Raras
Buscar doenças, sintomas, genes...
Síndrome Waardenburg
ORPHA:3440CID-10 · E70.3CID-11 · EC23.2YDOENÇA RARA

Transtorno caracterizado por vários graus de surdez e pequenos defeitos nas estruturas decorrentes da crista neural, incluindo anomalias de pigmentação dos olhos, cabelos e pele. A WS é classificada em quatro fenótipos clínicos e genéticos.

Mantido por Agente Raras·Colaborar como especialista →

Introdução

O que você precisa saber de cara

📋

Transtorno caracterizado por vários graus de surdez e pequenos defeitos nas estruturas decorrentes da crista neural, incluindo anomalias de pigmentação dos olhos, cabelos e pele. A WS é classificada em quatro fenótipos clínicos e genéticos.

Pesquisas ativas
1 ensaio
2 total registrados no ClinicalTrials.gov
Publicações científicas
907 artigos
Último publicado: 2026 Apr 10

Escala de raridade

CLASSIFICAÇÃO ORPHANET · BRASIL 2024
1-9 / 100 000
Ultra-rara
<1/50k
Muito rara
1/20k
Rara
1/10k
Pouco freq.
1/5k
Incomum
1/2k
Prevalência
1.74
United States
Início
Infancy
+ neonatal
🏥
SUS: Cobertura mínimaScore: 15%
CID-10: E70.3
🇧🇷Dados SUS / DATASUS
PROCEDIMENTOS SIGTAP (6)
0202010279
Dosagem de aminoácidos (erros inatos)metabolic_test
0202010295
Dosagem de ácidos orgânicos na urinagenetic_test
0202010490
Teste de triagem para erros inatos do metabolismonewborn_screening
0202010694
Sequenciamento completo do exoma (WES)rehabilitation
0202080013
Teste do pezinho (triagem neonatal)
0301070040
Atendimento em reabilitação — doenças raras
Você se identifica com essa condição?
O Raras está aqui pra te apoiar — com ou sem diagnóstico

Encontrou um erro ou informação desatualizada? Sugira uma correção →

Entender a doença

Do básico ao detalhe, leia no seu ritmo

Preparando trilha educativa...

Sinais e sintomas

O que aparece no corpo e com que frequência cada sintoma acontece

Partes do corpo afetadas

😀
Face
18 sintomas
🦴
Ossos e articulações
14 sintomas
👁️
Olhos
13 sintomas
🧠
Neurológico
12 sintomas
🫃
Digestivo
9 sintomas
🧬
Pele e cabelo
8 sintomas

+ 31 sintomas em outras categorias

Características mais comuns

90%prev.
Manchas cutâneas hipopigmentadas
Muito frequente (99-80%)
90%prev.
Hipopigmentação do cabelo
Muito frequente (99-80%)
90%prev.
Dorso nasal proeminente
Muito frequente (99-80%)
90%prev.
Heterocromia da íris
Muito frequente (99-80%)
90%prev.
Sinofris
Muito frequente (99-80%)
90%prev.
Deficiência auditiva
Muito frequente (99-80%)
125sintomas
Muito frequente (9)
Frequente (8)
Ocasional (15)
Sem dados (93)

Os sintomas variam de pessoa para pessoa. Abaixo estão as 125 características clínicas mais associadas, ordenadas por frequência.

Manchas cutâneas hipopigmentadasHypopigmented skin patches
Muito frequente (99-80%)90%
Hipopigmentação do cabeloHypopigmentation of hair
Muito frequente (99-80%)90%
Dorso nasal proeminenteProminent nasal bridge
Muito frequente (99-80%)90%
Heterocromia da írisHeterochromia iridis
Muito frequente (99-80%)90%
SinofrisSynophrys
Muito frequente (99-80%)90%

Linha do tempo da pesquisa

Publicações por ano — veja quando o interesse científico cresceu
Anos de pesquisa1desde 2026
Total histórico907PubMed
Últimos 10 anos200publicações
Pico202139 papers
Linha do tempo
2026Hoje · 2026🧪 2015Primeiro ensaio clínico📈 2021Ano de pico
Publicações por ano (últimos 10 anos)

Encontrou um erro ou informação desatualizada? Sugira uma correção →

Genética e causas

O que está alterado no DNA e como passa nas famílias

Genes associados

8 genes identificados com associação a esta condição. Padrão de herança: Autosomal dominant, Autosomal recessive.

MITFMicrophthalmia-associated transcription factorDisease-causing germline mutation(s) inAltamente restrito
FUNÇÃO

Transcription factor that acts as a master regulator of melanocyte survival and differentiation as well as melanosome biogenesis (PubMed:10587587, PubMed:22647378, PubMed:27889061, PubMed:9647758). Binds to M-boxes (5'-TCATGTG-3') and symmetrical DNA sequences (E-boxes) (5'-CACGTG-3') found in the promoter of pigmentation genes, such as tyrosinase (TYR) (PubMed:10587587, PubMed:22647378, PubMed:27889061, PubMed:9647758). Involved in the cellular response to amino acid availability by acting down

LOCALIZAÇÃO

NucleusCytoplasmLysosome membrane

VIAS BIOLÓGICAS (2)
Transcriptional and post-translational regulation of MITF-M expression and activitySUMOylation of transcription factors
MECANISMO DE DOENÇA

Waardenburg syndrome 2A

WS2 is a genetically heterogeneous, autosomal dominant disorder characterized by sensorineural deafness, pigmentary disturbances, and absence of dystopia canthorum. The frequency of deafness is higher in WS2 than in WS1.

EXPRESSÃO TECIDUAL(Ubíquo)
Cervix Ectocervix
70.8 TPM
Cervix Endocervix
58.0 TPM
Útero
57.6 TPM
Músculo esquelético
25.9 TPM
Esôfago - Muscular
24.4 TPM
OUTRAS DOENÇAS (9)
Waardenburg syndrome type 2ATietz syndromecoloboma, osteopetrosis, microphthalmia, macrocephaly, albinism, and deafnesspapillary renal cell carcinoma
HGNC:7105UniProt:O75030
SNAI2Zinc finger protein SNAI2Candidate gene tested inAltamente restrito
FUNÇÃO

Transcriptional repressor that modulates both activator-dependent and basal transcription. Involved in the generation and migration of neural crest cells. Plays a role in mediating RAF1-induced transcriptional repression of the TJ protein, occludin (OCLN) and subsequent oncogenic transformation of epithelial cells (By similarity). Represses BRCA2 expression by binding to its E2-box-containing silencer and recruiting CTBP1 and HDAC1 in breast cells. In epidermal keratinocytes, binds to the E-box

LOCALIZAÇÃO

NucleusCytoplasm

VIAS BIOLÓGICAS (3)
Regulation of PTEN gene transcriptionNegative Regulation of CDH1 Gene TranscriptionTranscriptional and post-translational regulation of MITF-M expression and activity
MECANISMO DE DOENÇA

Waardenburg syndrome 2D

WS2 is a genetically heterogeneous, autosomal dominant disorder characterized by sensorineural deafness, pigmentary disturbances, and absence of dystopia canthorum. The frequency of deafness is higher in WS2 than in WS1.

EXPRESSÃO TECIDUAL(Ubíquo)
Fibroblastos
224.3 TPM
Cervix Ectocervix
98.7 TPM
Vagina
86.7 TPM
Cervix Endocervix
79.2 TPM
Fallopian Tube
70.9 TPM
OUTRAS DOENÇAS (2)
piebaldismWaardenburg syndrome type 2
HGNC:11094UniProt:O43623
TYRTyrosinaseCandidate gene tested inTolerante
FUNÇÃO

This is a copper-containing oxidase that functions in the formation of pigments such as melanins and other polyphenolic compounds. Catalyzes the initial and rate limiting step in the cascade of reactions leading to melanin production from tyrosine (By similarity). In addition to hydroxylating tyrosine to DOPA (3,4-dihydroxyphenylalanine), also catalyzes the oxidation of DOPA to DOPA-quinone, and possibly the oxidation of DHI (5,6-dihydroxyindole) to indole-5,6 quinone (PubMed:28661582)

LOCALIZAÇÃO

Melanosome membraneMelanosome

VIAS BIOLÓGICAS (2)
Melanin biosynthesisRegulation of MITF-M-dependent genes involved in pigmentation
MECANISMO DE DOENÇA

Albinism, oculocutaneous, 1A

An autosomal recessive disorder in which the biosynthesis of melanin pigment is absent in skin, hair, and eyes. It is characterized by complete lack of tyrosinase activity due to production of an inactive enzyme. Patients present with a life-long absence of melanin pigment after birth, and manifest increased sensitivity to ultraviolet radiation with predisposition to skin cancer. Visual anomalies include decreased acuity, nystagmus, strabismus and photophobia.

EXPRESSÃO TECIDUAL(Tecido-específico)
Skin Sun Exposed Lower leg
7.7 TPM
Skin Not Sun Exposed Suprapubic
6.6 TPM
Aorta
0.1 TPM
Testículo
0.1 TPM
Glândula salivar
0.1 TPM
OUTRAS DOENÇAS (5)
oculocutaneous albinism type 1Boculocutaneous albinism type 1Aminimal pigment oculocutaneous albinism type 1Waardenburg syndrome type 2
HGNC:12442UniProt:P14679
KITLGKit ligandDisease-causing germline mutation(s) inRestrito
FUNÇÃO

Ligand for the receptor-type protein-tyrosine kinase KIT. Plays an essential role in the regulation of cell survival and proliferation, hematopoiesis, stem cell maintenance, gametogenesis, mast cell development, migration and function, and in melanogenesis. KITLG/SCF binding can activate several signaling pathways. Promotes phosphorylation of PIK3R1, the regulatory subunit of phosphatidylinositol 3-kinase, and subsequent activation of the kinase AKT1. KITLG/SCF and KIT also transmit signals via

LOCALIZAÇÃO

Cell membraneCytoplasmCytoplasm, cytoskeletonCell projection, lamellipodiumCell projection, filopodiumSecreted

VIAS BIOLÓGICAS (1)
Signaling by SCF-KIT
MECANISMO DE DOENÇA

Hyperpigmentation with or without hypopigmentation, familial progressive

A disorder characterized by hyperpigmented patches in the skin, present in early infancy and increasing in size and number with age. Hyperpigmentation has variable intensity, and sometimes is associated with cafe-au-lait macules and larger hypopigmented ash-leaf macules.

EXPRESSÃO TECIDUAL(Ubíquo)
Fibroblastos
65.5 TPM
Esôfago - Muscular
42.9 TPM
Cólon sigmoide
35.5 TPM
Esôfago - Junção
34.5 TPM
Pulmão
33.7 TPM
OUTRAS DOENÇAS (8)
hyperpigmentation with or without hypopigmentation, familial progressiveWaardenburg syndrome, IIa 2Fautosomal dominant nonsyndromic hearing loss 69familial progressive hyperpigmentation
HGNC:6343UniProt:P21583
PAX3Paired box protein Pax-3Disease-causing germline mutation(s) inAltamente restrito
FUNÇÃO

Transcription factor that may regulate cell proliferation, migration and apoptosis. Involved in neural development and myogenesis. Transcriptional activator of MITF, acting synergistically with SOX10 (PubMed:21965087)

LOCALIZAÇÃO

Nucleus

VIAS BIOLÓGICAS (2)
Specification of the neural plate borderTranscriptional and post-translational regulation of MITF-M expression and activity
MECANISMO DE DOENÇA

Waardenburg syndrome 1

WS1 is an autosomal dominant disorder characterized by non-progressive sensorineural deafness, pigmentary disturbances such as frontal white blaze of hair, heterochromia of irides, white eyelashes, leukoderma, and wide bridge of nose owing to lateral displacement of the inner canthus of each eye (dystopia canthorum). WS1 shows variable clinical expression and some affected individuals do not manifest hearing impairment or iris pigmentation disturbances. Dystopia canthorum is the most consistent sign and is found in 98% of the patients.

EXPRESSÃO TECIDUAL(Baixa expressão)
Glândula salivar
4.6 TPM
Cerebelo
4.0 TPM
Cérebro - Hemisfério cerebelar
2.3 TPM
Skin Not Sun Exposed Suprapubic
2.3 TPM
Testículo
2.1 TPM
OUTRAS DOENÇAS (4)
Waardenburg syndrome type 1alveolar rhabdomyosarcomaWaardenburg syndrome type 3craniofacial-deafness-hand syndrome
HGNC:8617UniProt:P23760
EDNRBEndothelin receptor type BDisease-causing germline mutation(s) inRestrito
FUNÇÃO

Non-specific receptor for endothelin 1, 2, and 3. Mediates its action by association with G proteins that activate a phosphatidylinositol-calcium second messenger system

LOCALIZAÇÃO

Cell membrane

VIAS BIOLÓGICAS (3)
G alpha (q) signalling eventsPeptide ligand-binding receptorsTranscriptional and post-translational regulation of MITF-M expression and activity
MECANISMO DE DOENÇA

Waardenburg syndrome 4A

A disorder characterized by the association of Waardenburg features (depigmentation and deafness) with the absence of enteric ganglia in the distal part of the intestine (Hirschsprung disease).

EXPRESSÃO TECIDUAL(Ubíquo)
Adipose Visceral Omentum
73.2 TPM
Pulmão
65.4 TPM
Tecido adiposo
60.6 TPM
Brain Caudate basal ganglia
48.8 TPM
Mama
45.5 TPM
OUTRAS DOENÇAS (6)
Waardenburg syndrome type 4AABCD syndromeWaardenburg syndrome type 2Waardenburg-Shah syndrome
HGNC:3180UniProt:P24530
SOX10Transcription factor SOX-10Disease-causing germline mutation(s) inAltamente restrito
FUNÇÃO

Transcription factor that plays a central role in developing and mature glia (By similarity). Specifically activates expression of myelin genes, during oligodendrocyte (OL) maturation, such as DUSP15 and MYRF, thereby playing a central role in oligodendrocyte maturation and CNS myelination (By similarity). Once induced, MYRF cooperates with SOX10 to implement the myelination program (By similarity). Transcriptional activator of MITF, acting synergistically with PAX3 (PubMed:21965087). Transcript

LOCALIZAÇÃO

CytoplasmNucleusMitochondrion outer membrane

VIAS BIOLÓGICAS (4)
EGR2 and SOX10-mediated initiation of Schwann cell myelinationRegulation of CDH19 Expression and FunctionTranscriptional and post-translational regulation of MITF-M expression and activityRegulation of MITF-M-dependent genes involved in pigmentation
MECANISMO DE DOENÇA

Waardenburg syndrome 2E

An autosomal dominant auditory-pigmentary disorder characterized by sensorineural deafness, pigmentary disturbances of the hair, skin and eyes, and absence of dystopia canthorum which is the lateral displacement of the inner canthus of each eye. Individuals with WS2E may have neurologic abnormalities, including mental impairment, myelination defects, and ataxia. Some patients can manifest features of Kallmann syndrome.

OUTRAS DOENÇAS (6)
Waardenburg syndrome type 4CWaardenburg syndrome type 2EPCWH syndromeKallmann syndrome
HGNC:11190UniProt:P56693
EDN3Endothelin-3Disease-causing germline mutation(s) inModerado
FUNÇÃO

Endothelins are endothelium-derived vasoconstrictor peptides

LOCALIZAÇÃO

Secreted

VIAS BIOLÓGICAS (3)
G alpha (q) signalling eventsPeptide ligand-binding receptorsTranscriptional and post-translational regulation of MITF-M expression and activity
MECANISMO DE DOENÇA

Hirschsprung disease 4

A disorder of neural crest development characterized by absence of enteric ganglia along a variable length of the intestine. It is the most common cause of congenital intestinal obstruction. Early symptoms range from complete acute neonatal obstruction, characterized by vomiting, abdominal distention and failure to pass stool, to chronic constipation in the older child.

EXPRESSÃO TECIDUAL(Ubíquo)
Vagina
141.1 TPM
Tireoide
34.8 TPM
Glândula salivar
26.3 TPM
Esôfago - Mucosa
24.2 TPM
Intestino delgado
19.7 TPM
OUTRAS DOENÇAS (5)
Waardenburg syndrome type 4BWaardenburg-Shah syndromecentral hypoventilation syndrome, congenital, 1, with or without Hirschsprung diseaseHirschsprung disease
HGNC:3178UniProt:P14138

Variantes genéticas (ClinVar)

781 variantes patogênicas registradas no ClinVar.

🧬 MITF: NM_001354604.2(MITF):c.1354del (p.Asp452fs) ()
🧬 MITF: NM_001354604.2(MITF):c.881-2A>G ()
🧬 MITF: NM_001354604.2(MITF):c.913_914del (p.Ala305fs) ()
🧬 MITF: NM_001354604.2(MITF):c.426C>G (p.Tyr142Ter) ()
🧬 MITF: NM_001354604.2(MITF):c.1327_1328insG (p.Thr443fs) ()
Ver todas no ClinVar

Classificação de variantes (ClinVar)

Distribuição de 1,460 variantes classificadas pelo ClinVar.

73
657
730
Patogênica (5.0%)
VUS (45.0%)
Benigna (50.0%)
VARIANTES MAIS SIGNIFICATIVAS
MITF: NM_001354604.2(MITF):c.1354del (p.Asp452fs) [Pathogenic]
MITF: NM_001354604.2(MITF):c.1093C>G (p.Gln365Glu) [Uncertain significance]
MITF: NM_001354604.2(MITF):c.661A>G (p.Met221Val) [Uncertain significance]
MITF: NM_001354604.2(MITF):c.704C>T (p.Ser235Leu) [Uncertain significance]
MITF: NM_001354604.2(MITF):c.532C>G (p.Pro178Ala) [Uncertain significance]

Diagnóstico

Os sinais que médicos procuram e os exames que confirmam

Carregando...

Tratamento e manejo

Remédios, cuidados de apoio e o que precisa acompanhar

Pipeline de tratamentos
Pipeline regulatório — de medicamentos já aprovados a drogas em pesquisa exploratória.
·Pré-clínico2
Medicamentos catalogadosEnsaios clínicos· 0 medicamentos · 2 ensaios
Carregando informações de tratamento...

Onde tratar no SUS

Hospitais de referência no Brasil e o protocolo oficial do SUS (PCDT)

🇧🇷 Atendimento SUS — Síndrome Waardenburg

🗺️

Selecione um estado ou use sua localização para ver resultados.

Dados de DATASUS/CNES, SBGM, ABNeuro e Ministério da Saúde. Sempre confirme a disponibilidade diretamente com o estabelecimento.

Pesquisa ativa

Ensaios clínicos abertos e novidades científicas recentes

🟢 Recrutando agora

1 pesquisa recrutando participantes. Converse com seu médico sobre a possibilidade de participar.

Outros ensaios clínicos

2 ensaios clínicos encontrados, 1 ativos.

Distribuição por fase
Ver todos no ClinicalTrials.gov
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Publicações mais relevantes

Timeline de publicações
393 papers (10 anos)
#1

Delayed diagnosis of Waardenburg syndrome type 1 in a Syrian adult: Challenges and lessons from resource-limited settings, a case report and literature review.

Science progress2026

Waardenburg syndrome (WS) is a rare genetic disorder characterized by congenital sensorineural hearing loss and pigmentary abnormalities, accounting for 2-5% of congenital deafness. While molecular testing is the diagnostic gold standard, clinical recognition remains crucial in low-resource or conflict-affected environments where specialized services are unavailable. We report a Syrian male in his early 20s who presented to the otorhinolaryngology clinic seeking exemption from military service, citing long-standing right-sided hearing loss. The patient and his family had never pursued medical evaluation for his pigmentary features or hearing problem. Examination revealed a white forelock, heterochromia iridis, synophrys, broad nasal root, and dystopia canthorum (W Index 2.2). Pure-tone audiometry demonstrated severe unilateral sensorineural hearing loss. Systematic neurological, ophthalmological, and musculoskeletal assessments were normal. Due to the lack of access to genetic testing, a clinical diagnosis of WS type I was made, and the patient was referred for genetic counseling. This case highlights diagnostic challenges in conflict-affected, resource-limited settings. Despite striking phenotypic features, the patient remained undiagnosed until adulthood. Missed opportunities included the absence of childhood hearing screening, delayed recognition of pigmentary signs, and a lack of educational or psychosocial support. Literature indicates that phenotypic diagnosis is reliable when multiple major criteria are present, yet diagnostic delays significantly affect quality of life. This report underscores the importance of timely recognition of WS in low-resource contexts. Strengthening primary care awareness, implementing basic audiological and pigmentary screening, and integrating psychosocial support may help mitigate diagnostic delays and improve long-term outcomes for patients with rare genetic disorders.

#2

Role of SoxE transcription factors in development and disease.

Developmental dynamics : an official publication of the American Association of Anatomists2026 Mar 25

Sox8, Sox9, and Sox10 arose by multiple rounds of genome duplications from a single SoxE gene in ancestral vertebrates. In this review, we will briefly discuss the molecular structure and function of SoxE transcription factors and their evolutionary origin. We will then discuss their expression, function, and developmental disorders. SoxE proteins play critical roles during the development of multiple tissues in vertebrate embryos, including the neural crest, inner ear, cartilages, and glia cells of diverse origins, heart, gonads, and gastrointestinal tract. Because they recognize the same DNA sequence, possess conserved functional domains, and have overlapping expression profiles, SoxE proteins act partly redundantly in many contexts. However, Sox8, Sox9, and Sox10 also have many unique and tissue-specific functions. In particular, Sox9 plays an essential role in chondrogenesis, whereas Sox10 is a central regulator of pigment and glia cells. The highly context-specific regulation of different sets of target genes by SoxE factors is due to their ability to interact and cooperate with many other proteins including other transcription factors, cofactors, and enzymes, which modulate their regulatory activity. The activity of SoxE proteins is also frequently altered in a context-dependent fashion by post-translational modifications such as phosphorylation, acetylation, and SUMOylation.

#3

Revisiting the W-Index and Waardenburg Syndrome: A Retrospective Review of Waardenburg Syndrome Diagnoses at a Single Site Hearing Loss Clinic and the Sensitivity, Specificity, and Genotype-Phenotype Correlations of an Elevated W-Index.

American journal of medical genetics. Part A2026 Mar 08

Waardenburg syndrome (WS) is a genetically heterogenous condition characterized by variable clinical features including congenital sensorineural hearing loss, pigmentation differences, dysmorphic features including dystopia canthorum, and other manifestations. Pathogenic variants in WS genes, including PAX3, MITF, SOX10, EDNRB, EDN3, and KITLG, account for approximately 3% of congenital hearing loss cases. The genetic heterogeneity, variable expressivity, and different subtypes of WS have made diagnosis challenging. Recent literature suggests that W-index measurements evaluating for dystopia canthorum may not accurately differentiate between WS Types 1 and 2. This retrospective chart review investigated genotype-phenotype correlations in patients with WS at the Children's Hospital of Philadelphia. This study included 56 patients with a clinical or genetic diagnosis of WS. In addition, data was collected from 1744 patients with hearing loss and W-index measurements. Phenotypic characteristics were recorded for all 56 patients and an additional 230 patients with an elevated W-index (> 1.95) lacking a diagnosis of WS to determine the predictiveness of the W-index for WS. This study updates genotype-phenotype correlations in WS, characterizes novel variants, investigates the utility and predictiveness of W-index values in children with hearing loss, and provides rationale for increasing the W-index cutoff for dystopia canthorum to reduce negative testing results.

#4

Epigenetic, Genetic, and Functional Germline Alterations of PAX Genes in Human Pathology: A Comprehensive Update.

Current issues in molecular biology2026 Feb 23

Paired box (PAX) genes encode a family of nine transcription factors that function as master regulators of embryogenesis, organogenesis, and lineage specification. Their tightly regulated spatial and temporal expression is essential for the development of multiple organ systems, including the central nervous system, eyes, kidneys, immune system, musculoskeletal system, and endocrine organs. Germline mutations of PAX genes result in a broad and often pleiotropic spectrum of human disease, reflecting the developmental programs governed by each family member. Pathogenic variants in PAX genes underlie diverse congenital disorders such as aniridia (PAX6), renal coloboma syndrome (PAX2), otofaciocervical syndrome with immunodeficiency (PAX1), Waardenburg syndrome (PAX3), maturity-onset diabetes of the young (PAX4), and tooth agenesis (PAX9). These conditions frequently demonstrate variable expressivity, incomplete penetrance, and overlapping phenotypes, which make it challenging to be clinically recognized. Beyond embryogenesis and embryologic development, emerging evidence indicates that several PAX proteins remain active in postnatal tissue maintenance, adult stem cell regulation, immune function, and regenerative responses (particularly PAX7 in skeletal muscle satellite cells and PAX5 in B-cell homeostasis), further expanding their clinical relevance. This review provides a synopsis of the major, clinically relevant, germline PAX gene mutations, emphasizing genotype-phenotype correlations, developmental mechanisms, and disease classification across the organ systems. By integrating molecular genetics with human pathology, we highlight the diagnostic implications of PAX genes as central determinants of congenital disease and provide a framework for understanding how alterations in the developmental transcriptional networks translate into human pathology.

#5

SOX10 Mutation of Waardenburg Syndrome With Hypogonadism: A Report of 2 Cases.

JCEM case reports2026 Feb

Waardenburg syndrome (WS) is a complex genetic disorder primarily characterized by auditory and pigmentary abnormalities, resulting from neural crest cell migration disorders. We reported 2 genetically confirmed SOX10-mutant WS cases illustrating critical management principles. Both patients underwent early auditory intervention (case 1: cochlear implantation at age 3; case 2: hearing aids from age 2), resulting in preserved age-appropriate language acquisition. Each case manifested delayed puberty with biochemical evidence of hypogonadotropic hypogonadism, necessitating gonadotropin therapy to potentiate virilization and preserve fertility. Multidisciplinary care and emerging therapeutic approaches offer hope for better management. Further studies are warranted to improve the diagnosis, treatment, and quality of life of patients with WS.

Publicações recentes

Ver todas no PubMed

📚 EuropePMC587 artigos no totalmostrando 195

2026

Role of SoxE transcription factors in development and disease.

Developmental dynamics : an official publication of the American Association of Anatomists
2026

Foveal Hypoplasia in Waardenburg Syndrome.

Ophthalmology
2026

Revisiting the W-Index and Waardenburg Syndrome: A Retrospective Review of Waardenburg Syndrome Diagnoses at a Single Site Hearing Loss Clinic and the Sensitivity, Specificity, and Genotype-Phenotype Correlations of an Elevated W-Index.

American journal of medical genetics. Part A
2026

Cochlear duct length variability in prelingual sensorineural hearing loss: Emphasis on Waardenburg syndrome and implications for cochlear implantation.

European archives of oto-rhino-laryngology : official journal of the European Federation of Oto-Rhino-Laryngological Societies (EUFOS) : affiliated with the German Society for Oto-Rhino-Laryngology - Head and Neck Surgery
2026

Delayed diagnosis of Waardenburg syndrome type 1 in a Syrian adult: Challenges and lessons from resource-limited settings, a case report and literature review.

Science progress
2026

Epigenetic, Genetic, and Functional Germline Alterations of PAX Genes in Human Pathology: A Comprehensive Update.

Current issues in molecular biology
2026

[Waardenburg syndrome type 1 in a black woman].

Journal francais d'ophtalmologie
2026

SOX10 Mutation of Waardenburg Syndrome With Hypogonadism: A Report of 2 Cases.

JCEM case reports
2026

[Incomplete penetrance of SOX10 gene mutation in a family with Waardenburg syndrome type Ⅳ].

Lin chuang er bi yan hou tou jing wai ke za zhi = Journal of clinical otorhinolaryngology head and neck surgery
2025

Genetics of Waardenburg Syndrome in Africa: A Systematic Review.

International journal of molecular sciences
2025

Long-Term Hearing, Language, and Educational Outcomes After Cochlear Implantation in Children With Waardenburg Syndrome.

Cureus
2025

Morphological evidence suggestive of a hierarchical mode of glial cell diversification and intrinsic developmental plasticity within the murine enteric nervous system.

Frontiers in neuroscience
2025

Whole-Exome Sequencing Identified a Nonsense Pathogenic Variant in the MITF Gene Associated with Non-syndromic Hearing Loss.

Biochemical genetics
2025

Analysis of the clinical features of neurocristopathy-related hearing loss and how these relate to outcomes after cochlear implantation.

Scientific reports
2025

A novel frameshift variant of PAX3 in a Chinese Yugur family with Waardenburg syndrome type 1.

Frontiers in genetics
2025

Association of Waardenburg syndrome with a new mutation in the PAX3 gene: A case report and literature review.

Biomedical reports
2025

Mild features of partial PAX3 deletion in patients with prenatal Waardenburg syndrome: a case report and literature review.

Frontiers in pediatrics
2026

Genetic Pigmentary Disorders: From Molecular Mechanisms to Clinical Manifestations.

The Journal of dermatology
2025

Developmental arrest of astrocyte lineage in Snai2 deletion mice: implication for the intellectual disability in patients with Waardenburg syndrome.

Translational psychiatry
2025

Pigment Pathways Collide: A Rare Case of Retinitis Pigmentosa and Nevus of Ota.

Cureus
2025

[Expert consensus on prognostic evaluation of cochlear implantation in hereditary hearing loss].

Lin chuang er bi yan hou tou jing wai ke za zhi = Journal of clinical otorhinolaryngology head and neck surgery
2025

Clinical Characteristics and Identification of Pathogenic Variant in a Large Chinese Family With Waardenburg Syndrome.

Molecular genetics &amp; genomic medicine
2025

Vestibular Deficit in Patients with Waardenburg Syndrome.

Biomedicines
2025

Association of PAX3 Gene Polymorphism with Three-Dimensional Nasal Root Morphology.

International journal of molecular sciences
2025

Bilateral vestibular hypofunction in children.

International journal of pediatric otorhinolaryngology
2025

Full length transcriptomic profiling reveals insights into the white coat phenotype in Waardenburg syndrome mice harboring the Mitf R324del mutation.

Scientific reports
2025

Waardenburg Syndrome: Review of Genotype-Phenotype Relationships in 30 Patients in Hong Kong.

American journal of medical genetics. Part A
2025

Waardenburg Syndrome in a Family.

International journal of trichology
2025

Waardenburg Syndrome Type 4 in Mongolian Children: Genetic and Clinical Characterization.

International journal of molecular sciences
2025

[Exploration of the pathogenic mechanism of a novel c.661_664dup (p.P222Lfs*60) variant of SOX10 gene].

Zhonghua yi xue yi chuan xue za zhi = Zhonghua yixue yichuanxue zazhi = Chinese journal of medical genetics
2025

Genetics of Skin, Hair, and Eye Color in Human Pigmentation Disorders.

Annals of human genetics
2025

[Mechanisms of enhanced noise susceptibility in waardenburg syndrome Sox10 p.S100Rfs*9 mutant mice].

Lin chuang er bi yan hou tou jing wai ke za zhi = Journal of clinical otorhinolaryngology head and neck surgery
2025

Waardenburg Syndrome With T-Lymphoblastic Lymphoma: A Case Report.

Pediatric blood &amp; cancer
2025

The Diverse Genetic Landscape of Hearing Impairment in South African Families.

Clinical genetics
2025

Pathology Seen in Myenteric Plexus in Two Subjects With Waardenburg Syndrome.

Neurogastroenterology and motility
2025

Congenital Localized Hypopigmentation Disorders as a Clue of Severe Neurologic Involvement: An Update Review.

Journal of child neurology
2025

Waardenburg syndrome: a unique presentation with unilateral choroidal hypopigmentation and bilateral congenital toxoplasmosis scars.

BMJ case reports
2025

Etiologies of Early-Onset Hearing Impairment in Rwanda.

Genes
2025

Concurrent novel mutations in PAX3 and CFAP410 in a patient with Waardenburg syndrome type 1 associated with Retinitis Pigmentosa.

Ophthalmic genetics
2025

A novel frameshift mutation of SOX10 identified in Waardenburg syndrome type 2.

Human molecular genetics
2025

Unraveling the genetic spectrum of inherited deaf-blindness in Portugal.

Orphanet journal of rare diseases
2024

Identification of the Mitf gene mutation causing congenital deafness and pigmentation disorders in porcupines using BSA-Seq.

Scientific reports
2025

Audiologic Outcomes After Cochlear Implantation in Prelingually Deaf Children Who Have Combined Anomalies or Disabilities.

Otology &amp; neurotology : official publication of the American Otological Society, American Neurotology Society [and] European Academy of Otology and Neurotology
2024

Syndromic Association of Depigmentation With Congenital Hearing Loss: A Review of Three Children With Auditory Pigmentary Disorders.

Ear, nose, &amp; throat journal
2024

Comparison of Genetic, Auditory Features, and Systemic Clinical Phenotype in 14 Families with Syndromic Hearing Loss.

The application of clinical genetics
2025

Case of sapphire eyes with hearing loss: Waardenburg syndrome type 1 in a young girl.

Archives of disease in childhood
2024

Comprehensive Approach for the Genetic Diagnosis of Patients with Waardenburg Syndrome.

Journal of personalized medicine
2024

Waardenburg Syndrome: A Rare Disorder with an Uncommon Manifestation in a Neonate.

Journal of the College of Physicians and Surgeons--Pakistan : JCPSP
2024

Waardenburg Syndrome: A Report of a Rare Case.

Cureus
2025

Cochlear implantation in syndromic patients: difficulties and lessons learnt.

European archives of oto-rhino-laryngology : official journal of the European Federation of Oto-Rhino-Laryngological Societies (EUFOS) : affiliated with the German Society for Oto-Rhino-Laryngology - Head and Neck Surgery
2024

Genetic Variability of SOX10-Related Disorders within an Italian Family: Straddling the Line between Kallmann and Waardenburg Syndrome.

Molecular syndromology
2024

Concurrent Cardiac and Renal Anomalies in Waardenburg Syndrome Type 1: A Report of a Rare Case.

Cureus
2024

Auditory and speech outcomes of cochlear implantation in patients with Waardenburg syndrome: a meta-analysis.

Frontiers in neurology
2024

An unusual iris in Waardenburg syndrome.

Asia-Pacific journal of ophthalmology (Philadelphia, Pa.)
2024

Different Founding Effects Underlie Dominant Blue Eyes (DBE) in the Domestic Cat.

Animals : an open access journal from MDPI
2024

Multimodal phenotyping of foveal hypoplasia in albinism and albino-like conditions: a pediatric case series with adaptive optics insights.

Scientific reports
2024

PAX3 haploinsufficiency in Maine Coon cats with dominant blue eyes and hearing loss resembling the human Waardenburg syndrome.

G3 (Bethesda, Md.)
2024

Clinical Insights Into Waardenburg-Shah Syndrome: A Case Series and Literature Review.

Cureus
2024

Asymmetric preservation of choroidal pigmentation simulating choroidal nevus in two siblings with Waardenburg syndrome type 2A.

Ophthalmic genetics
2024

Deciphering potential causative factors for undiagnosed Waardenburg syndrome through multi-data integration.

Orphanet journal of rare diseases
2024

Current phenotypic and genetic spectrum of syndromic deafness in Tunisia: paving the way for precision auditory health.

Frontiers in genetics
2024

Clinical and Genetic Correlation in Neurocristopathies: Bridging a Precision Medicine Gap.

Journal of clinical medicine
2024

Waardenburg syndrome type 2 with a de novo variant of the SOX10 gene: a case report.

BMC medical genomics
2024

A novel SOX10 mutation causing Waardenburg syndrome type 2 by expressing a truncated and dysfunctional protein in a Chinese child.

Molecular biology reports
2024

Waardenburg Syndrome Type 2 in Paediatrics: A Case Highlighting Diagnostic Complexities and the Efficacy of Cochlear Implantation.

Indian journal of otolaryngology and head and neck surgery : official publication of the Association of Otolaryngologists of India
2024

Heterochromia caused by Waardenburg syndrome in a 2-month-old infant.

CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne
2024

Genetic insights into Tietz albinism-deafness syndrome: A new dominant-negative mutation in MITF.

Pigment cell &amp; melanoma research
2024

A novel frameshift mutation in SOX10 gene induced Waardenburg syndrome type II.

Molecular genetics &amp; genomic medicine
2024

Waardenburg syndrome type 1: a case report of a family with a intragenic PAX3 deletion with no hearing loss or heterochromia of iris.

Clinical dysmorphology
2023

Waardenburg Syndrome: The Contribution of Next-Generation Sequencing to the Identification of Novel Causative Variants.

Audiology research
2024

Loss of Pax3 causes reduction of melanocytes in the developing mouse cochlea.

Scientific reports
2024

PAX3 mutation suppress otic progenitors proliferation and induce apoptosis by inhibiting WNT1/β-catenin signaling pathway in WS1 patient iPSC-derived inner ear organoids.

Biochemical and biophysical research communications
2023

Identification of a de novo, Novel Pathogenic Variant in the Splice Region of the SOX10 Gene in an Iranian Azeri Turkish Family with Waardenburg Syndrome.

Molecular syndromology
2023

[Genetic testing and prenatal diagnosis for a Chinese pedigree affected with Waardenburg syndrome type 4C due to heterozygous deletion of SOX10 gene].

Zhonghua yi xue yi chuan xue za zhi = Zhonghua yixue yichuanxue zazhi = Chinese journal of medical genetics
2023

Cochlear Implantation in Children with Additional Disabilities: A Systematic Review.

Children (Basel, Switzerland)
2023

Cochlear implantation in Waardenburg syndrome: Systematic review and meta-analysis.

International journal of pediatric otorhinolaryngology
2023

Acetylation reprograms MITF target selectivity and residence time.

Nature communications
2023

A gross deletion of the PAX3 gene in a large Chinese family with Waardenburg syndrome type I.

World journal of pediatrics : WJP
2023

Association of autism spectrum disorder with Waardenburg syndrome in a toddler.

BMJ case reports
2023

Time-resolved quantitative proteomic analysis of the developing Xenopus otic vesicle reveals putative congenital hearing loss candidates.

iScience
2023

Outcomes of Cochlear implantation in early-deafened patients with Waardenburg syndrome: A systematic review and narrative synthesis.

Laryngoscope investigative otolaryngology
2023

RWC Update: Subretinal Cysticercosis; Pars Plana Vitrectomy for Proliferative Diabetic Retinopathy; Waardenburg Syndrome With Pseudo-Choroidal Melanocytosis.

Ophthalmic surgery, lasers &amp; imaging retina
2024

Modeling of pigmentation disorders associated with MITF mutation in Waardenburg syndrome revealed an impaired melanogenesis pathway in iPS-derived melanocytes.

Pigment cell &amp; melanoma research
2023

A 22q13.1 duplication in mosaicism including SOX10.

American journal of medical genetics. Part A
2023

A novel variant of the SOX10 gene associated with Waardenburg syndrome type IV.

BMC medical genomics
2023

Pax3 deficiency diminishes melanocytes in the developing mouse cochlea.

Research square
2023

Phenotypic continuum between Waardenburg syndrome and idiopathic hypogonadotropic hypogonadism in humans with SOX10 variants.

Genetics in medicine : official journal of the American College of Medical Genetics
2023

A De Novo Mutation in SOX10 in a Chinese Boy with Waardenburg Syndrome Type 2.

The journal of international advanced otology
2023

[Analysis of clinical phenotype and genetic variants among four Chinese pedigrees affected with Waardenburg syndrome].

Zhonghua yi xue yi chuan xue za zhi = Zhonghua yixue yichuanxue zazhi = Chinese journal of medical genetics
2023

Unilateral High Intraocular Pressure, Cataract, and Retinal Detachment in Waardenburg Syndrome.

Case reports in ophthalmology
2023

Role of Twins in Waardenburg Syndrome: 1916 - present/Twin Research Reviews: MZ Twins' Different Dermatoglyphics; Twins with Sagittal Suture Crainosynostosis; Blood Pressure in Female Twins; MZ Twins' Education and Political Knowledge/Media Reports: Twins Created by Reciprocal In Vitro Fertilization; Reared-Apart Triplets' Limited TV Series; Abducted Twin Infants; Winkelvoss Twins Charged by the Securities and Exchange Commission; Going From 'Me' to 'We'.

Twin research and human genetics : the official journal of the International Society for Twin Studies
2023

White coat color of a Black Angus calf attributed to an occurrence of the delR217 variant of MITF.

Animal genetics
2023

Identification of two variants in PAX3 and FBN1 in a Chinese family with Waardenburg and Marfan syndrome via whole exome sequencing.

Functional &amp; integrative genomics
2023

Two induced pluripotent stem cell (iPSC) lines derived from patients affected by Waardenburg syndrome type 1 retain potential to activate neural crest markers.

Stem cell research
2023

Childhood Hearing Impairment in Senegal.

Genes
2023

Progressive scoliosis associated with microphthalmia with limb anomalies: A case report.

Medicine
2022

Diagnosis and genetic analysis of a case of Waardenburg syndrome type 2 with hypogonadotropic hypogonadism caused by SOX10 gene deletion.

Yi chuan = Hereditas
2023

Artificial intelligence and machine learning tools for high-performance microalgal wastewater treatment and algal biorefinery: A critical review.

The Science of the total environment
2023

[Analysis of molecular genetics and clinical characteristics of 3 children with Waardenburg syndrome].

Lin chuang er bi yan hou tou jing wai ke za zhi = Journal of clinical otorhinolaryngology head and neck surgery
2022

Ocular Manifestations in Patients with Sensorineural Hearing Loss.

Journal of ophthalmic &amp; vision research
2023

A unique hyperdynamic dimer interface permits small molecule perturbation of the melanoma oncoprotein MITF for melanoma therapy.

Cell research
2023

Quantitative assessment of low-level parental mosaicism of SNVs and CNVs in Waardenburg syndrome.

Human genetics
2022

Waardenburg syndrome type 1 with unilateral glaucoma.

The Indian journal of medical research
2022

Molecular etiology study of hearing loss in 13 Chinese Han families.

Frontiers in neurology
2023

PORCN-related microphthalmia with limb anomalies: Case report and literature review.

American journal of medical genetics. Part A
2022

Identification of nine novel variants across PAX3, SOX10, EDNRB, and MITF genes in Waardenburg syndrome with next-generation sequencing.

Molecular genetics &amp; genomic medicine
2022

A comprehensive genotype-phenotype evaluation of eight Chinese probands with Waardenburg syndrome.

BMC medical genomics
2022

A Novel Variant in Paired Box 3 Gene-related with Waardenburg Syndrome Type-1 in an Afghan Family.

Journal of the College of Physicians and Surgeons--Pakistan : JCPSP
2022

Bilateral cochlear implantation in a child with Waardenburg syndrome: A case report.

Frontiers in pediatrics
2022

Waardenburg syndrome-associated neurotrophic keratopathy in a child treated with neurotization surgery.

Journal of AAPOS : the official publication of the American Association for Pediatric Ophthalmology and Strabismus
2022

Case report: Exotropia in waardenburg syndrome with novel variations.

Frontiers in genetics
2022

Case report: Heterogeneous mutations of SOX10 gene in a Chinese infant with Waardenburg syndrome type 4C.

Frontiers in pediatrics
2022

Rhegmatogenous Retinal Detachment in Waardenburg Syndrome: A Case Report.

Korean journal of ophthalmology : KJO
2022

Hearing characteristics and cochlear implant effects in children with Waardenburg syndrome: a case series.

Translational pediatrics
2022

NR2F1 regulates a Schwann cell precursor-vs-melanocyte cell fate switch in a mouse model of Waardenburg syndrome type IV.

Pigment cell &amp; melanoma research
2022

Commentary: Waardenburg syndrome: Genetics and ocular features.

Indian journal of ophthalmology
2022

Waardenburg Syndrome Type 1.

Indian journal of ophthalmology
2022

Waardenburg syndrome type 4 coexisting with open-angle glaucoma: a case report.

Journal of medical case reports
2023

Iris Heterochromia and Choroidal Hypopigmentation in Waardenburg Syndrome.

Ophthalmology
2022

Neurological Waardenburg-Shah syndrome: a diagnostic challenge in a child with skin hypopigmentation and neurological manifestation.

BMJ case reports
2022

Establishment of an iPSC line (CPGHi005-A) from a patient with Waardenburg syndrome carrying a heterozygous SVA-F retrotransposon insertion into SOX10.

Stem cell research
2022

Biallelic variants in PAX3 cause Klein syndrome.

Clinical genetics
2022

Biallelic KITLG variants lead to a distinct spectrum of hypomelanosis and sensorineural hearing loss.

Journal of the European Academy of Dermatology and Venereology : JEADV
2022

[Evaluation of hearing and speech rehabilitation after cochlear implantation in children with Waardenburg syndrome].

Lin chuang er bi yan hou tou jing wai ke za zhi = Journal of clinical otorhinolaryngology head and neck surgery
2022

Association of type II Waardenburg syndrome with hypermetropic amblyopia.

International journal of ophthalmology
2022

Exome sequencing of families from Ghana reveals known and candidate hearing impairment genes.

Communications biology
2022

Isolated Right Superior Vena Cava Drained to Left Atrium in a Child with Waardenburg Syndrome and Neurofibromatosis Type I.

Journal of the Saudi Heart Association
2022

Waardenburg-Shah syndrome rare and challenging case report from Somalia.

International journal of surgery case reports
2022

Hearing Function, Degeneration, and Disease: Spotlight on the Stria Vascularis.

Frontiers in cell and developmental biology
2022

Sox10 Gene Is Required for the Survival of Saccular and Utricular Hair Cells in a Porcine Model.

Molecular neurobiology
2022

Genetic etiology of hearing loss in Iran.

Human genetics
2022

Hearing Impairment in South Africa and the Lessons Learned for Planetary Health Genomics: A Systematic Review.

Omics : a journal of integrative biology
2021

Etiologies of Childhood Hearing Impairment in Schools for the Deaf in Mali.

Frontiers in pediatrics
2021

Establishment of an induced pluripotent stem cell line (ZZUPMCi001-A) derived from peripheral blood mononuclear cells in a patient with type 1 Waardenburg syndrome.

Stem cell research
2021

Perioperative Care of a Patient With Waardenburg Syndrome.

Journal of medical cases
2021

Generation of a heterozygous SOX10 knockout human embryonic stem cell line using CRISPR/Cas9 technology.

Stem cell research
2022

SOX10: 20 years of phenotypic plurality and current understanding of its developmental function.

Journal of medical genetics
2021

[Application of next generation sequencing in 3 Waardenburg syndrome].

Lin chuang er bi yan hou tou jing wai ke za zhi = Journal of clinical otorhinolaryngology head and neck surgery
2022

Molecular and genetic characterization of a large Brazilian cohort presenting hearing loss.

Human genetics
2022

[Waardenburg's Syndrome Type IIA with Partial Albinism].

Klinische Monatsblatter fur Augenheilkunde
2021

Waardenburg syndrome type 2A in a large Iranian family with a novel MITF gene mutation.

BMC medical genomics
2021

Case Report: A Novel Gross Deletion in PAX3 (10.26 kb) Identified in a Chinese Family With Waardenburg Syndrome by Third-Generation Sequencing.

Frontiers in genetics
2021

SOX10 ablation severely impairs the generation of postmigratory neural crest from human pluripotent stem cells.

Cell death &amp; disease
2021

A Model of Waardenburg Syndrome Using Patient-Derived iPSCs With a SOX10 Mutation Displays Compromised Maturation and Function of the Neural Crest That Involves Inner Ear Development.

Frontiers in cell and developmental biology
2021

A Novel Frameshift Variant of the MITF Gene in a Chinese Family with Waardenburg Syndrome Type 2.

Molecular syndromology
2021

Identification of novel MITF mutations in Chinese families with Waardenburg syndrome type II.

Molecular genetics &amp; genomic medicine
2021

[Genotype and phenotype analysis of a family with Waardenburg syndrome type Ⅰcaused by a novel mutation in PAX3 gene].

Lin chuang er bi yan hou tou jing wai ke za zhi = Journal of clinical otorhinolaryngology head and neck surgery
2021

Clinical phenocopies of albinism.

Journal of AAPOS : the official publication of the American Association for Pediatric Ophthalmology and Strabismus
2021

Nerve-associated Schwann cell precursors contribute extracutaneous melanocytes to the heart, inner ear, supraorbital locations and brain meninges.

Cellular and molecular life sciences : CMLS
2021

A novel case of concurrent occurrence of demyelinating-polyneuropathy-causing PMP22 duplication and SOX10 gene mutation producing severe hypertrophic neuropathy.

BMC neurology
2021

Clinical manifestations and novel pathogenic variants in SOX10 in eight Danish probands with Waardenburg syndrome.

European journal of medical genetics
2024

Waardenburg syndrome diagnosed in a 35-year-old lady.

Orbit (Amsterdam, Netherlands)
2021

High Genetic Heterogeneity in Chinese Patients With Waardenburg Syndrome Revealed by Next-Generation Sequencing.

Frontiers in genetics
2022

Analysis of genotype-phenotype relationships in 90 Chinese probands with Waardenburg syndrome.

Human genetics
2021

SOX10 Mutation Screening for 117 Patients with Kallmann Syndrome.

Journal of the Endocrine Society
2021

CRISPR/Cas9-mediated correction of MITF homozygous point mutation in a Waardenburg syndrome 2A pig model.

Molecular therapy. Nucleic acids
2021

Corpus callosotomy for drug-resistant epilepsy in a pediatric patient with Waardenburg syndrome Type I.

Surgical neurology international
2021

Waardenburg Syndrome Associated With Bilateral Nasolacrimal Duct Obstruction.

Journal of pediatric ophthalmology and strabismus
2021

A novel PAX3 mutation in a Chinese Han family with Waardenburg syndrome type 1.

International journal of pediatric otorhinolaryngology
2021

Identification of a novel heterozygous mutation in the MITF gene in an Iranian family with Waardenburg syndrome type II using next-generation sequencing.

Journal of clinical laboratory analysis
2021

A novel SOX10 nonsense mutation in a patient with Kallmann syndrome and Waardenburg syndrome.

Endocrinology, diabetes &amp; metabolism case reports
2021

A de novo mutation of the SOX10 gene associated with inner ear malformation in a Guangxi family with Waardenburg syndrome type II.

International journal of pediatric otorhinolaryngology
2021

Establishment of an iPSC line (CSUXHi004-A) from a patient with Waardenburg syndrome type I caused by a PAX3 splice mutation.

Stem cell research
2020

Phenotypic similarities in pigs with SOX10c.321dupC and SOX10c.325A>T mutations implied the correlation of SOX10 haploinsufficiency with Waardenburg syndrome.

Journal of genetics and genomics = Yi chuan xue bao
2021

Case Report: A Novel PAX3 Mutation Associated With Waardenburg Syndrome Type 1.

Frontiers in genetics
2021

Depigmented patches in a child.

JAAD case reports
2022

Genetic insights, disease mechanisms, and biological therapeutics for Waardenburg syndrome.

Gene therapy
2020

Kallmann Syndrome Due to Heterozygous Mutation in SOX10 Coexisting With Waardenburg Syndrome Type II: Case Report and Review of Literature.

Frontiers in endocrinology
2021

Frameshift variant in MITF gene in a large family with Waardenburg syndrome type II and a co-segregation of a C2orf74 variant.

PloS one
2021

Four mutations in MITF, SOX10 and PAX3 genes were identified as genetic causes of waardenburg syndrome in four unrelated Iranian patients: case report.

BMC pediatrics
2021

MITF p.Arg217Thr Variant Identified in a Han Chinese Family with Tietz/Waardenburg Syndrome.

BioMed research international
2021

[Analysis of genetic characteristics in two Chinese children of type Ⅱ Waardenburg syndrome].

Zhonghua er bi yan hou tou jing wai ke za zhi = Chinese journal of otorhinolaryngology head and neck surgery
2021

Establishment of an iPSC line (CSUXHi003-A) from a patient with Waardenburg syndrome type Ⅱ caused by a MITF mutation.

Stem cell research
2021

Can Waardenburg syndrome type 2 be explained by epigenetic mosaicism?

American journal of medical genetics. Part A
2020

Hereditary Hearing Impairment with Cutaneous Abnormalities.

Genes
2020

Molecules, Mechanisms, and Disorders of Self-Domestication: Keys for Understanding Emotional and Social Communication from an Evolutionary Perspective.

Biomolecules
2020

Novel SOX10 Mutations in Waardenburg Syndrome: Functional Characterization and Genotype-Phenotype Analysis.

Frontiers in genetics
2021

Waardenburg syndrome type II in a Chinese pedigree caused by frameshift mutation in the SOX10 gene.

Bioscience reports
2020

Hearing and speech performance after cochlear implantation in children with Waardenburg syndrome.

CoDAS
2020

Oral manifestation of Waardenburg syndrome: a case report and review of the literature.

BJR case reports
2020

Targeted next-generation sequencing identified a novel variant of SOX10 in a Chinese family with Waardenburg syndrome type 2.

The Journal of international medical research
2021

Novel variants in EDNRB gene in Waardenburg syndrome type II and SOX10 gene in PCWH syndrome.

International journal of pediatric otorhinolaryngology
2020

[Identification of a novel mutation of SOX10 gene and analysis of the phenotype].

Zhonghua er bi yan hou tou jing wai ke za zhi = Chinese journal of otorhinolaryngology head and neck surgery
2020

Waardenburg Syndrome Type-II in Twin Siblings: An Unusual Audio-Pigmentary Disorder.

Cureus
2020

A novel SOX10 variant in a Japanese girl with Waardenburg syndrome type 4C and Kallmann syndrome.

Human genome variation
2020

A follow-up study of a Chinese family with Waardenburg syndrome type II caused by a truncating mutation of MITF gene.

Molecular genetics &amp; genomic medicine
2020

KIT gene mutation causes deafness and hypopigmentation in Bama miniature pigs.

American journal of translational research
2020

Phenotypic diversity and genetic complexity of PAX3-related Waardenburg syndrome.

American journal of medical genetics. Part A
2020

Does SNAI2 mutation cause human piebaldism and Waardenburg syndrome?

American journal of medical genetics. Part A
2021

Juvenile Open-angle Glaucoma With Waardenburg Syndrome: A Case Report.

Journal of glaucoma
2025

Outcome of Children With Intestinal Failure Due to Waardenburg Syndrome From an Intestinal Transplant Center: A Case Series.

Experimental and clinical transplantation : official journal of the Middle East Society for Organ Transplantation
2021

Identification and functional analysis of a novel missense mutation of PAX3 associated with Waardenburg syndrome type I.

European archives of oto-rhino-laryngology : official journal of the European Federation of Oto-Rhino-Laryngological Societies (EUFOS) : affiliated with the German Society for Oto-Rhino-Laryngology - Head and Neck Surgery
2020

Etiological Work-up in Referrals From Neonatal Hearing Screening: 20 Years of Experience.

Otology &amp; neurotology : official publication of the American Otological Society, American Neurotology Society [and] European Academy of Otology and Neurotology
2020

[Clinical and genetic characteristics of Chinese patients with Waardenburg syndrome].

Zhonghua yi xue yi chuan xue za zhi = Zhonghua yixue yichuanxue zazhi = Chinese journal of medical genetics
2020

A Novel Spontaneous Mutation of the SOX10 Gene Associated with Waardenburg Syndrome Type II.

Neural plasticity
Ver todos os 587 no EuropePMC

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Doenças relacionadas

Doenças com sintomas parecidos — ajudam quem ainda está buscando diagnóstico

Ordenadas pelo número de sintomas em comum.

Referências e fontes

Bases de dados externas citadas neste artigo

Publicações científicas

Artigos indexados no PubMed ligados a esta doença no grafo RarasNet — título, periódico e PMID direto da fonte, sem intermediação de IA.

  1. Delayed diagnosis of Waardenburg syndrome type 1 in a Syrian adult: Challenges and lessons from resource-limited settings, a case report and literature review.
    Science progress· 2026· PMID 41761471mais citado
  2. Role of SoxE transcription factors in development and disease.
    Developmental dynamics : an official publication of the American Association of Anatomists· 2026· PMID 41879230mais citado
  3. Revisiting the W-Index and Waardenburg Syndrome: A Retrospective Review of Waardenburg Syndrome Diagnoses at a Single Site Hearing Loss Clinic and the Sensitivity, Specificity, and Genotype-Phenotype Correlations of an Elevated W-Index.
    American journal of medical genetics. Part A· 2026· PMID 41795619mais citado
  4. Epigenetic, Genetic, and Functional Germline Alterations of PAX Genes in Human Pathology: A Comprehensive Update.
    Current issues in molecular biology· 2026· PMID 41751498mais citado
  5. SOX10 Mutation of Waardenburg Syndrome With Hypogonadism: A Report of 2 Cases.
    JCEM case reports· 2026· PMID 41684881mais citado
  6. A Rare Co-occurrence: Down Syndrome with Waardenburg Syndrome.
    Indian J Pediatr· 2026· PMID 41961232recente
  7. A 37-year-old asymptomatic African-American female with fundus spots.
    Retin Cases Brief Rep· 2026· PMID 41960999recente
  8. Waardenburg-Shah Syndrome: Diagnostic and Surgical Challenges in a Resource-Limited Setting - A Rare Case Report.
    Int Med Case Rep J· 2026· PMID 41940241recente
  9. Radiological phenotyping in patients with SOX10 pathogenic variants: insights into neck, brain and temporal bones abnormalities.
    AJNR Am J Neuroradiol· 2026· PMID 41887743recente

Bases de dados e fontes oficiais

Identificadores e referências canônicas usadas para montar este verbete.

  1. ORPHA:3440(Orphanet)
  2. MONDO:0018094(MONDO)
  3. GARD:5525(GARD (NIH))
  4. Variantes catalogadas(ClinVar)
  5. Busca completa no PubMed(PubMed)
  6. Artigo Wikipedia(Wikipedia)
  7. Q1151801(Wikidata)

Dados compilados pelo RarasNet a partir de fontes abertas (Orphanet, OMIM, MONDO, PubMed/EuropePMC, ClinicalTrials.gov, DATASUS, PCDT/MS). Este conteúdo é informativo e não substitui avaliação médica.

Conteúdo mantido por Agente Raras · Médicos e pesquisadores podem colaborar

Síndrome Waardenburg
Compêndio · Raras BR

Síndrome Waardenburg

ORPHA:3440 · MONDO:0018094
Prevalência
1-9 / 100 000
Herança
Autosomal dominant, Autosomal recessive
CID-10
E70.3 · Albinismo
CID-11
Ensaios
1 ativos
Início
Infancy, Neonatal
Prevalência
1.74 (United States)
MedGen
UMLS
C0079661
EuropePMC
Wikidata
Wikipedia
Papers 10a
DiscussaoAtiva

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