAS DOENÇAS (2)
trichothiodystrophy 6, nonphotosensitivetrichothiodystrophy
HGNC:4651UniProt:P29084
MPLKIPM-phase-specific PLK1-interacting proteinDisease-causing germline mutation(s) inTolerante
FUNÇÃO

May play a role in maintenance of cell cycle integrity by regulating mitosis or cytokinesis

LOCALIZAÇÃO

NucleusCytoplasmCytoplasm, cytoskeleton, microtubule organizing center, centrosome

MECANISMO DE DOENÇA

Trichothiodystrophy 4, non-photosensitive

A form of trichothiodystrophy, an autosomal recessive disease characterized by sulfur-deficient brittle hair and multisystem variable abnormalities. The spectrum of clinical features varies from mild disease with only hair involvement to severe disease with cutaneous, neurologic and profound developmental defects. Ichthyosis, intellectual and developmental disabilities, decreased fertility, abnormal characteristics at birth, ocular abnormalities, short stature, and infections are common manifestations. There are both photosensitive and non-photosensitive forms of the disorder. TTD4 patients do not manifest cutaneous photosensitivity.

EXPRESSÃO TECIDUAL(Ubíquo)
Fibroblastos
11.8 TPM
Linfócitos
8.7 TPM
Tireoide
7.8 TPM
Cervix Endocervix
7.6 TPM
Cérebro - Hemisfério cerebelar
7.2 TPM
OUTRAS DOENÇAS (2)
trichothiodystrophy 4, nonphotosensitivetrichothiodystrophy
HGNC:16002UniProt:Q8TAP9
RNF113AE3 ubiquitin-protein ligase RNF113ADisease-causing germline mutation(s) inDesconhecido
FUNÇÃO

Required for pre-mRNA splicing as component of the spliceosome (PubMed:29360106, PubMed:29361316). As a component of the minor spliceosome, involved in the splicing of U12-type introns in pre-mRNAs (Probable). E3 ubiquitin-protein ligase that catalyzes the transfer of ubiquitin onto target proteins (PubMed:28978524, PubMed:29144457). Catalyzes polyubiquitination of SNRNP200/BRR2 with non-canonical 'Lys-63'-linked polyubiquitin chains (PubMed:29144457). Plays a role in DNA repair via its role in

LOCALIZAÇÃO

NucleusNucleus speckle

VIAS BIOLÓGICAS (1)
mRNA Splicing - Major Pathway
MECANISMO DE DOENÇA

Trichothiodystrophy 5, non-photosensitive

An X-linked form of trichothiodystrophy, a disease characterized by sulfur-deficient brittle hair and multisystem variable abnormalities. The spectrum of clinical features varies from mild disease with only hair involvement to severe disease with cutaneous, neurologic and profound developmental defects. Ichthyosis, intellectual and developmental disabilities, decreased fertility, abnormal characteristics at birth, ocular abnormalities, short stature, and infections are common manifestations. There are both photosensitive and non-photosensitive forms of the disorder. TTD5 features include microcephaly, profound intellectual disability, sparse brittle hair, aged appearance, short stature, facial dysmorphism, seizures, an immunoglobulin deficiency, multiple endocrine abnormalities, cerebellar hypoplasia and partial absence of the corpus callosum, in the absence of cellular photosensitivity and ichthyosis.

EXPRESSÃO TECIDUAL(Ubíquo)
Linfócitos
59.5 TPM
Baço
47.0 TPM
Cérebro - Hemisfério cerebelar
35.1 TPM
Skin Sun Exposed Lower leg
31.8 TPM
Skin Not Sun Exposed Suprapubic
30.5 TPM
OUTRAS DOENÇAS (2)
trichothiodystrophy 5, nonphotosensitivetrichothiodystrophy
HGNC:12974UniProt:O15541
ERCC3General transcription and DNA repair factor IIH helicase/translocase subunit XPBDisease-causing germline mutation(s) inTolerante
FUNÇÃO

ATP-dependent 3'-5' DNA helicase/translocase (PubMed:17466626, PubMed:27193682, PubMed:33902107, PubMed:8465201, PubMed:8663148). Binds dsDNA rather than ssDNA, unzipping it in a translocase rather than classical helicase activity (PubMed:27193682, PubMed:33902107). Component of the general transcription and DNA repair factor IIH (TFIIH) core complex (PubMed:10024882, PubMed:17466626, PubMed:8157004, PubMed:8465201). When complexed to CDK-activating kinase (CAK), involved in RNA transcription by

LOCALIZAÇÃO

Nucleus

VIAS BIOLÓGICAS (10)
RNA Polymerase II Promoter EscapeRNA Polymerase II Transcription Initiation And Promoter ClearanceRNA Polymerase II HIV Promoter EscapeTranscription of the HIV genomemRNA Capping
MECANISMO DE DOENÇA

Xeroderma pigmentosum complementation group B

An autosomal recessive pigmentary skin disorder characterized by solar hypersensitivity of the skin, high predisposition for developing cancers on areas exposed to sunlight and, in some cases, neurological abnormalities. The skin develops marked freckling and other pigmentation abnormalities. Some XP-B patients present features of Cockayne syndrome, including cachectic dwarfism, pigmentary retinopathy, ataxia, decreased nerve conduction velocities. The phenotype combining xeroderma pigmentosum and Cockayne syndrome traits is referred to as XP-CS complex.

EXPRESSÃO TECIDUAL(Ubíquo)
Cérebro - Hemisfério cerebelar
90.1 TPM
Cerebelo
88.4 TPM
Útero
71.8 TPM
Cervix Endocervix
71.5 TPM
Nervo tibial
71.4 TPM
OUTRAS DOENÇAS (5)
xeroderma pigmentosum group Btrichothiodystrophy 2, photosensitivetrichothiodystrophyxeroderma pigmentosum
HGNC:3435UniProt:P19447
ERCC2General transcription and DNA repair factor IIH helicase subunit XPDDisease-causing germline mutation(s) inTolerante
FUNÇÃO

ATP-dependent 5'-3' DNA helicase (PubMed:31253769, PubMed:8413672, PubMed:9771713). Component of the general transcription and DNA repair factor IIH (TFIIH) core complex, not absolutely essential for minimal transcription in vitro (PubMed:10024882, PubMed:17466626, PubMed:9771713). Required for transcription-coupled nucleotide excision repair (NER) of damaged DNA; recognizes damaged bases (PubMed:17466626, PubMed:23352696, PubMed:9771713). Sequestered in chromatin on UV-damaged DNA (PubMed:23352

LOCALIZAÇÃO

NucleusCytoplasm, cytoskeleton, spindle

VIAS BIOLÓGICAS (1)
Cytosolic iron-sulfur cluster assembly
MECANISMO DE DOENÇA

Xeroderma pigmentosum complementation group D

An autosomal recessive pigmentary skin disorder characterized by solar hypersensitivity of the skin, high predisposition for developing cancers on areas exposed to sunlight and, in some cases, neurological abnormalities. The skin develops marked freckling and other pigmentation abnormalities. Some XP-D patients present features of Cockayne syndrome, including cachectic dwarfism, pigmentary retinopathy, ataxia, decreased nerve conduction velocities. The phenotype combining xeroderma pigmentosum and Cockayne syndrome traits is referred to as XP-CS complex.

EXPRESSÃO TECIDUAL(Ubíquo)
Fibroblastos
40.4 TPM
Testículo
31.6 TPM
Linfócitos
20.0 TPM
Pituitária
18.6 TPM
Tireoide
17.6 TPM
OUTRAS DOENÇAS (7)
xeroderma pigmentosum group Dtrichothiodystrophy 1, photosensitivecerebrooculofacioskeletal syndrome 2xeroderma pigmentosum
HGNC:3434UniProt:P18074
GTF2H5General transcription factor IIH subunit 5Disease-causing germline mutation(s) inTolerante
FUNÇÃO

Component of the general transcription and DNA repair factor IIH (TFIIH) core complex, which is involved in general and transcription-coupled nucleotide excision repair (NER) of damaged DNA and, when complexed to CAK, in RNA transcription by RNA polymerase II. In NER, TFIIH acts by opening DNA around the lesion to allow the excision of the damaged oligonucleotide and its replacement by a new DNA fragment. In transcription, TFIIH has an essential role in transcription initiation. When the pre-ini

LOCALIZAÇÃO

NucleusCytoplasm

VIAS BIOLÓGICAS (10)
RNA Polymerase II Promoter EscapeRNA Polymerase II Transcription Initiation And Promoter ClearanceRNA Polymerase II HIV Promoter EscapeTranscription of the HIV genomemRNA Capping
MECANISMO DE DOENÇA

Trichothiodystrophy 3, photosensitive

A form of trichothiodystrophy, an autosomal recessive disease characterized by sulfur-deficient brittle hair and multisystem variable abnormalities. The spectrum of clinical features varies from mild disease with only hair involvement to severe disease with cutaneous, neurologic and profound developmental defects. Ichthyosis, intellectual and developmental disabilities, decreased fertility, abnormal characteristics at birth, ocular abnormalities, short stature, and infections are common manifestations. There are both photosensitive and non-photosensitive forms of the disorder.

EXPRESSÃO TECIDUAL(Ubíquo)
Fibroblastos
17.4 TPM
Artéria tibial
11.7 TPM
Brain Nucleus accumbens basal ganglia
11.2 TPM
Cérebro - Hemisfério cerebelar
11.0 TPM
Testículo
10.9 TPM
OUTRAS DOENÇAS (2)
trichothiodystrophy 3, photosensitivetrichothiodystrophy
HGNC:21157UniProt:Q6ZYL4
TARS1Threonine--tRNA ligase 1, cytoplasmicDisease-causing germline mutation(s) inTolerante
FUNÇÃO

Catalyzes the attachment of threonine to tRNA(Thr) in a two-step reaction: threonine is first activated by ATP to form Thr-AMP and then transferred to the acceptor end of tRNA(Thr) (PubMed:25824639, PubMed:31374204). Also edits incorrectly charged tRNA(Thr) via its editing domain, at the post-transfer stage (By similarity)

LOCALIZAÇÃO

Cytoplasm

VIAS BIOLÓGICAS (1)
Cytosolic tRNA aminoacylation
MECANISMO DE DOENÇA

Trichothiodystrophy 7, non-photosensitive

A form of trichothiodystrophy, a disease characterized by sulfur-deficient brittle hair and multisystem variable abnormalities. The spectrum of clinical features varies from mild disease with only hair involvement to severe disease with cutaneous, neurologic and profound developmental defects. Ichthyosis, intellectual and developmental disabilities, decreased fertility, abnormal characteristics at birth, ocular abnormalities, short stature, and infections are common manifestations. There are both photosensitive and non-photosensitive forms of the disorder. TTD7 patients do not manifest cutaneous photosensitivity. They have cysteine- and threonine-deficient hair with alternating light and dark 'tiger-tail' banding pattern observed under polarization microscopy. Inheritance pattern is autosomal recessive.

OUTRAS DOENÇAS (2)
trichothiodystrophy 7, nonphotosensitivetrichothiodystrophy
HGNC:11572UniProt:P26639
AARS1Alanine--tRNA ligase, cytoplasmicDisease-causing germline mutation(s) inTolerante
FUNÇÃO

Catalyzes the attachment of alanine to tRNA(Ala) in a two-step reaction: alanine is first activated by ATP to form Ala-AMP and then transferred to the acceptor end of tRNA(Ala) (PubMed:27622773, PubMed:27911835, PubMed:28493438, PubMed:33909043). Also edits incorrectly charged tRNA(Ala) via its editing domain (PubMed:27622773, PubMed:27911835, PubMed:28493438, PubMed:29273753). In presence of high levels of lactate, also acts as a protein lactyltransferase that mediates lactylation of lysine res

LOCALIZAÇÃO

CytoplasmNucleus

VIAS BIOLÓGICAS (1)
Cytosolic tRNA aminoacylation
MECANISMO DE DOENÇA

Charcot-Marie-Tooth disease, axonal, type 2N

An axonal form of Charcot-Marie-Tooth disease, a disorder of the peripheral nervous system, characterized by progressive weakness and atrophy, initially of the peroneal muscles and later of the distal muscles of the arms. Charcot-Marie-Tooth disease is classified in two main groups on the basis of electrophysiologic properties and histopathology: primary peripheral demyelinating neuropathies (designated CMT1 when they are dominantly inherited) and primary peripheral axonal neuropathies (CMT2). Neuropathies of the CMT2 group are characterized by signs of axonal degeneration in the absence of obvious myelin alterations, normal or slightly reduced nerve conduction velocities, and progressive distal muscle weakness and atrophy.

OUTRAS DOENÇAS (6)
trichothiodystrophy 8, nonphotosensitiveleukoencephalopathy, hereditary diffuse, with spheroids 2developmental and epileptic encephalopathy, 29Charcot-Marie-Tooth disease axonal type 2N
HGNC:20UniProt:P49588

Variantes genéticas (ClinVar)

190 variantes patogênicas registradas no ClinVar.

🧬 CARS1: GRCh38/hg38 11p15.5-15.4(chr11:198510-3400939)x3 ()
🧬 CARS1: NM_001014437.3(CARS1):c.2150-123G>A ()
🧬 CARS1: GRCh37/hg19 11p15.5-15.4(chr11:192764-3362853)x3 ()
🧬 CARS1: NM_001014437.3(CARS1):c.234_237delinsCAAAGGAGCTTT (p.Ser79fs) ()
🧬 CARS1: GRCh37/hg19 11p15.5-15.4(chr11:230615-8821443)x3 ()
Ver todas no ClinVar

Classificação de variantes (ClinVar)

Distribuição de 238 variantes classificadas pelo ClinVar.

131
107
Patogênica (55.0%)
VUS (45.0%)
VARIANTES MAIS SIGNIFICATIVAS
MPLKIP: NM_138701.4(MPLKIP):c.4C>T (p.Gln2Ter) [Pathogenic]
MPLKIP: NM_138701.4(MPLKIP):c.339G>A (p.Gln113=) [Pathogenic]
CIROP: NM_001354640.2(CIROP):c.1126G>A (p.Glu376Lys) [Likely pathogenic]
ERCC2: NM_000400.4(ERCC2):c.448_457del (p.Thr150fs) [Likely pathogenic]
ERCC2: NM_000400.4(ERCC2):c.1831+1G>C [Likely pathogenic]

Vias biológicas (Reactome)

35 vias biológicas associadas aos genes desta condição.

Cytosolic tRNA aminoacylation Signaling by ALK fusions and activated point mutants Selenoamino acid metabolism Transcriptional and post-translational regulation of MITF-M expression and activity mRNA Splicing - Major Pathway Formation of RNA Pol II elongation complex Formation of the Early Elongation Complex Formation of HIV elongation complex in the absence of HIV Tat Formation of the HIV-1 Early Elongation Complex RNA Pol II CTD phosphorylation and interaction with CE during HIV infection HIV Transcription Initiation RNA Polymerase II HIV Promoter Escape Transcription of the HIV genome Formation of HIV-1 elongation complex containing HIV-1 Tat Tat-mediated elongation of the HIV-1 transcript NoRC negatively regulates rRNA expression Formation of Incision Complex in GG-NER Dual Incision in GG-NER RNA Polymerase II Pre-transcription Events Formation of TC-NER Pre-Incision Complex Transcription-Coupled Nucleotide Excision Repair (TC-NER) Dual incision in TC-NER Gap-filling DNA repair synthesis and ligation in TC-NER TP53 Regulates Transcription of DNA Repair Genes mRNA Capping RNA Polymerase I Transcription Initiation RNA Polymerase I Promoter Escape RNA Polymerase II Promoter Escape RNA Polymerase II Transcription Pre-Initiation And Promoter Opening RNA Polymerase I Transcription Termination RNA Polymerase II Transcription Initiation RNA Polymerase II Transcription Elongation RNA Polymerase II Transcription Initiation And Promoter Clearance RNA Pol II CTD phosphorylation and interaction with CE Cytosolic iron-sulfur cluster assembly

Diagnóstico

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Tratamento e manejo

Remédios, cuidados de apoio e o que precisa acompanhar

Pipeline de tratamentos
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Onde tratar no SUS

Hospitais de referência no Brasil e o protocolo oficial do SUS (PCDT)

🇧🇷 Atendimento SUS — Tricotiodistrofia

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Ensaios clínicos abertos e novidades científicas recentes

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Publicações mais relevantes

Timeline de publicações
155 papers (10 anos)
#1

Twins With Pathogenic RNF113A Variant Presenting With Testicular Regression Syndrome.

JCEM case reports2026 Feb

RNF113A-related disorders are rare X-linked conditions characterized by neurodevelopmental impairment, endocrine abnormalities, and gonadal dysgenesis. To date, this condition has been documented in only a few individuals. We report 46,XY twin siblings with a hemizygous pathogenic RNF113A variant [c.901C > T, p.(Gln301*)], presenting with a remarkably consistent phenotype that includes microcephaly, corpus callosum dysgenesis, intractable epilepsy, subclinical hypothyroidism, microphallus, and bilateral testicular regression syndrome (TRS). Whole-exome sequencing identified a maternally inherited variant consistent with X-linked recessive inheritance. Despite the absence of testicular tissue, both twins had evidence of prenatal androgen exposure. Thyroid dysfunction evolved during infancy. These cases expand the phenotypic spectrum associated with pathogenic RNF113A variant and provide evidence linking this gene to TRS. They further highlight the importance of whole-exome sequencing in evaluating complex 46,XY disorders of sex development with multisystem involvement. RNF113A should be considered in the genetic evaluation of 46,XY disorder of sex development and TRS, particularly when accompanied with multisystem involvement.

#2

Novel RNF113A Variant Underlying X-Linked Trichothiodystrophy With Presumed Mosaicism in an Unaffected Mother.

American journal of medical genetics. Part A2026 Jan 14

Trichothiodystrophies (TTDs) are a group of disorders that have been characterized by sparse, brittle, and sulfur deficient hair that showed a "tiger-tail" banding pattern. Though the majority of TTDs are inherited in an autosomal recessive pattern, RNF113A related trichothiodystrophy is X-linked. RNF113A-related TTD has been associated with a non-photosensitive trichothiodystrophy, characterized by intellectual disability, microcephaly, growth restriction and failure, genital abnormalities, endocrine abnormalities, recurrent infections, and abnormal brain magnetic resonance imaging (MRI). To date, six individuals have been described with RNF113A-related TTD. Here we describe two brothers in their 30's with a novel hemizygous variant c.635G>A p.Gly212Asp in the RNF113A gene, which is not present in the tissues tested in their mother. Protein modeling suggests significant structural alteration. The brothers are the oldest known affected individuals and have features consistent with X-linked trichothiodystrophy including intellectual disability, microcephaly, growth failure, dysmorphic features, severe myopia and tiger-tail banding pattern. Absence of endocrinological abnormalities, recurrent infections, genital abnormalities, and abnormal MRI showed that these are not universal findings of RNF113A related trichothiodystrophy. Given that absence of the variant in the patients' mother, we presume the mother to have low level somatic mosaicism or germline mosaicism for the variant. This highlights the importance of genetic counseling for accurate recurrence risks and warranted reproductive testing for parents and female siblings of affected individuals with presumed de novo variants.

#3

Second Case of Type 9 Non-Photosensitive Trichothiodystrophy Caused by Homozygous Variant in the MARS1 Gene.

Pediatric dermatology2026

Trichothiodystrophy exhibits a broad clinical spectrum, and cases with an uncommon phenotype can go unnoticed, complicating the diagnosis. We present the second case of type 9 non-photosensitive trichothiodystrophy caused by a homozygous variant in the MARS1 gene. It presented with atypical features, including long hair, normal hair density of eyebrows and eyelashes, and precocious puberty.

#4

RNA Lariat-Debranching Enzyme (DBR1) Variations in Sabinas Brittle Hair Syndrome Form of Trichothiodystrophy: A Trichothiodystrophy-Causing Gene.

The Journal of investigative dermatology2026 Feb

Trichothiodystrophy (TTD), a rare, autosomal recessive, multisystem developmental disorder, is characterized by short, brittle hair with "tiger-tailed banding" on polarized microscopy. TTD is caused by variations in 10 genes: 3 nucleotide excision repair/basal transcription factor IIH genes, 4 amino acid charging transfer RNA genes, basal transcription factor IIE, RNF113A, and an RNA-splicing gene (MPLKIP/TTDN1). We performed whole-exome sequencing to identify a candidate gene in Sabinas brittle hair syndrome, a mild form of TTD. We report 5 nonphotosensitive adult patients from 3 unrelated families with a homozygous missense variation in DBR1 (p.D262Y) encoding the RNA lariat-debranching enzyme DBR1, which is involved in the removal of introns from pre-mRNA in the nucleus. Post-UV DNA cell survival was normal, indicating that DBR1 was not involved in nucleotide excision repair/transcription factor IIH. There were reduced levels of DBR1 mRNA and protein. Interacting TTDN1 protein in cells from patients with DBR1 variations was markedly reduced. Genetic analysis suggests an ancient origin of this variation. Thus, Sabinas syndrome is caused by DBR1 variations, further indicating that TTD is a disorder of RNA metabolism (RNAopathy).

#5

Trichothiodystrophy.

The British journal of dermatology2026 Mar 19

Publicações recentes

Ver todas no PubMed

📚 EuropePMC248 artigos no totalmostrando 164

2026

Twins With Pathogenic RNF113A Variant Presenting With Testicular Regression Syndrome.

JCEM case reports
2026

Novel RNF113A Variant Underlying X-Linked Trichothiodystrophy With Presumed Mosaicism in an Unaffected Mother.

American journal of medical genetics. Part A
2025

Expanding the landscape of nucleotide excision repair disorders: from discovery to therapy.

The Journal of clinical investigation
2025

Exploring the interaction between nucleotide excision repair pathways and Huntington disease: Implications for neurodegeneration and phenotypic overlap.

Parkinsonism &amp; related disorders
2025

A Case of Isolated Trichothiodystrophy.

Indian dermatology online journal
2026

DBR1 and the RNAopathy Landscape of Trichothiodystrophy.

The Journal of investigative dermatology
2025

TFIIH-p52ΔC defines a ninth xeroderma pigmentosum complementation-group XP-J and restores TFIIH stability to p8-defective trichothiodystrophy.

The Journal of clinical investigation
2025

Anti-tumorigenic properties by trichothiodystrophy mutations in melanocytic cells.

NAR cancer
2026

Second Case of Type 9 Non-Photosensitive Trichothiodystrophy Caused by Homozygous Variant in the MARS1 Gene.

Pediatric dermatology
2025

Trichothiodystrophy-causative pathogenic variants impair a cooperative action of TFIIH and DDX1 in R-loop processing.

Nucleic acids research
2025

Trichothiodystrophy: Molecular insights and mechanisms of pathogenicity.

Mutation research. Reviews in mutation research
2026

RNA Lariat-Debranching Enzyme (DBR1) Variations in Sabinas Brittle Hair Syndrome Form of Trichothiodystrophy: A Trichothiodystrophy-Causing Gene.

The Journal of investigative dermatology
2025

Amy and Friends: improving the lives of individuals affected by DNA repair disorders.

FEBS letters
2025

Clinical and molecular overlap between nucleotide excision repair (NER) disorders and DYRK1A haploinsufficiency syndrome.

Frontiers in neuroscience
2025

Insights into Natural History, Phenotypic, and Molecular Spectrum in a Large Cohort of Osteosclerotic Disorders.

Calcified tissue international
2025

Retinal dystrophy as an unusual manifestation of trichothiodystrophy.

Retinal cases &amp; brief reports
2025

Polarized Transilluminating Dermoscopy in Diagnosis of Hair Shaft Disorders.

Pediatric dermatology
2025

Trichothiodystrophy type 3 with a mutation in the GTF2H5 gene: A case report in Argentina.

Archivos argentinos de pediatria
2025

Trichothiodystrophy due to ERCC2 Variants: Uncommon Contributor to Progressive Hypomyelinating Leukodystrophy.

Molecular genetics &amp; genomic medicine
2024

Ocular features in trichothiodystrophy.

BMJ case reports
2025

Trichothiodystrophy in two siblings and utility of polarised transilluminating dermoscopy in its diagnosis.

Indian journal of dermatology, venereology and leprology
2024

Characterization of TFIIE-regulated genes by transcriptome analysis.

Turkish journal of biology = Turk biyoloji dergisi
2024

Trichothiodystrophy Identified in a Child with an Odontogenic Infection.

Journal of dentistry for children (Chicago, Ill.)
2025

Transcription-coupled repair - mechanisms of action, regulation, and associated human disorders.

FEBS letters
2024

Trichothiodystrophy, playing with optical microscope.

Anales de pediatria
2025

Anemia in patients with cartilage hair hypoplasia: a narrative review and recommendations.

Laboratory medicine
2024

RNF113A as a poor prognostic factor promotes metastasis and invasion of cervical cancer through miR197/PRP19/P38MAPK signaling pathway.

Archives of biochemistry and biophysics
2024

The face of Non-photosensitive trichothiodystrophy phenotypic spectrum: A subsequent study on paediatric population.

Molecular genetics &amp; genomic medicine
2024

Sequential post-translational modifications regulate damaged DNA-binding protein DDB2 function.

Journal of biochemistry
2024

Impaired B-cell function in ERCC2 deficiency.

Frontiers in immunology
2024

Effect of RNF113A deficiency on oxidative stress-induced NRF2 pathway.

Animal cells and systems
2024

Dupilumab treatment of trichothiodystrophy in a child.

Pediatric dermatology
2024

Generation of site-specifically labelled fluorescent human XPA to investigate DNA binding dynamics during nucleotide excision repair.

Methods (San Diego, Calif.)
2024

Congenital Ichthyosis: Current Approaches to Prenatal Diagnoses.

Fetal and pediatric pathology
2024

Tufted hair at birth: A previously undescribed peculiar sign of trichothiodystrophy.

Journal of the European Academy of Dermatology and Venereology : JEADV
2023

TFIIH central activity in nucleotide excision repair to prevent disease.

DNA repair
2023

Trichothiodystrophy-associated MPLKIP maintains DBR1 levels for proper lariat debranching and ectodermal differentiation.

EMBO molecular medicine
2024

Expanding the phenotype of GTF2E2-associated trichothiodystrophy.

Journal of the European Academy of Dermatology and Venereology : JEADV
2023

The Multifaceted Syndromic Primary Immunodeficiencies in Children.

Journal of clinical medicine
2024

The role of Transcription Factor IIH complex in nucleotide excision repair.

Environmental and molecular mutagenesis
2023

Ribosomal Dysfunction Is a Common Pathomechanism in Different Forms of Trichothiodystrophy.

Cells
2023

Activation of human RNA lariat debranching enzyme Dbr1 by binding protein TTDN1 occurs though an intrinsically disordered C-terminal domain.

The Journal of biological chemistry
2023

A functional link between lariat debranching enzyme and the intron-binding complex is defective in non-photosensitive trichothiodystrophy.

Molecular cell
2023

Severe trichothiodystrophy and cardiac malformation in a newborn carrying a novel GTF2H5 homozygous truncating variant.

Clinical genetics
2023

Novel Association of Trichothiodystrophy with Autoimmune Thyroiditis and Autoimmune Hemolytic Anemia: A Case Report.

Indian dermatology online journal
2023

RNF113A targeted by miR-197 promotes proliferation and inhibits autophagy via CXCR4/CXCL12/AKT/ERK/Beclin1 axis in cervical cancer.

Experimental cell research
2023

The nucleotide excision repair proteins through the lens of molecular dynamics simulations.

DNA repair
2023

A Rare Contiguous Gene Deletion Leading to Trichothiodystrophy Type 4 and Glutaric Aciduria Type 3.

Molecular syndromology
2023

Age or lifestyle-induced accumulation of genotoxicity is associated with a length-dependent decrease in gene expression.

iScience
2023

Mechanical anisotropy of hair affected by genetic diseases highlights structural information related to differential crosslinking in keratins.

European biophysics journal : EBJ
2022

Evaluation of immunological abnormalities in patients with rare syndromes.

Central-European journal of immunology
2023

Facial clues to the photosensitive trichothiodystrophy phenotype in childhood.

Journal of human genetics
2023

The Spectrum of MORC2-Related Disorders: A Potential Link to Cockayne Syndrome.

Pediatric neurology
2022

Analysis of the Oral Microbiome in a Patient with Cardiofaciocutaneous Syndrome and Severe Periodontal Disease: Impact of Systemic Antibiotic Therapy.

Antibiotics (Basel, Switzerland)
2023

Case for diagnosis. Hair analysis in a child with delayed psychomotor development and fragile and brittle hair: Trichothiodystrophy.

Anais brasileiros de dermatologia
2022

Solving the Riddle of Developmental Delay with Hair Microscopy: Trichothiodystrophy (MPLKIP Mutation in an Indian Child).

Neurology India
2023

TFIIH mutations can impact on translational fidelity of the ribosome.

Human molecular genetics
2022

TFIIH stabilization recovers the DNA repair and transcription dysfunctions in thermo-sensitive trichothiodystrophy.

Human mutation
2023

Peripheral neuropathies associated with DNA repair disorders.

Muscle &amp; nerve
2022

Debilitating hip degeneration in trichothiodystrophy: Association with ERCC2/XPD mutations, osteosclerosis, osteopenia, coxa valga, contractures, and osteonecrosis.

American journal of medical genetics. Part A
2022

Case report: Identification of a novel heterozygous germline ERCC2 mutation in a patient with dermatofibrosarcoma protuberans.

Frontiers in oncology
2022

A Young Boy with Brittle Hair.

Case reports in dermatology
2022

Establishment of a human induced pluripotent stem cell line, KMUGMCi003-A, from a patient with trichothiodystrophy 1 (TTD1) bearing compound heterozygous missense mutations in the ERCC2 gene.

Stem cell research
2022

Adult-Onset Neurodegeneration in Nucleotide Excision Repair Disorders (NERDND ): Time to Move Beyond the Skin.

Movement disorders : official journal of the Movement Disorder Society
2022

Trichothiodystrophy hair shafts display distinct ultrastructural features.

Experimental dermatology
2022

The Neurodevelopmental Disorders Associated Gene Rnf113a Regulates Survival and Differentiation Properties of Neural Stem Cells.

Stem cells (Dayton, Ohio)
2021

C. elegans TFIIH subunit GTF-2H5/TTDA is a non-essential transcription factor indispensable for DNA repair.

Communications biology
2021

Metronidazole-Induced Hepatitis in a Teenager With Xeroderma Pigmentosum and Trichothiodystrophy Overlap.

Pediatrics
2021

Nucleolar TFIIE plays a role in ribosomal biogenesis and performance.

Nucleic acids research
2021

Every protagonist has a sidekick: Structural aspects of human xeroderma pigmentosum-binding proteins in nucleotide excision repair.

Protein science : a publication of the Protein Society
2021

A rare ocular manifestation of trichothiodystrophy: Focal retinal dystrophy.

Journal francais d'ophtalmologie
2021

Reduced levels of prostaglandin I2 synthase: a distinctive feature of the cancer-free trichothiodystrophy.

Proceedings of the National Academy of Sciences of the United States of America
2021

Successful treatment of trichothiodystrophy with dupilumab.

Clinical and experimental dermatology
2021

Protein instability associated with AARS1 and MARS1 mutations causes trichothiodystrophy.

Human molecular genetics
2021

Expansion of the clinical and molecular spectrum of an XPD-related disorder linked to biallelic mutations in ERCC2 gene.

Clinical genetics
2021

A novel MPLKIP-variant in three Finnish patients with non-photosensitive trichothiodystrophy type 4.

American journal of medical genetics. Part A
2021

Novel ERCC2 variant in trichothiodystrophy infant: the first case report in China.

BMC pediatrics
2021

Mutation in the ERCC2 gene identified in a Chinese trichothiodystrophy patient.

The Journal of dermatology
2021

hiPSC-Derived Epidermal Keratinocytes from Ichthyosis Patients Show Altered Expression of Cornification Markers.

International journal of molecular sciences
2021

Hair follicle dystrophy in a litter of domestic cats resembling lanceolate hair mutant mice.

Veterinary dermatology
2021

Glomerular hair sign: New trichoscopic finding in a patient with trichothiodystrophy.

Dermatologic therapy
2020

Trichothiodystrophy type 4 in an Indian family.

American journal of medical genetics. Part A
2020

TTDA inhibited apoptosis by regulating the p53-Bax/Bcl2 axis in glioma.

Experimental neurology
2022

Malar rash in a young child with neurodevelopmental delay: a quiz.

Archives of disease in childhood. Education and practice edition
2020

The X-linked trichothiodystrophy-causing gene RNF113A links the spliceosome to cell survival upon DNA damage.

Nature communications
2020

Dysregulation of LXR responsive genes contribute to ichthyosis in trichothiodystrophy.

Journal of dermatological science
2020

Hair abnormality in Netherton syndrome observed under polarized light microscopy.

Journal of the American Academy of Dermatology
2020

Drosophila as a Model Organism to Understand the Effects during Development of TFIIH-Related Human Diseases.

International journal of molecular sciences
2020

Abnormal Newborn Screening Follow-up for Severe Combined Immunodeficiency in an Amish Cohort with Cartilage-Hair Hypoplasia.

Journal of clinical immunology
2020

A novel truncating variant in ring finger protein 113A (RNF113A) confirms the association of this gene with X-linked trichothiodystrophy.

American journal of medical genetics. Part A
2020

ERCC2 mutations in two siblings with a severe trichothiodystrophy phenotype.

Journal of the European Academy of Dermatology and Venereology : JEADV
2020

Second report of RING finger protein 113A (RNF113A) involvement in a Mendelian disorder.

American journal of medical genetics. Part A
2019

Trichothiodystrophy and Chiari malformation type I in a child: more than a coincidence?

European journal of dermatology : EJD
2019

Nucleotide excision repair genes shaping embryonic development.

Open biology
2019

Signaling Pathways, Chemical and Biological Modulators of Nucleotide Excision Repair: The Faithful Shield against UV Genotoxicity.

Oxidative medicine and cellular longevity
2019

Bi-allelic TARS Mutations Are Associated with Brittle Hair Phenotype.

American journal of human genetics
2019

XPD/ERCC2 mutations interfere in cellular responses to oxidative stress.

Mutagenesis
2019

Genetic Hair Disorders: A Review.

Dermatology and therapy
2019

Intersections between transcription-coupled repair and alkylation damage reversal.

DNA repair
2019

Novel ERCC2 mutation in two siblings with trichothiodystrophy.

Pediatric dermatology
2019

Nucleolar and Ribosomal Dysfunction-A Common Pathomechanism in Childhood Progerias?

Cells
2019

Transcription preinitiation complex structure and dynamics provide insight into genetic diseases.

Nature structural &amp; molecular biology
2019

TFIIE orchestrates the recruitment of the TFIIH kinase module at promoter before release during transcription.

Nature communications
2020

Heterogeneity and overlaps in nucleotide excision repair disorders.

Clinical genetics
2019

TFIIH: A multi-subunit complex at the cross-roads of transcription and DNA repair.

Advances in protein chemistry and structural biology
2018

Acquired trichorrhexis nodosa: how to diagnose it?

Dermatology online journal
2018

A homozygous G insertion in MPLKIP leads to TTDN1 with the hypergonadotropic hypogonadism symptom.

BMC medical genetics
2018

PIBIDS syndrome in two Brazilian siblings.

BMJ case reports
2019

A case of severe trichothiodystrophy 3 in a neonate due to mutation in the GTF2H5 gene: Clinical report.

European journal of medical genetics
2019

Mortality-associated immunological abnormalities in trichothiodystrophy: correlation of reduced levels of immunoglobulin and neutrophils with poor patient survival.

British journal of haematology
2018

Trichothiodystrophy: a case report of childhood glaucoma associated with non-acquired systemic disease.

Arquivos brasileiros de oftalmologia
2018

Trichoscopy in Hair Shaft Disorders.

Dermatologic clinics
2018

Small molecule-based targeting of TTD-A dimerization to control TFIIH transcriptional activity represents a potential strategy for anticancer therapy.

The Journal of biological chemistry
2018

Solar UV damage to cellular DNA: from mechanisms to biological effects.

Photochemical &amp; photobiological sciences : Official journal of the European Photochemistry Association and the European Society for Photobiology
2018

Trichothiodystrophy without Associated Neuroectodermal Features in Two Siblings.

International journal of trichology
2018

The First Reported Case of Trichothiodystrophy in Hungary: A Young Male Patient with Mutations in the ERCC2 Gene.

Acta dermatovenerologica Croatica : ADC
2018

Do you know this syndrome? Ichthyosis associated with neurological condition and alteration of hairs.

Anais brasileiros de dermatologia
2018

Hypomyelinating disorders in China: The clinical and genetic heterogeneity in 119 patients.

PloS one
2018

Novel contiguous gene deletion in peruvian girl with Trichothiodystrophy type 4 and glutaric aciduria type 3.

European journal of medical genetics
2018

Actual state of knowledge in the field of diseases related with defective nucleotide excision repair.

Life sciences
2018

Structural Basis for S100B Interaction with its Target Proteins.

Journal of molecular and genetic medicine : an international journal of biomedical research
2017

A ubiquitin-dependent signalling axis specific for ALKBH-mediated DNA dealkylation repair.

Nature
2017

The intricate network between the p34 and p44 subunits is central to the activity of the transcription/DNA repair factor TFIIH.

Nucleic acids research
2017

Trichothiodystrophy causative TFIIEβ mutation affects transcription in highly differentiated tissue.

Human molecular genetics
2018

Polarized transilluminating dermoscopy: Bedside trichoscopic diagnosis of trichothiodystrophy.

Pediatric dermatology
2017

Hair Loss: Common Causes and Treatment.

American family physician
2017

Updated strategies for the management, pathogenesis and molecular genetics of different forms of ichthyosis syndromes with prominent hair abnormalities.

Archives of dermatological research
2017

The cryo-electron microscopy structure of human transcription factor IIH.

Nature
2018

Trichothiodystrophy, complementation group A complicated with squamous cell carcinoma.

Journal of the European Academy of Dermatology and Venereology : JEADV
2017

Trichorrhexis nodosa due to repetitive trivial trauma.

Indian journal of dermatology, venereology and leprology
2017

Targeted Apoptosis of Senescent Cells Restores Tissue Homeostasis in Response to Chemotoxicity and Aging.

Cell
2017

Xeroderma Pigmentosum with Severe Neurological Manifestations/De Sanctis-Cacchione Syndrome and a Novel XPC Mutation.

Case reports in medicine
2017

Role of Cwc24 in the First Catalytic Step of Splicing and Fidelity of 5' Splice Site Selection.

Molecular and cellular biology
2016

Mutations in the ERCC2 (XPD) gene associated with severe fetal ichthyosis and dysmorphic features.

Prenatal diagnosis
2016

Analysis of Drosophila p8 and p52 mutants reveals distinct roles for the maintenance of TFIIH stability and male germ cell differentiation.

Open biology
2017

Breaking the cycle of hair breakage: pearls for the management of acquired trichorrhexis nodosa.

The Journal of dermatological treatment
2016

Understanding photodermatoses associated with defective DNA repair: Photosensitive syndromes without associated cancer predisposition.

Journal of the American Academy of Dermatology
2016

[Advance in research on causative genes of xeroderma pigmentosum and related diseases].

Zhonghua yi xue yi chuan xue za zhi = Zhonghua yixue yichuanxue zazhi = Chinese journal of medical genetics
2017

Brittle Hair, Photosensitivity, Brain Hypomyelination and Immunodeficiency: Clues to Trichothiodystrophy.

Indian journal of pediatrics
2016

Mechanisms of interstrand DNA crosslink repair and human disorders.

Genes and environment : the official journal of the Japanese Environmental Mutagen Society
2016

Male fertility and skin diseases.

Reviews in endocrine &amp; metabolic disorders
2016

Nucleotide Excision Repair and Transcriptional Regulation: TFIIH and Beyond.

Annual review of biochemistry
2016

GTF2E2 Mutations Destabilize the General Transcription Factor Complex TFIIE in Individuals with DNA Repair-Proficient Trichothiodystrophy.

American journal of human genetics
2016

Inherited ichthyosis: Syndromic forms.

The Journal of dermatology
2016

Identifying Mutations of the Tetratricopeptide Repeat Domain 37 (TTC37) Gene in Infants With Intractable Diarrhea and a Comparison of Asian and Non-Asian Phenotype and Genotype: A Global Case-report Study of a Well-Defined Syndrome With Immunodeficiency.

Medicine
2016

Ocular manifestations of genetic skin disorders.

Clinics in dermatology
2016

Mitral regurgitation as a phenotypic manifestation of nonphotosensitive trichothiodystrophy due to a splice variant in MPLKIP.

BMC medical genetics
2015

Short stature with congenital ichthyosis.

BMJ case reports
2015

Developmental Delays, Fragile Hair, and Ichthyosis Since Infancy.

Pediatric dermatology
2016

Photosensitive form of trichothiodystrophy associated with a novel mutation in the XPD gene.

Photodermatology, photoimmunology &amp; photomedicine
2015

A novel mutation in the C7orf11 gene causes nonphotosensitive trichothiodystrophy in a multiplex highly consanguineous kindred.

European journal of medical genetics
2015

Collodion Baby with TGM1 gene mutation.

International medical case reports journal
2015

Architecture of the Human and Yeast General Transcription and DNA Repair Factor TFIIH.

Molecular cell
2015

Genome Instability in Development and Aging: Insights from Nucleotide Excision Repair in Humans, Mice, and Worms.

Biomolecules
2016

Trichorrhexis nodosa: a distinctive presentation after tumour necrosis factor-α inhibitor therapy.

Clinical and experimental dermatology
2016

DNA Repair Dysfunction and Neurodegeneration: Lessons From Rare Pediatric Disorders.

Journal of child neurology
2015

Defective Hfp-dependent transcriptional repression of dMYC is fundamental to tissue overgrowth in Drosophila XPB models.

Nature communications
2015

Trichoscopic Hair Evaluation in Patients with Ectodermal Dysplasia.

The Journal of pediatrics
2015

Constructive rescue of TFIIH instability by an alternative isoform of XPD derived from a mutated XPD allele in mild but not severe XP-D/CS.

Journal of human genetics
2015

XPB: An unconventional SF2 DNA helicase.

Progress in biophysics and molecular biology
2015

TFIIH subunit alterations causing xeroderma pigmentosum and trichothiodystrophy specifically disturb several steps during transcription.

American journal of human genetics
2015

A novel X-linked trichothiodystrophy associated with a nonsense mutation in RNF113A.

Journal of medical genetics
2014

Pollitt syndrome patients carry mutation in TTDN1.

Meta gene
2015

TFIIH-dependent MMP-1 overexpression in trichothiodystrophy leads to extracellular matrix alterations in patient skin.

Proceedings of the National Academy of Sciences of the United States of America
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Referências e fontes

Bases de dados externas citadas neste artigo

Publicações científicas

Artigos indexados no PubMed ligados a esta doença no grafo RarasNet — título, periódico e PMID direto da fonte, sem intermediação de IA.

  1. Twins With Pathogenic RNF113A Variant Presenting With Testicular Regression Syndrome.
    JCEM case reports· 2026· PMID 41684880mais citado
  2. Novel RNF113A Variant Underlying X-Linked Trichothiodystrophy With Presumed Mosaicism in an Unaffected Mother.
    American journal of medical genetics. Part A· 2026· PMID 41531333mais citado
  3. Second Case of Type 9 Non-Photosensitive Trichothiodystrophy Caused by Homozygous Variant&#xa0;in&#xa0;the&#xa0;MARS1 Gene.
    Pediatric dermatology· 2026· PMID 40820264mais citado
  4. RNA Lariat-Debranching Enzyme (DBR1) Variations in Sabinas Brittle Hair Syndrome Form of Trichothiodystrophy: A Trichothiodystrophy-Causing Gene.
    The Journal of investigative dermatology· 2026· PMID 40683339mais citado
  5. Trichothiodystrophy.
    The British journal of dermatology· 2026· PMID 41365819mais citado
  6. Dupilumab for Trichothiodystrophy-Case Report and Review of the Literature.
    Clin Case Rep· 2026· PMID 41948753recente
  7. The role of transcription-coupled nucleotide excision repair (TC-NER) during mammalian forebrain development.
    Dev Biol· 2026· PMID 41921730recente
  8. Integrating Structural, Biochemical, and Cellular Perspectives on the TFIIH Helicases XPB and XPD.
    Biomolecules· 2026· PMID 41897370recente

Bases de dados e fontes oficiais

Identificadores e referências canônicas usadas para montar este verbete.

  1. ORPHA:33364(Orphanet)
  2. MONDO:0018053(MONDO)
  3. GARD:12109(GARD (NIH))
  4. Variantes catalogadas(ClinVar)
  5. Busca completa no PubMed(PubMed)
  6. Q3539030(Wikidata)

Dados compilados pelo RarasNet a partir de fontes abertas (Orphanet, OMIM, MONDO, PubMed/EuropePMC, ClinicalTrials.gov, DATASUS, PCDT/MS). Este conteúdo é informativo e não substitui avaliação médica.

Conteúdo mantido por Agente Raras · Médicos e pesquisadores podem colaborar

Tricotiodistrofia
Compêndio · Raras BR

Tricotiodistrofia

ORPHA:33364 · MONDO:0018053
Prevalência
<1 / 1 000 000
Casos
201 casos conhecidos
Herança
Autosomal recessive, X-linked recessive
CID-10
L67.8 · Outras anormalidades da cor e do pedículo dos cabelos ou pêlos
CID-11
Ensaios
1 ativos
Início
Infancy, Neonatal
Prevalência
0.0 (Worldwide)
MedGen
UMLS
C0740342
EuropePMC
Wikidata
Papers 10a
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